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Event Teasers

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LGI1 Antibody Encephalitis Webinar - Patient Event

A webinar aimed at patients who want to learn more about LGI1 encephalitis

12 March 2024
Webinar
View Event

My Brain & Medicine 2024 - online event

This online event is aimed at patients, family members, carers and anyone with a specific interest in encephalitis and its after effects.

22 April 2024
Online
View Event

NeuroID course

Ever struggled with a patient with a brain infection? Then the NeuroID course is for you.

19 - 20 June 2024
Liverpool Medical Institution, Liverpool, UK
View Event

Full Story Archive

This section is intended for use only on the main Stories page.

Gill's story

In June 2023, our mum began complaining of dizziness/light-headedness that would wash over her throughout the day. During these spells, Mum was unable to speak, and she described it as a scared feeling in the pit of her stomach.

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Lucy's story

Lucy, from London, began experiencing flu-like symptoms in the spring of 2006. Within weeks, she was hospitalised and had a number of seizures on the day she was admitted.

Read Story

Kevin's story

Kevin, from Canada, was working as a Proctor when he became ill with meningoencephalitis in 2019.

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Steve's Story - Part Two

Steve’s Story – From the outside Summer 2018. Read Part One The start Looking back there were signs from as early as July 2018 (writes Lisa). Steve had completed a half marathon on a hot day and, in the weeks afterwards, he started to describe his calf muscles as ‘bags of snakes’ – they were […]

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Steve's Story - Part One

My name is Steve and I work as a trainer within a social services setting. I am a runner (ultra/full/half-marathons), I surf, outdoor swim, mountain bike, play tennis, badminton and occasionally even table tennis. I love to move! That is a truth. Basically any sport outdoors I will give a go. I tell all this […]

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Tony's Story

Sheesh…now where exactly does one start? Since September 2012 I’ve told this story to so many people it’s unreal, but I do think that it’s always been for a slightly different audience to what this telling of the tale probably is. Firstly some of the people reading this will actually know what encephalitis is whereas […]

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Sue's Story

Sue talks about her experiences with meningoencephalitis, its diagnosis, her treatment and recovery. If you are affected by this story at all we encourage you to get in touch with our support team

Read Story

Veronique's Story

  This is a documentary about Veronique by Attitude Read Veronique’s Weird Wonderful Brain blog It all started pretty suddenly for me. I was vacuuming when I felt like something had hit me behind the head leaving me headachy and foggy. Never having been troubled by headaches before, I thought to myself “I must be tired… early […]

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Yvonne's Story

One Saturday night at the end of January 2013, I lost my sense of taste, and was unable to eat my evening meal. It was no big deal; after all, this had to be the symptoms of a stomach bug, didn’t it? By the next day, I was vomiting profusely and I was losing sensation […]

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Shawn's Story

I woke up with pain in my eye. I usually do not have pain in my eye, unless I stick something in there. I hadn’t, so I thought I’d better pay attention to what was going on. The pain was severe enough that I felt it warranted a visit to the hospital in the hopes […]

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Ross' Story

Ross, from Australia, had encephalitis two years ago. The 63-year-old writes about his recovery and how his love of the ocean and surfing has helped his recovery.   “During the first six months of recovery my physical well-being was shot, and my mental state was crazy. I slept a lot and I had no memory […]

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Richard's Story

Richard, who was affected by encephalitis in his early 20s, shares his story with us. He shares his experiences of the after-effects of his encephalitis, his interest in mindfulness, and living in the present. If you are affected by this story at all we encourage you to get in touch with our support team support@encephalitis.info

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Richard's Story

Richard is a conductor and artistic director at Burlington Choral Society in Vermont, USA. I cried several times yesterday as I watched the 2015 movie about the lives of Danish painters Lili Elbe and Gerda Wegener called “The Danish Girl.” I recommend it highly, though I have no way of knowing whether you will respond the way […]

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Reggie's Story

Reggie was four-years-old when he became poorly with COVID-19 encephalitis. His parents tell his story.   Sunday, the 7th of February, 2021, was a day we as a family will never forget as this was the start of something that would change our thought process through life forever. Our son Reggie, four, started out with […]

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Rachel's Story

It was Saturday night, and I’d been out to see a friend’s band play, usually one of my favourite things to do. Anyone who knows me knows I love music and I love to dance. I remember towards the end of the night every chord jangled in my head. This wasn’t normal! I had a […]

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Polly's Story

My name is Polly, I’m 23 years old, and on 25th April 2018, things took a bit of a turn for the worse! At the start of January 2018, I packed my bags and set off to New Zealand on a working holiday visa.  I was having an amazing start to my year away, travelling […]

