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Big Stats
Full Story Archive
This section is intended for use only on the main Stories page.
Viral Encephalitis Lived Experience - Ken's Story
Ken, who was diagnosed at just 2 years old, talks about his experience of viral encephalitis and growing up with very little information in the 60's and 70's.
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Anti-NMDAR Encephalitis Lived Experience - Kelly's Story
Kelly talks about her experience of having meningococcal encephalitis as a seven month old and then 3 subsequent experiences of encephalitis including Anti-NMDAR encephalitis.
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Mengioencephilitis Live Experience - Katie's Story
Katie talks about her experience of Mengioencephilitis, that causes flu like symptoms, that she had while she was working for the NHS.
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Meningoencephalitis Live Experience - Katharina's Story
Katharina talks about her experience of Meningoencephalitis which can cause flu like symptoms. She tells her story from the memory of others and how her life has changed as a result of encephalitis.
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Anti-NMDR Encephalitis Lived Experience - Juliana's Story
Juliana talks about her lived experience of Anti-NMDR encephalitis which she had when she was just 14 years old and how her live changed as a result.
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Herpes Simplex Encephalitis Lived Experience - Joshua's Story
Joshua shares his experience of panic attacks, anxiety and fatigue as a result of his herpes simplex encephalitis diagnosis.
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Meningoencephalitis Lived Experience - Jeremy's Story
Jeremy shares his story of waking from a 10 day coma to a diagnosis of amoebic meningoencephalitis, a type of infectious encephalitis.
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Viral Encephalitis - Janet's Story told by husband, Peter
Janet's husband, Peter, recalls their experience of encephalitis when Janet was diagnosed in 2007 with viral encephalitis. She later passed away in 2018.
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Limbic Autoimmune Encephalitis Lived Experience - James' Story
Sue talks about her experience of James being diagnosed with limbic autoimmune encephalitis and how there were no warning signs. Read about his diagnosis and recovery.
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Autoimmune Encephalitis Lived Experience - Jackie's Story
This is the article that Jackie wrote about her experience of encephalitis for The Gavel, the quarterly magazine of the North Dakota State Bar Association. She talks about her diagnosis or autoimmune encephalitis.
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Viral Encephalitis - Nicholas' story told by mum, Sarah
At the age of 16 years, Nicholas was struck down by a completely random virus, which caused encephalitis and subsequent brain damage. He was in intensive care for a long while and had to learn to walk, talk, eat, read, and basically live, all over again. Nicholas’ mental age never fully recovered, and he became the perpetual teenager in his thoughts and actions.
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Anti-NMDAR Encephalitis Lived Experience - Hayleigh's Story
Hayleigh, from London, became poorly with Anti-NMDAR encephalitis towards the end of 2012. As part of her degree at the University of West London in Ealing, she filmed a documentary about her story, speaking to family members, including her twin, Laura, her doctors as well as talking about her own experiences.
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Anti-NMDAR Encephalitis Lived Experience - Hannah's Story
I was admitted into hospital on the 31st August, 2017, just twelve days after my 21st birthday. This was after spending 36 hours in a psychiatric unit where I was diagnosed with (initially) depression and anxiety. Then they decided to add in borderline psychosis, at that stage they had written me off and didn’t think to listen to how I was actually feeling which was scared, alone and not mentally sick.
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Autoimmune Encephalitis Lived Experience - George's Story
George was diagnosed with autoimmune encephalitis in April 2021 after 9 months of living with the condition. He writes about his illness, diagnosis, the impact of his encephalitis and his ongoing treatment.
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Autoimmune Encephalitis Lived Experience - Freya's Story
Freya talks about her lived experience of autoimmune encephalitis which she was diagnosed with when she was 25. She later went on to have further seizures. She shares her story of diagnosis, recovery and relapse here.
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ADEM Lived Experience - Erin's Story as told by mum, Michelle
Michelle shares her story her daughter's diagnosis of acute disseminated encephalomyelitis (ADEM) and cerebellitis secondary to influenza A virus. Five year old Erin and her brother both had flu like symptoms. Unfortunately, they became far worse for Erin.
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Viral Encephalitis Lived Experience - Elissa's Story
Elissa shares the importance of sleep, mental health and her family and friends in her ongoing recovery from viral encephalitis. Diagnosed in 2019, Elissa talks about the struggle she went though in hospital and the relapses she has experienced.
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Autoimmune Encephalitis Lived Experience - Elisabeth's Story
Elisabeth shares her experience of being diagnosed with autoimmune encephalitis. The confusion it caused and how and how she spent Christmas, New Year and her 20th birthday in hospital.
