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Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. 2025 places SOLD OUT - register your interest for 2026.

7 September 2025
Newcastle upon Tyne, UK
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Image of Thames Path Ultra Challenge participants.

Thames Path Ultra Challenge

Whether you choose to walk, jog or run - England’s most famous river provides a fantastic backdrop for an unforgettable Thames Path Ultra Challenge. Distance options include 100km, 75km, 50km, 25km and 10km.

13 September 2025
Putney Bridge, UK
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Family Resilience Day

Please note that this event is now postponed until next year (2026). Exact dates and location to be announced in Autumn. If you are interested, please put your name on the waiting list by emailing Julie at julie@encephalitis.info  Having details about kids’ ages and requirements would be very helpful for us to plan this event. […]

13 September 2025
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Full Story Archive

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Herpes Simplex Encephalitis

Herpes Simplex Encephalitis Lived Experience - Hannah J's story

Hannah, a primary school teacher, fell ill with Herpes Simplex encephalitis in the Autumn of 2017. Watch almost two years on as she takes us on her journey from her time in hospital, through her rehabilitation, and the impact the illness has had on her and her family.

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Herpes Simplex Encephalitis

Herpes Simplex Encephalitis Lived Experience - Dawn's story

Dawn - who was affected by Herpes simplex virus encephalitis at the age of 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.

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Japanese Encephalitis

Japanese Encephalitis Lived Experience - Chelsea's story

As part of the My Brain and Me series Chelsea talks about when she contracted Japanese encephalitis whilst in Thailand. If you are affected by this story at all we encourage you to get in touch with our support team.

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Bev who shares her encephalitis story

Caring for my son with encephalitis - Bev's story

As part of our My Brain and Me project, Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s.

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Stolen Lives

A short video about what encephalitis is and how those affected are supported by Encephalitis International.

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Encephalitis Lived Experience - Becky's story

Becky, who had encephalitis when she was 16, in May 2012, shares her story with us. She talks openly about her after-effects, and shares her advice for adapting after encephalitis.

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Autoimmune Encephalitis

Autoimmune Encephalitis Lived Experience - Aliya's Story

I quickly was diagnosed with bipolar 2 disorder and I had a new treatment plan, everyone knew I’d be okay. That was until my roommate found me seizing in my room; I was immediately sent to the hospital with uncontrollable seizures, transferred to another hospital, put under a medically-induced coma, was on a forced medical leave from school, and was ultimately flown back to Philadelphia.

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Epstein Barr Encephalitis

Epstein Barr Encephalitis - Alex's Story told by mum, Pennie

We got Alex to the Emergency Room. As the day progressed, Alex’s voice became higher and more shrill. When he was asked questions at the hospital he would seem confused and look at us to answer for him. A cat scan of his brain was done and he was given a lumbar puncture. His dad held him up for LP and he fell asleep during the procedure. We knew something was very wrong - who could fall asleep while getting a painful lumbar puncture?

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Autoimmune Encephalitis following Measles

Autoimmune Encephalitis following Measles - Ailís' Story

I contracted encephalitis at five years of age. It started with measles, followed immediately by chickenpox and then encephalitis. I was ill for a long time, missed a lot of school and was cared for at home by my Mother (writes Ailís Ní Ríain)

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Full Event Archive

This section is intended for use only on the main Events page.

Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. 2025 places SOLD OUT - register your interest for 2026.

7 September 2025
Newcastle upon Tyne, UK
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Image of Thames Path Ultra Challenge participants.

Thames Path Ultra Challenge

Whether you choose to walk, jog or run - England’s most famous river provides a fantastic backdrop for an unforgettable Thames Path Ultra Challenge. Distance options include 100km, 75km, 50km, 25km and 10km.

