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Images of participants in the Prague Half Marathon.

Prague Half Marathon

The Prague Half Marathon is an unforgettable race due to its stunning scenery, with landmarks including Prague Castle, the National Theatre, Vyšehrad Castle and the Rudolfinum Concert Hall. It is one of the races in the popular SuperHalfs Series.

5 April 2025
Prague, Czech Republic
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Images of participants in the Milano Marathon.

Milano Marathon

The Wizz Air Milano Marathon offers an amazing flat route for those looking to run from the Piazza del Duomo, through the extraordinary architecture of Milan. It's the perfect setting for a personal best too - known as the fastest marathon in Italy.

6 April 2025
Milan, Italy
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Images of participants in the London Landmarks Half Marathon.

London Landmarks Half Marathon

London Landmarks half marathon features Tower Bridge, Nelson's Column and Big Ben - the only half marathon to go through both the City of London and City of Westminster and one of the largest fundraising events in Europe.

6 April 2025
London, UK
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Full Story Archive

This section is intended for use only on the main Stories page.

A letter from your brain

A Letter From Your Brain by Stephanie St. Claire may help you understand what happens with your brain after encephalitis.

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Anti-NMDAR Encephalitis Lived Experience - Hannah W's story

On September 4th, I was initially admitted to a psych ward. I was diagnosed with Bipolar Disorder Type 1 with psychotic features and mania. After no improvement was observed, I was admitted to another hospital on the 15th as it was suspected my condition was not psychiatric, but medical. After several weeks of assessments, tests, and procedures, I was diagnosed with Anti-NMDA Receptor Encephalitis a rare auto-immune disorder where antibodies attacked the receptors of my brain.

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Herpes Simplex Encephalitis Lived Experience - Aurelio's story

My father was diagnosed with HSV-1 Encephalitis in October 2020. My father is what you would call a stand-up guy, the life of the party, a heart of gold-type person. He fills every room he walks into with love, joy, and happiness so naturally this incident heavily affected all our lives: friends, family, and everyone around us.

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Herpes Simplex Encephalitis

Herpes Simplex Encephalitis Lived Experience - Hannah J's story

Hannah, a primary school teacher, fell ill with Herpes Simplex encephalitis in the Autumn of 2017. Watch almost two years on as she takes us on her journey from her time in hospital, through her rehabilitation, and the impact the illness has had on her and her family.

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Herpes Simplex Encephalitis

Herpes Simplex Encephalitis Lived Experience - Dawn's story

Dawn - who was affected by Herpes simplex virus encephalitis at the age of 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.

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Japanese Encephalitis

Japanese Encephalitis Lived Experience - Chelsea's story

As part of the My Brain and Me series Chelsea talks about when she contracted Japanese encephalitis whilst in Thailand. If you are affected by this story at all we encourage you to get in touch with our support team.

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Bev who shares her encephalitis story

Caring for my son with encephalitis - Bev's story

As part of our My Brain and Me project, Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s.

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Stolen Lives

A short video about what encephalitis is and how those affected are supported by Encephalitis International.

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Encephalitis Lived Experience - Becky's story

Becky, who had encephalitis when she was 16, in May 2012, shares her story with us. She talks openly about her after-effects, and shares her advice for adapting after encephalitis.

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Autoimmune Encephalitis

Autoimmune Encephalitis Lived Experience - Aliya's Story

I quickly was diagnosed with bipolar 2 disorder and I had a new treatment plan, everyone knew I’d be okay. That was until my roommate found me seizing in my room; I was immediately sent to the hospital with uncontrollable seizures, transferred to another hospital, put under a medically-induced coma, was on a forced medical leave from school, and was ultimately flown back to Philadelphia.

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Epstein Barr Encephalitis

Epstein Barr Encephalitis - Alex's Story told by mum, Pennie

We got Alex to the Emergency Room. As the day progressed, Alex’s voice became higher and more shrill. When he was asked questions at the hospital he would seem confused and look at us to answer for him. A cat scan of his brain was done and he was given a lumbar puncture. His dad held him up for LP and he fell asleep during the procedure. We knew something was very wrong - who could fall asleep while getting a painful lumbar puncture?

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Autoimmune Encephalitis following Measles

Autoimmune Encephalitis following Measles - Ailís' Story

I contracted encephalitis at five years of age. It started with measles, followed immediately by chickenpox and then encephalitis. I was ill for a long time, missed a lot of school and was cared for at home by my Mother (writes Ailís Ní Ríain)

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Full Event Archive

This section is intended for use only on the main Events page.

Images of participants in the Prague Half Marathon.

Prague Half Marathon

The Prague Half Marathon is an unforgettable race due to its stunning scenery, with landmarks including Prague Castle, the National Theatre, Vyšehrad Castle and the Rudolfinum Concert Hall. It is one of the races in the popular SuperHalfs Series.

5 April 2025
Prague, Czech Republic
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Images of participants in the Milano Marathon.