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Autoimmune Encephalitis Dave's Story - Part Two
Part 2, February 2018 (aged 68): An update on my progress after I fell ill with autoimmune encephalitis in January 2016. General I feel that I have come a long way since my illness in January 2016 and I am sure my family and friends would agree on this. Some days I feel 100%, […]
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Autoimmune Encephalitis Dave's Story - Part One
Part 1: January 2016 (aged 66) I have no recollection whatsoever of the initial stages of contracting encephalitis, nor the early stages of my diagnosis and treatment. Therefore, the first part of ‘my story’ has been compiled from the experiences of my family and friends, together with my medical team. The first sign that there […]
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Herpes Simplex Encephalitis Lived Experience - Corinna's Story
The HSV encephalitis had caused the amygdala to dysfunction, sending me on an unpredictable emotional rollercoaster ride. When I first arrived at the emergency department, doctors couldn’t find a clear cause to my symptoms of feeling disoriented, dizzy, nauseous and suffering a severe headache.
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ADEM Lived Experience - Charlie's Story
However, on the morning of the 6th February, he woke at 4am, told us he felt sick and rushed to the toilet and immediately vomited. He felt hot to the touch and his temperature was over 40. This is a high temperature, but we were used to Charlie having fevers as he had suffered from recurring tonsillitis for six years before they were finally removed in July 2018.
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Viral Encephalitis Lived Experience - Paula's Story
This is Paula's Viral Encephalitis Lived Experience. She discusses how encephalitis affected her childhood and how she is doing now.
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Anti-NMDAR Encephalitis Lived Experience - Ger's Story
Ger tells the story of his three experiences with Anti-NMDAR encephalitis and how it affected the course of his life.
Read StoryFull Event Archive
This section is intended for use only on the main Events page.
My Brain & Medicine - New York, United States
Please note that this event is now fully booked. If you would like to join our waiting list please email mail@encephalitis.info ———————————————————————————————————————————————– Please note this is a FREE in-person event only for patients, family members and caregivers. My Brain & Medicine. Encephalitis Survivors and Caregivers Day Venue: New York-Presbyterian/Columbia University Irving Medical Center, 50 Haven […]
My Brain My Story 2025
Please note My Brain : My Story is a hybrid event (in-person and virtual via Zoom) We would love you to join us in York, England, – or virtually – at My Brain : My Story on Saturday 4 October 2025. This event is a hybrid event for anyone who wants to listen to the […]
Cardiff Half Marathon (Superhalfs)
Cheering crowds, entertainment and a scenic road route are on offer at the Cardiff Half Marathon. What a fun and memorable way to challenge yourself and support Encephalitis International!
Great Scottish Run
The Great Scottish Run offers a half marathon and 10km option in the vibrant and friendly city of Glasgow. Urban architecture combines with green spaces and riverside views - a great way to explore this part of Scotland.
Chicago Marathon
An ever popular option, the Chicago Marathon attracts 40,000 runners each year. A flat road course explores the city - a great way to combine an epic challenge with some sight-seeing!
Great South Run
The AJ Bell Great South Run is probably the world’s favourite 10 mile running event, with inspiring history, salty seaside air and glorious views across to the Isle of Wight, as you weave your way around Portsmouth and Southsea.
Dublin Marathon
The Irish Life Dublin Marathon offers an unmissable opportunity to run through iconic landmarks like Phoenix Park, along the River Liffey, and past historic Georgian streets. With a relatively flat course and enthusiastic local support, it's a popular event with 22,000 runners.
Valencia Half Marathon (Superhalfs)
Part of the popular SuperHalfs Series, Valencia Half Marathon offers fabulous city scenery and a flat, fast course. A great option for a 13.1 mile challenge in support of Encephalitis International.
Seizures and encephalitis FREE webinar - patient event
Please note that this is an event aimed at patients. Programme 2.00pm (GMT) – Seizures and Encephalitis in Adults. Dr James Mitchell MBChB, MRCP, Association of British Neurologists (ABN), Clinical Research Fellow and neurology registrar, University of Liverpool and The Walton Centre NHS Foundation Trust, UK 2.45pm (GMT) – Seizures and Encephalitis in Children. Speaker […]
Encephalitis 2025 - Registration
3rd and 4th December 2025 Royal College of Physicians (RCP), London and virtually Registrations are now open! (in-person and virtual tickets are available) Book your tickets here Looking for a place to stay? The RCP have published a list of recommended Hotels – view the list here: Hotels | RCP Events ENCEPHALITIS 2025 is an […]
Valencia Marathon
A beautifully scenic city route awaits for the Valencia Marathon in Spain. An incredibly popular flat road course offers an opportunity for personal bests or an ideal option for first-time marathon runners.
