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Full Story Archive
This section is intended for use only on the main Stories page.
Anti-NMDAR Encephalitis Lived Experience - Michele's Story - Part Three
This is Part 3 of Michele sharing her son Ross’ lived experience of Anti-NMDAR Encephalitis. This includes the struggles with the care system, finally getting a diagnosis, treatment and life since treatment.
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Anti-NMDAR Encephalitis Lived Experience - Michele's Story - Part Two
This is Part 2 of Michele sharing her son Ross’ lived experience of Anti-NMDAR Encephalitis. This includes the struggles to get a diagnosis.
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Anti-NMDAR Encephalitis Lived Experience - Michele's Story - Part One
Michele shares her son Ross' lived experience of Anti-NMDAR Encephalitis. This includes the initial symptoms and the effect on Ross' family.
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Herpes Simplex Virus Lived Experience - Martin's Story
This is Martin's Herpes Simplex Virus lived experience. Martin discusses symptoms, diagnosis and how his life has changed since having encephalitis.
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Epstein Bar Virus Encephalitis Lived Experience - Mark's Story
Mark describes his Epstein Bar Virus Encephalitis lived experience. This includes diagnosis and how he is coping now.
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Anti-NMDA Encephalitis Lived Experience - Maddi's Story
Tricia talks about her daughter Maddi's diagnosis of anti-NMDA receptor antibody encephalitis. About how she went from a 'typical' 5 year old to showing signs of anger and aggression and the struggles that came with it.
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NMDA Autoimmune Encephalitis Lived Experience - Macy's Story
Macy talks about her lived experience of NMDA Autoimmune Encephalitis and how she fought to maintain her joy of running.
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Autoimmune Limbic Encephalitis Lived Experience - Lorna's Story
Lorna talks about her lived experience and induced coma as a result of unknown autoimmune encephalitis and limbic encephalitis.
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LGi1 Autoimmune Encephalitis Lived Experience - Lisa's Story
Lisa talks about her lived experience of autoimmune encephalitis which, in her case, cased seizures, mobility issues, problems with cognitive function such as short term memory loss and aphasia.
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Encéphalite auto-immune vécue - L’histoire d’Elisabeth
Elisabeth partage son expérience d’un diagnostic d’encéphalite auto-immune. La confusion que cela a causée et comment et comment elle a passé Noël, le Nouvel An et son 20e anniversaire à l’hôpital.
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Viral Encephalitis Lived Experience - Ken's Story
Ken, who was diagnosed at just 2 years old, talks about his experience of viral encephalitis and growing up with very little information in the 60's and 70's.
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Anti-NMDAR Encephalitis Lived Experience - Kelly's Story
Kelly talks about her experience of having meningococcal encephalitis as a seven month old and then 3 subsequent experiences of encephalitis including Anti-NMDAR encephalitis.
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Mengioencephilitis Live Experience - Katie's Story
Katie talks about her experience of Mengioencephilitis, that causes flu like symptoms, that she had while she was working for the NHS.
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Meningoencephalitis Live Experience - Katharina's Story
Katharina talks about her experience of Meningoencephalitis which can cause flu like symptoms. She tells her story from the memory of others and how her life has changed as a result of encephalitis.
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Anti-NMDR Encephalitis Lived Experience - Juliana's Story
Juliana talks about her lived experience of Anti-NMDR encephalitis which she had when she was just 14 years old and how her live changed as a result.
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Herpes Simplex Encephalitis Lived Experience - Joshua's Story
Joshua shares his experience of panic attacks, anxiety and fatigue as a result of his herpes simplex encephalitis diagnosis.
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Meningoencephalitis Lived Experience - Jeremy's Story
Jeremy shares his story of waking from a 10 day coma to a diagnosis of amoebic meningoencephalitis, a type of infectious encephalitis.
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Viral Encephalitis - Janet's Story told by husband, Peter
Janet's husband, Peter, recalls their experience of encephalitis when Janet was diagnosed in 2007 with viral encephalitis. She later passed away in 2018.
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Limbic Autoimmune Encephalitis Lived Experience - James' Story
Sue talks about her experience of James being diagnosed with limbic autoimmune encephalitis and how there were no warning signs. Read about his diagnosis and recovery.
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Autoimmune Encephalitis Lived Experience - Jackie's Story
This is the article that Jackie wrote about her experience of encephalitis for The Gavel, the quarterly magazine of the North Dakota State Bar Association. She talks about her diagnosis or autoimmune encephalitis.
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Viral Encephalitis - Nicholas' story told by mum, Sarah
At the age of 16 years, Nicholas was struck down by a completely random virus, which caused encephalitis and subsequent brain damage. He was in intensive care for a long while and had to learn to walk, talk, eat, read, and basically live, all over again. Nicholas’ mental age never fully recovered, and he became the perpetual teenager in his thoughts and actions.