Milano Marathon

The Wizz Air Milano Marathon offers an amazing flat route for those looking to run from the Piazza del Duomo, through the extraordinary architecture of Milan. It's the perfect setting for a personal best too - known as the fastest marathon in Italy.

6 April 2025
Milan, Italy
View Event
Images of participants in the London Landmarks Half Marathon.

London Landmarks Half Marathon

London Landmarks half marathon features Tower Bridge, Nelson's Column and Big Ben - the only half marathon to go through both the City of London and City of Westminster and one of the largest fundraising events in Europe.

6 April 2025
London, UK
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Images of participants in the Paris Marathon.

Paris Marathon

The Schneider Electric Marathon de Paris offers a unique opportunity to traverse this iconic French city and experience landmark sights like the Champs Elysées, the Bois de Vincennes, Notre Dame and the Arc de Triomphe.

13 April 2025
Paris, France
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Images of participants in the Big Sur International Marathon.

Big Sur International Marathon

Big Sur International Marathon is a point-to-point course run on scenic CA Highway 1 from Big Sur to Carmel in California. Towering redwoods, crashing waves, coastal mountains and verdant pastures are featured on this bucket list course.

27 April 2025
California, USA
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My Brain & Medicine 2025

My Brain & Medicine 2025 – Registration is now open (virtual event) Join us online for a patient event where we will be joined by a host of professional and lived experience speakers. The presentations are aimed at patients, carers and family members with an interest with encephalitis. Starting on Monday, April 28, 2025 at 1:00PM […]

28 April 2025
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Climate change, infectious diseases and encephalitis FREE webinar - Health professional event (online)

Registration is now OPEN! If you are a health professional please join us on the 29 April 2025, at 2pm (BST) to find out more about  the impact of climate change on infectious diseases and encephalitis. If you are not able to join ‘live’, please register and a link to the recordings will be sent […]

29 April 2025
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Images of Edinburgh Marathon Festival participants and logo.

Edinburgh Marathon Festival

The Edinburgh Marathon Festival offers a varied programme of events - 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.

24 - 25 May 2025
Edinburgh, UK
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Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. 2025 places SOLD OUT - register your interest for 2026.

7 September 2025
Newcastle upon Tyne, UK
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Image of Thames Path Ultra Challenge participants.

Thames Path Ultra Challenge

Whether you choose to walk, jog or run - England’s most famous river provides a fantastic backdrop for an unforgettable Thames Path Ultra Challenge. Distance options include 100km, 75km, 50km, 25km and 10km.

13 September 2025
Putney Bridge, UK
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My Brain My Story 2025

Please note My Brain : My Story is a hybrid event (in-person and virtual via Zoom) We would love you to join us in York, England, – or virtually – at My Brain : My Story on Saturday 4 October 2025. This event is a hybrid event for anyone who wants to listen to the […]

4 October 2025
The Grand, Station Rise, York, YO1 6JD
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AJ Bell Great Scottish Run logo.

Great Scottish Run

The Great Scottish Run offers a half marathon and 10km option in the vibrant and friendly city of Glasgow. Urban architecture combines with green spaces and riverside views - a great way to explore this part of Scotland.

5 October 2025
Glasgow, UK
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Images of participants and scenery in the Cardiff Half Marathon.

Cardiff Half Marathon

Cheering crowds, entertainment and a scenic road route are on offer at the Cardiff Half Marathon. What a fun and memorable way to challenge yourself and support Encephalitis International!

5 October 2025
Cardiff, UK
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Images of participants and scenery in the Chicago Marathon.

Chicago Marathon

An ever popular option, the Chicago Marathon attracts 40,000 runners each year. A flat road course explores the city - a great way to combine an epic challenge with some sight-seeing!

12 October 2025
Chicago, USA
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Great South Run logo

Great South Run

The AJ Bell Great South Run is probably the world’s favourite 10 mile running event, with inspiring history, salty seaside air and glorious views across to the Isle of Wight, as you weave your way around Portsmouth and Southsea.

19 October 2025
Portsmouth, UK
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Images of participants in the Dublin Marathon.

Dublin Marathon

The Irish Life Dublin Marathon offers an unmissable opportunity to run through iconic landmarks like Phoenix Park, along the River Liffey, and past historic Georgian streets. With a relatively flat course and enthusiastic local support, it's a popular event with 22,000 runners.

26 October 2025
Dublin, Ireland
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Images of participants and scenery in Valencia Half Marathon.

Valencia Half Marathon

Part of the popular SuperHalfs Series, Valencia Half Marathon offers fabulous city scenery and a flat, fast course. A great option for a 13.1 mile challenge in support of Encephalitis International.

26 October 2025
Valencia, Spain
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Encephalitis 2025 - Registration

3rd and 4th December 2025 Royal College of Physicians, London and virtually Registrations are now open! (in-person and virtual tickets are available) Book your tickets here ENCEPHALITIS 2025 is an excellent forum for physicians, scientists, researchers, and healthcare professionals to exchange ideas, knowledge and clinical experience relating to encephalitis. You can join us in-person at […]

3 - 4 December 2025
Hybrid
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Images of participants and scenery in Valencia Marathon.