Lisbon Half Marathon (Superhalfs)
The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.
Run Rome The Marathon (inc. Relay)
Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views.
Berlin Half Marathon (Superhalfs)
Explore the sights and avenues of Berlin with 35,000 other participants in this half marathon - part of the Superhalfs series. Runners, wheelchair users, inline skaters and hand cyclists are all welcome.
London Landmarks Half Marathon
London Landmarks half marathon features Tower Bridge, Nelson's Column and Big Ben - the only half marathon to go through both the City of London and City of Westminster and one of the largest fundraising events in Europe.
Paris Marathon
The Schneider Electric Marathon de Paris offers a unique opportunity to traverse this iconic French city and experience landmark sights like the Champs Elysées, the Bois de Vincennes, Notre Dame and the Arc de Triomphe.
Edinburgh Marathon Festival
The Edinburgh Marathon Festival offers a varied programme of events across the weekend, with kids races, 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.
Copenhagen Half Marathon (Superhalfs)
Sight-seeing and running combine - you’ll cross all of Copenhagen’s charming, hip and colourful bridge districts and pass through the historic inner city. A half marathon route with plenty of atmosphere and entertainment!
Scotland - UK Challenges
There's plenty of fun to be had in Scotland with fundraising challenges! You can brave a bungee jump, bounce along an obstacle course or tackle a walking or running challenge to raise vital funds and awareness for Encephalitis International.
South West England - UK Challenges
Explore challenge event options available in the South West of England. Will you choose to run, walk, bounce or bungee to support Encephalitis International?!
Wales - UK Challenges
If you're a supporter based in Wales, or just fancy a bit of charity challenge tourism, there are some great walk and run options to explore in support of Encephalitis International.
Yorkshire - UK Challenges
From bungee jumps to bouncing along an inflatable 5k, there's plenty of fun to be had fundraising in Yorkshire. The county also offers a great range of walking and running events.
SuperHalfs Series
The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!
North West England - UK Challenges
Bungee jump, run, walk, or take on an inflatable obstacle course to support Encephalitis International in the North West of England. What will you choose? Browse all the options here!
Midlands - UK Challenges
The Midlands region of England has lots to offer those in search of a great challenge to raise awareness and funds for Encephalitis International. Walks, runs, bungee jumps and obstacle courses await!
South England - UK Challenges
Take the leap with a bungee jump, bounce along an obstacle course, or choose from a range of distances for challenge walks, jogs or runs. Whatever you choose to support us in the South of England, there'll be plenty of fun!
South East England - UK Challenges
Ultra Challenge on the Isle of Wight, Kent Downs or Chilterns? How about a half marathon or obstacle race? There are plenty of challenge options in the South East of England to support us!
Ultra Challenge - Walk, Jog, or Run
Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.
North East England - UK Challenges
The North East offers a great range of challenges you can take on to fundraise for Encephalitis International. Will you choose running, walking or bouncing through an inflatable obstacle course to show your support?!
East of England - UK Challenges
Run, walk, or take on an obstacle course in the East of England, UK. Join our community of fundraisers and support Encephalitis International.
London - UK Challenges
Run, walk, cycle or take on a Tough Mudder - there is plenty of choice for challenge events in London to support Encephalitis International. Why not browse the options available and join our wonderful community of fundraisers?
Tough Mudder
Tough Mudder creates hardcore obstacle courses designed to test your all around strength, stamina, and mental grit. Innovative courses combine running and a number of obstacles - featuring mud (lots of mud!), ice and 10,000 volts of electricity!
Swimming Challenges
Open water challenges - including the Great North Swim - and triathlon options to support Encephalitis International. Swim to show your support!
Cycling Challenges
From 25km cycles to epic multi-day international rides, we have a range of cycling challenges to choose from. Get on your bike and support Encephalitis International!
Bungee Jump
Are you brave enough?! Experience the thrill of a lifetime with an exhilarating bungee jump. Perfect for thrill seekers or those in search of an adrenaline challenge!
Inflatable 5k - 2.5km, 5km, 10km, or 15km
A unique inflatable obstacle course you'll need to run, bounce, swing and slide along! Take part on your own or as part of a group with your family (suitable for kids 5 years and over!), friends or colleagues.
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