Here is a collection of films made by Encephalitis International featuring young people sharing their experiences of encephalitis.
Jasmine has been living with parents affected by encephalitis since she was little.
Becky, Claudia, India, Paul, Erin, Tahla and Rhys have all been affected by encephalitis in their young lives.
Thank you to each and every one of our contributors for sharing your stories with the community.
Thank you to the Masonic Charitable Foundation, UCB Community Health Fund, Persimmon Homes Yorkshire, David Jennings UAP for funding that helped creating some of these resources.
Rhys' Story
Rhys, who had encephalitis when he was 15, in 2015, shares his story with us. He talks openly about dealing with the illness, hospital stay, friendships and returning to school. Rhys is part of the Society’s Team Encephalitis Volunteers.
Becky's Story
Becky, who had encephalitis when she was 16, in May 2012, shares her story with us. She talks openly about her after-effects, and shares her advice for adapting after encephalitis.
Claudia's Story
Claudia was an active 20 year old when she was affected by post-infectious autoimmune encephalitis. She talks openly about her recovery and how encephalitis has affected her life:
India's Story
India, who had NMDAR-antibody encephalitis when she was about to start her GCSE’s, shares her story with us. She gives her advice on recovery, seizures, returning to school, hobbies and friendships. India’s brother, Shaan, also shares his advice for siblings and family members of young people affected by encephalitis.
Jasmine
Jasmine, aged 13 (whose mum was affected by infectious encephalitis before she was born) tells us about how encephalitis has impacted her life. She talks about being a young carer, family life and shares her advice for other families and children living with the effects of encephalitis:
Paul's Story
Paul was 16 when he was affected by encephalitis. He shares his journey to diagnosis, return to education, and reflections on his recovery:
If you are a young person interested in sharing your experiences with encephalitis with the community, please get in touch with us via email.
Erin's story
Erin and her mum are sharing Erin’ s story of influenza (flu) associated encephalitis . Now 14, Erin was affected by encephalitis when she was 5.
Tahla's story
Tahla had autoimmune encephalitis when she was 15. In this film, she shares her experiences of encephalitis, recovery, and friendships, as well as her tips on how she has supported and improved her mental health since her hospitalisation with encephalitis.
Lalraj's story
Lalraj had encephalitis as a child, but didn’t find about it’s consequences or get support for its outcomes until adulthood, and experienced challenges throughout his early life. He shares his experiences in learning more about how encephalitis impacted him, receiving support, and his advice for others in similar situations.