Valencia Marathon

A beautifully scenic city route awaits for the Valencia Marathon in Spain. An incredibly popular flat road course offers an opportunity for personal bests or an ideal option for first-time marathon runners.

7 December 2025
Valencia, Spain
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Images of participants in the Lisbon Half Marathon.

Lisbon Half Marathon

The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.

8 March 2026
Lisbon, Portugal
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Images of participants in Run Rome The Marathon.

Run Rome The Marathon

Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views. 

15 March 2026
Rome, Italy
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Image Tough Mudder participants.

Tough Mudder

Tough Mudder creates hardcore obstacle courses designed to test your all around strength, stamina, and mental grit. Innovative courses combine running and a number of obstacles - featuring mud (lots of mud!), ice and 10,000 volts of electricity!

Various Dates / Locations, United Kingdom
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Ultra Challenge events - logo and participants.

Ultra Challenge - Walk, Jog, or Run

Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.

Various Dates / Locations, United Kingdom
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Inflatable 5k events - logo and participants.

Inflatable 5k - 2.5km, 5km, 10km, or 15km

A unique inflatable obstacle course you'll need to run, bounce, swing and slide along! Take part on your own or as part of a group with your family (suitable for kids 5 years and over!), friends or colleagues.

Various Dates / Locations, United Kingdom
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UK Bungee Club logo and bungee jump participants.

Bungee Jump

Are you brave enough?! Experience the thrill of a lifetime with an exhilarating bungee jump. Perfect for thrill seekers or those in search of an adrenaline challenge!

Various Dates / Locations, United Kingdom
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Cycling challenge participants.

Cycling Challenges

From 25km cycles to epic multi-day international rides, we have a range of cycling challenges to choose from. Get on your bike and support Encephalitis International!

Various Dates / Locations, United Kingdom
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Swimming challenge participants.

Swimming Challenges

Open water challenges - including the Great North Swim - and triathlon options to support Encephalitis International. Swim to show your support!

Various Dates / Locations, United Kingdom
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London challenge participants and scenery.

London - UK Challenges

Run, walk, cycle or take on a Tough Mudder - there is plenty of choice for challenge events in London to support Encephalitis International. Why not browse the options available and join our wonderful community of fundraisers?

Various Dates - London, UK
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East of England - UK Challenges

Run, walk, or take on an obstacle course in the East of England, UK. Join our community of fundraisers and support Encephalitis International.

Various Dates - East of England, UK
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North East England - UK Challenges

The North East offers a great range of challenges you can take on to fundraise for Encephalitis International. Will you choose running, walking or bouncing through an inflatable obstacle course to show your support?!

Various Dates - North East England, UK
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Images of participants and the logos for the SuperHalfs Series.

SuperHalfs Series

The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!

Various Dates / Locations, Europe
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Story Teasers

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Anti-NMDAR Encephalitis Lived Experience - Tom's Story

May of 2022 I once again got COVID-19 but this time was mild, or so I thought. Slowly my fatigue got much worse and my speech started to be hard. Processing was becoming harder and I was having headaches and crazy nightmares that I would wake up sweating, confused and scared. I was attending speech therapy and was a regular at my primary and neurologist. Everyone close to me could see me getting worse.

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Autoimmune Encephalitis Lived Experience - Bianca's Story

Out of fear, I wrote a letter to my daughter, who was almost 6 years old at the time. I wrote down everything she needs to know in order to be able to grow up self-loving and self-confident, in case I can't always be with her. My letter became a children's book. I have completely turned my life upside down. My everyday life is no longer the same (I often rest, divide the week differently and strengthen children in daycare centers and elementary schools.

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Anti-NMDAR Encephalitis Lived Experience - Tahla's Story

Tahla had autoimmune, Anti-NMDAR antibody encephalitis when she was 15. She spent 6 months in hospital, losing her ability to walk, talk, eat, drink, as well as experiencing psychosis and aggression.

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Dr Ava Easton

Chief Executive of Encephalitis International

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Phillippa Chapman

Deputy Chief Executive

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Alina Ellerington

Alina Ellerington

Director of Services

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Calum Goodwin

Calum Goodwin

Head of Partnerships & Giving Development

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Caroline Clarke

Finance Manager

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Emma Collins

Patient and Public Involvement Manager

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Jon Ainley

Support Line Manager

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Julie Welburn

Admin and Events Manager

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Jo Brooke

Trusts and Foundation Manager

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Poonam Mistry

Data Insights and CRM Manager

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Prav Prathapan

Prav Prathapan

Senior Medical Writer

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Vicky Burgess

Admin Assistant

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Alex Amareia

Digital Outreach Manager

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Suhayl Kassam

International Development Manager

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Page Created: 22 November 2023
Last Modified: 4 February 2025
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