13 September 2025
Putney Bridge, UK
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Family Resilience Day

Please note that this event is now postponed until next year (2026). Exact dates and location to be announced in Autumn. If you are interested, please put your name on the waiting list by emailing Julie at julie@encephalitis.info  Having details about kids’ ages and requirements would be very helpful for us to plan this event. […]

13 September 2025
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People in an auditorium

My Brain & Medicine - New York, United States

Please note this is a FREE in-person event only for patients, family members and caregivers. My Brain & Medicine. Encephalitis Survivors and Caregivers Day Venue: New York-Presbyterian/Columbia University Irving Medical Center, 50 Haven Avenue, Suite 109 , New York, NY 10032, USA Room:  50 Haven Ballroom (in the Lower Level) Friday 26 September 2025 – […]

26 September 2025
Columbia University Irving Medical Center, 50 Haven_Suite 109 , New York, NY 10032, United States
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My Brain My Story 2025

Please note My Brain : My Story is a hybrid event (in-person and virtual via Zoom) We would love you to join us in York, England, – or virtually – at My Brain : My Story on Saturday 4 October 2025. This event is a hybrid event for anyone who wants to listen to the […]

4 October 2025
The Grand, Station Rise, York, YO1 6JD
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AJ Bell Great Scottish Run logo.

Great Scottish Run

The Great Scottish Run offers a half marathon and 10km option in the vibrant and friendly city of Glasgow. Urban architecture combines with green spaces and riverside views - a great way to explore this part of Scotland.

5 October 2025
Glasgow, UK
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Images of participants and scenery in the Cardiff Half Marathon.

Cardiff Half Marathon (Superhalfs)

Cheering crowds, entertainment and a scenic road route are on offer at the Cardiff Half Marathon. What a fun and memorable way to challenge yourself and support Encephalitis International!

5 October 2025
Cardiff, UK
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Images of participants and scenery in the Chicago Marathon.

Chicago Marathon

An ever popular option, the Chicago Marathon attracts 40,000 runners each year. A flat road course explores the city - a great way to combine an epic challenge with some sight-seeing!

12 October 2025
Chicago, USA
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Great South Run logo

Great South Run

The AJ Bell Great South Run is probably the world’s favourite 10 mile running event, with inspiring history, salty seaside air and glorious views across to the Isle of Wight, as you weave your way around Portsmouth and Southsea.

19 October 2025
Portsmouth, UK
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Images of participants in the Dublin Marathon.

Dublin Marathon

The Irish Life Dublin Marathon offers an unmissable opportunity to run through iconic landmarks like Phoenix Park, along the River Liffey, and past historic Georgian streets. With a relatively flat course and enthusiastic local support, it's a popular event with 22,000 runners.

26 October 2025
Dublin, Ireland
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Images of participants and scenery in Valencia Half Marathon.

Valencia Half Marathon (Superhalfs)

Part of the popular SuperHalfs Series, Valencia Half Marathon offers fabulous city scenery and a flat, fast course. A great option for a 13.1 mile challenge in support of Encephalitis International.

26 October 2025
Valencia, Spain
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Encephalitis 2025 - Registration

3rd and 4th December 2025 Royal College of Physicians, London and virtually Registrations are now open! (in-person and virtual tickets are available) Book your tickets here ENCEPHALITIS 2025 is an excellent forum for physicians, scientists, researchers, and healthcare professionals to exchange ideas, knowledge and clinical experience relating to encephalitis. You can join us in-person at […]

3 - 4 December 2025
Hybrid
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Images of participants and scenery in Valencia Marathon.

Valencia Marathon

A beautifully scenic city route awaits for the Valencia Marathon in Spain. An incredibly popular flat road course offers an opportunity for personal bests or an ideal option for first-time marathon runners.

7 December 2025
Valencia, Spain
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Images of participants in the Lisbon Half Marathon.

Lisbon Half Marathon (Superhalfs)

The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.

8 March 2026
Lisbon, Portugal
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Images of participants in Run Rome The Marathon.

Run Rome The Marathon (inc. Relay)

Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views. 

15 March 2026
Rome, Italy
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Images of participants in the Berlin Half Marathon.

Berlin Half Marathon (Superhalfs)

Explore the sights and avenues of Berlin with 35,000 other participants in this half marathon - part of the Superhalfs series. Runners, wheelchair users, inline skaters and hand cyclists are all welcome.

