Encephalitis International

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Three people every minute are diagnosed with encephalitis.

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Our mission is to rebuild futures around the world by saving lives, accelerating awareness and driving research.

What is encephalitis?

Encephalitis is an inflammation of the brain. It is caused either by an infection invading the brain (infectious encephalitis) or through the immune system attacking the brain in error (post-infectious or autoimmune encephalitis).

Your Stories

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Viral Encephalitis Lived Experience - Craig's Story

Craig shares his eight-month journey through illness and recovery of viral encephalitis. From the sudden onset of symptoms to life-threatening seizures, temporary blindness, and the emotions of recovery.

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CASPR2 Autoimmune Encephalitis Lived Experience - Subha’s Story

CASPR2 autoimmune encephalitis. What began with subtle symptoms like blurry vision and confusion quickly escalated into a terrifying medical crisis, leading to memory loss, personality changes, hallucinations, and neurological disorientation.

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Anti-NMDAR Encephalitis Lived Experience- Jenny's Story

Jenny shares her journey after being diagnosed with Anti-NMDAR Encephalitis What began as unexplained seizures and confusion was initially dismissed as anxiety, leading to a delayed diagnosis that turned her life upside down. Now involved in volunteer work and brain injury support groups, she uses her experience to help others with similar conditions.

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Upcoming Events

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Family Resilience Day

Please note that this event is now postponed until next year (2026). Exact dates and location to be announced in Autumn. If you are interested, please put your name on the waiting list by emailing Julie at julie@encephalitis.info  Having details about kids’ ages and requirements would be very helpful for us to plan this event. […]

13 September 2025
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My Brain & Medicine - New York, United States

Please note this is a FREE in-person event only for patients, family members and caregivers. My Brain & Medicine. Encephalitis Survivors and Caregivers Day Venue: New York-Presbyterian/Columbia University Irving Medical Center, 50 Haven Avenue, Suite 109 , New York, NY 10032, USA Room:  50 Haven Ballroom (in the Lower Level) Friday 26 September 2025 – […]

26 September 2025
Columbia University Irving Medical Center, 50 Haven_Suite 109 , New York, NY 10032, United States
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My Brain My Story 2025

Please note My Brain : My Story is a hybrid event (in-person and virtual via Zoom) We would love you to join us in York, England, – or virtually – at My Brain : My Story on Saturday 4 October 2025. This event is a hybrid event for anyone who wants to listen to the […]

4 October 2025
The Grand, Station Rise, York, YO1 6JD
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