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Pete's Story

Viral encephalitis: the first seven months ‘Errr, I really don’t feel well. Errr, early start but must make it up to the Snow Roads Scenic Route – last day of construction, can’t miss that. And then back to the office for financial year end!’ Three days later, thanks to the smartness, persistence and care of […]

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Paul's Story

For years I was in the ‘wilderness’ of recovery after I suffered encephalitis in 2002/2003. My family and I struggled to come to terms with the person I had become. In one of my many visits to the neurologists, I was told I would never work again, something that for a time destroyed what little […]

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Pauline's Story

Pauline was affected by autoimmune LGI1 encephalitis in 2015 and then again in 2017. Here she shares her story and experiences with us. This film is part of our My Brain and Me Project. If you are affected by this story at all we encourage you to get in touch with our support team  

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Nicholas' Story - 5 years on

Nicholas died in July 2018 after a tortuous battle with Encephalitis over twenty years, which affected his mind and body; he was only 36 years old. As parents we have had to deal with the fact that our only son died before us and the impact and grief that followed not only for us but our […]

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Natasha's Story

I was a happy and healthy toddler – walking, talking and generally trashing the tidy house by the time I was two years-old. But a few months after I turned two, in 1996, I was struck down with encephalitis. After a few weeks in hospital, I made a good and full recovery and was able […]

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Michele's Story - Part Three

On the 5th September 2014, after a lot of hassling on our part we finally got Ross transferred back to Norwich where he was admitted to the Hellesdon Secure Unit. Ross had his own room. It was a very secure unit with a strict visiting regime but, as a family, we were not going to accept […]

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Michele's Story - Part Two

Over the next day or two we did little walks and went for lunch, in hindsight I now recall Ross again coughing and also sweating when eating. Ross was not sleeping at all and was becoming very distressed. We arranged a back and shoulder massage for him and he tried breathing exercises as well. Nothing […]

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Michele's Story - Part One

If there is one thing I’ve learnt as I have got older is the fact that we cannot control everything that life throws at us. I realise that we can only keep hope and faith but along with that we can and must fight for our loved ones when they need us most and always, […]

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Full Event Archive

This section is intended for use only on the main Events page.

My Brain & Medicine 2024 - online event

This online event is aimed at patients, family members, carers and anyone with a specific interest in encephalitis and its after effects.

22 April 2024
Online
View Event

Encephalitis Conference 2024

Encephalitis 2024 is our annual conference dedicated exclusively to encephalitis and covers epidemiology, pathogenesis, diagnosis, treatment and rehabilitation in both children and adults, covering both infectious and autoimmune aetiologies.

2 - 3 December 2024
Royal College of Physicians,
 London & Virtual
View Event

NeuroID course

Ever struggled with a patient with a brain infection? Then the NeuroID course is for you.

19 - 20 June 2024
Liverpool Medical Institution, Liverpool, UK
View Event

LGI1 Antibody Encephalitis Webinar - Patient Event

A webinar aimed at patients who want to learn more about LGI1 encephalitis

12 March 2024
Webinar
View Event

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Story Teasers

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Gill's story

In June 2023, our mum began complaining of dizziness/light-headedness that would wash over her throughout the day. During these spells, Mum was unable to speak, and she described it as a scared feeling in the pit of her stomach.

Read Story

Lucy's story

Lucy, from London, began experiencing flu-like symptoms in the spring of 2006. Within weeks, she was hospitalised and had a number of seizures on the day she was admitted.

Read Story

Kevin's story

Kevin, from Canada, was working as a Proctor when he became ill with meningoencephalitis in 2019.

Read Story

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Dr Ava Easton

Chief Executive of Encephalitis International

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Phillippa Chapman

Deputy Chief Executive

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Alina Ellerington

Alina Ellerington

Director of Services

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Claire Wright

Head of Communications and Marketing

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Caroline Clarke

Finance Manager

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Calum Goodwin

Calum Goodwin

Head of Partnerships & Giving Development

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Emma Collins

Patient and Public Involvement Manager

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Jon Ainley

Support Line Manager

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Jo Brooke

Trusts and Foundation Manager

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Kelly Olver

Fundraising Manager

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Julie Welburn

Admin and Events Manager

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Poonam Mistry

Data Insights and CRM Manager

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Andrew Pitt

Andrew Pitt

Communications Manager

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Prav Prathapan

Senior Medical Writer

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Vicky Burgess

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