29 March 2026
Berlin, Germany
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Images of participants in the London Landmarks Half Marathon.

London Landmarks Half Marathon

London Landmarks half marathon features Tower Bridge, Nelson's Column and Big Ben - the only half marathon to go through both the City of London and City of Westminster and one of the largest fundraising events in Europe.

12 April 2026
London, UK
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Images of participants in the Paris Marathon.

Paris Marathon

The Schneider Electric Marathon de Paris offers a unique opportunity to traverse this iconic French city and experience landmark sights like the Champs Elysées, the Bois de Vincennes, Notre Dame and the Arc de Triomphe.

12 April 2026
Paris, France
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Images of Edinburgh Marathon Festival participants and logo.

Edinburgh Marathon Festival

The Edinburgh Marathon Festival offers a varied programme of events across the weekend, with kids races, 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.

23 - 24 May 2026
Edinburgh, UK
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Images of participants in the Copenhagen Half Marathon.

Copenhagen Half Marathon (Superhalfs)

Sight-seeing and running combine - you’ll cross all of Copenhagen’s charming, hip and colourful bridge districts and pass through the historic inner city. A half marathon route with plenty of atmosphere and entertainment!

20 September 2026
Copenhagen, Denmark
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Logos and photos of participants in challenge events in the South of England.

South England - UK Challenges

Take the leap with a bungee jump, bounce along an obstacle course, or choose from a range of distances for challenge walks, jogs or runs. Whatever you choose to support us in the South of England, there'll be plenty of fun!

Various Dates - South England, UK
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Logos and photos of participants in challenge events in Yorkshire, England.

Yorkshire - UK Challenges

From bungee jumps to bouncing along an inflatable 5k, there's plenty of fun to be had fundraising in Yorkshire. The county also offers a great range of walking and running events.

Various Dates - Yorkshire, UK
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Logos and photos of participants in challenge events in Wales, UK.

Wales - UK Challenges

If you're a supporter based in Wales, or just fancy a bit of charity challenge tourism, there are some great walk and run options to explore in support of Encephalitis International.

Various Dates - Wales, UK
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Logos and photos of participants in challenge events in South West England, UK.

South West England - UK Challenges

Explore challenge event options available in the South West of England. Will you choose to run, walk, bounce or bungee to support Encephalitis International?!

Various Dates - Wales, UK
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Logos and photos of participants in challenge events in Scotland.

Scotland - UK Challenges

There's plenty of fun to be had in Scotland with fundraising challenges! You can brave a bungee jump, bounce along an obstacle course or tackle a walking or running challenge to raise vital funds and awareness for Encephalitis International.

Various Dates - Scotland, UK
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Logos and photos of participants in challenge events in the South-East of England.

South East England - UK Challenges

Ultra Challenge on the Isle of Wight, Kent Downs or Chilterns? How about a half marathon or obstacle race? There are plenty of challenge options in the South East of England to support us!

Various Dates - South East England, UK
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Logos and photos of participants in challenge events in North West England, UK.

North West England - UK Challenges

Bungee jump, run, walk, or take on an inflatable obstacle course to support Encephalitis International in the North West of England. What will you choose? Browse all the options here!

Various Dates - North West England, UK
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Logos and photos of participants in challenge events in England's Midlands.

Midlands - UK Challenges

The Midlands region of England has lots to offer those in search of a great challenge to raise awareness and funds for Encephalitis International. Walks, runs, bungee jumps and obstacle courses await!

Various Dates - Midlands England, UK
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Images of participants and the logos for the SuperHalfs Series.

SuperHalfs Series

The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!

Various Dates / Locations, Europe
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Logos and photos of participants in challenge events in the North East of England.

North East England - UK Challenges

The North East offers a great range of challenges you can take on to fundraise for Encephalitis International. Will you choose running, walking or bouncing through an inflatable obstacle course to show your support?!

Various Dates - North East England, UK
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Logos and photos of participants in challenge events in East England.

East of England - UK Challenges

Run, walk, or take on an obstacle course in the East of England, UK. Join our community of fundraisers and support Encephalitis International.

Various Dates - East of England, UK
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London challenge participants and scenery.

London - UK Challenges

Run, walk, cycle or take on a Tough Mudder - there is plenty of choice for challenge events in London to support Encephalitis International. Why not browse the options available and join our wonderful community of fundraisers?

Various Dates - London, UK
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Swimming challenge participants.

Swimming Challenges

Open water challenges - including the Great North Swim - and triathlon options to support Encephalitis International. Swim to show your support!

Various Dates / Locations, United Kingdom
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Cycling challenge participants.

Cycling Challenges

From 25km cycles to epic multi-day international rides, we have a range of cycling challenges to choose from. Get on your bike and support Encephalitis International!

Various Dates / Locations, United Kingdom
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UK Bungee Club logo and bungee jump participants.

Bungee Jump

Are you brave enough?! Experience the thrill of a lifetime with an exhilarating bungee jump. Perfect for thrill seekers or those in search of an adrenaline challenge!

Various Dates / Locations, United Kingdom
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Inflatable 5k events - logo and participants.

Inflatable 5k - 2.5km, 5km, 10km, or 15km

A unique inflatable obstacle course you'll need to run, bounce, swing and slide along! Take part on your own or as part of a group with your family (suitable for kids 5 years and over!), friends or colleagues.

Various Dates / Locations, United Kingdom
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Ultra Challenge events - logo and participants.

Ultra Challenge - Walk, Jog, or Run

Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.

Various Dates / Locations, United Kingdom
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Image Tough Mudder participants.

Tough Mudder

Tough Mudder creates hardcore obstacle courses designed to test your all around strength, stamina, and mental grit. Innovative courses combine running and a number of obstacles - featuring mud (lots of mud!), ice and 10,000 volts of electricity!

Various Dates / Locations, United Kingdom
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Story Teasers

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Acute Disseminated Encephalomyelitis (ADEM) Lived Experience - Regináe's Story

My name is Regináe and I was 4 when I was diagnosed with Acute Disseminated Encephalomyelitis (ADEM). My dad noticed that I was acting strange and acting like I was possessed, then all of a sudden I started shaking constantly and couldn’t stop. My parents then admitted me to hospital and they didn't know what was wrong with me.

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Acute Necrotising Rhombencephalitis Lived Experience - Eldon's Story

In April 2023, life as I knew it changed in an instant. It began with an ache in my lower back—something I brushed off as a minor strain. I even visited an osteopath, convinced I had just overdone it somehow. But the discomfort didn’t ease. Within days, I tested positive for COVID-19, and soon after, the real nightmare began.

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Anti-NMDAR Encephalitis Lived Experience - Alice's Story

I was a healthy 27 year old woman who loved paddled boarding and aerial circus prior to being diagnosed with Anti-NMDAR Autoimmune Encephalitis. I was on a weekend away with my mother and partner in England and complained of sore ears. Later that night I took my first seizure and an ambulance was called! My symptoms began suddenly, manifesting with seizures, manic psychotic episodes, hallucinations, agitation and oral facial dyskinesia.

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Dr Ava Easton

Chief Executive of Encephalitis International

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Phillippa Chapman

Deputy Chief Executive

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Alina Ellerington

Alina Ellerington

Director of Services

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Calum Goodwin

Director of Partnerships and Fundraising

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Caroline Clark

Finance Manager

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Emma Collins

Patient and Public Involvement Manager

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Jon Ainley

Support Line Manager

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Julie Welburn

Admin and Events Manager

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Jo Brooke

Trusts and Foundation Manager

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Poonam Mistry

Data Insights and CRM Manager

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Prav Prathapan

Prav Prathapan

Senior Medical Writer

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Vicky Burgess

Fundraising and Finance Admin Coordinator

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Alex Amareia

Digital Outreach Manager

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Suhayl Kassam

International Development Manager

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