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Anti-NMDAR Encephalitis Lived Experience - Hayleigh's Story
Hayleigh, from London, became poorly with Anti-NMDAR encephalitis towards the end of 2012. As part of her degree at the University of West London in Ealing, she filmed a documentary about her story, speaking to family members, including her twin, Laura, her doctors as well as talking about her own experiences.
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Anti-NMDAR Encephalitis Lived Experience - Hannah's Story
I was admitted into hospital on the 31st August, 2017, just twelve days after my 21st birthday. This was after spending 36 hours in a psychiatric unit where I was diagnosed with (initially) depression and anxiety. Then they decided to add in borderline psychosis, at that stage they had written me off and didn’t think to listen to how I was actually feeling which was scared, alone and not mentally sick.
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Autoimmune Encephalitis Lived Experience - George's Story
George was diagnosed with autoimmune encephalitis in April 2021 after 9 months of living with the condition. He writes about his illness, diagnosis, the impact of his encephalitis and his ongoing treatment.
Read StoryFull Event Archive
This section is intended for use only on the main Events page.
Great North Run
The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. 2025 places SOLD OUT - register your interest for 2026.
Thames Path Ultra Challenge
Whether you choose to walk, jog or run - England’s most famous river provides a fantastic backdrop for an unforgettable Thames Path Ultra Challenge. Distance options include 100km, 75km, 50km, 25km and 10km.
Family Resilience Day
Please note that this event is now postponed until next year (2026). Exact dates and location to be announced in Autumn. If you are interested, please put your name on the waiting list by emailing Julie at julie@encephalitis.info Having details about kids’ ages and requirements would be very helpful for us to plan this event. […]
My Brain & Medicine - New York, United States
Please note this is a FREE in-person event only for patients, family members and caregivers. My Brain & Medicine. Encephalitis Survivors and Caregivers Day Venue: New York-Presbyterian/Columbia University Irving Medical Center, 50 Haven Avenue, Suite 109 , New York, NY 10032, USA Room: 50 Haven Ballroom (in the Lower Level) Friday 26 September 2025 – […]
My Brain My Story 2025
Please note My Brain : My Story is a hybrid event (in-person and virtual via Zoom) We would love you to join us in York, England, – or virtually – at My Brain : My Story on Saturday 4 October 2025. This event is a hybrid event for anyone who wants to listen to the […]
Great Scottish Run
The Great Scottish Run offers a half marathon and 10km option in the vibrant and friendly city of Glasgow. Urban architecture combines with green spaces and riverside views - a great way to explore this part of Scotland.
Cardiff Half Marathon (Superhalfs)
Cheering crowds, entertainment and a scenic road route are on offer at the Cardiff Half Marathon. What a fun and memorable way to challenge yourself and support Encephalitis International!
Chicago Marathon
An ever popular option, the Chicago Marathon attracts 40,000 runners each year. A flat road course explores the city - a great way to combine an epic challenge with some sight-seeing!
Great South Run
The AJ Bell Great South Run is probably the world’s favourite 10 mile running event, with inspiring history, salty seaside air and glorious views across to the Isle of Wight, as you weave your way around Portsmouth and Southsea.
Dublin Marathon
The Irish Life Dublin Marathon offers an unmissable opportunity to run through iconic landmarks like Phoenix Park, along the River Liffey, and past historic Georgian streets. With a relatively flat course and enthusiastic local support, it's a popular event with 22,000 runners.
Valencia Half Marathon (Superhalfs)
Part of the popular SuperHalfs Series, Valencia Half Marathon offers fabulous city scenery and a flat, fast course. A great option for a 13.1 mile challenge in support of Encephalitis International.
Encephalitis 2025 - Registration
3rd and 4th December 2025 Royal College of Physicians, London and virtually Registrations are now open! (in-person and virtual tickets are available) Book your tickets here ENCEPHALITIS 2025 is an excellent forum for physicians, scientists, researchers, and healthcare professionals to exchange ideas, knowledge and clinical experience relating to encephalitis. You can join us in-person at […]
Valencia Marathon
A beautifully scenic city route awaits for the Valencia Marathon in Spain. An incredibly popular flat road course offers an opportunity for personal bests or an ideal option for first-time marathon runners.
Lisbon Half Marathon (Superhalfs)
The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.
Run Rome The Marathon (inc. Relay)
Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views.
Berlin Half Marathon (Superhalfs)
Explore the sights and avenues of Berlin with 35,000 other participants in this half marathon - part of the Superhalfs series. Runners, wheelchair users, inline skaters and hand cyclists are all welcome.
London Landmarks Half Marathon
London Landmarks half marathon features Tower Bridge, Nelson's Column and Big Ben - the only half marathon to go through both the City of London and City of Westminster and one of the largest fundraising events in Europe.
Paris Marathon
The Schneider Electric Marathon de Paris offers a unique opportunity to traverse this iconic French city and experience landmark sights like the Champs Elysées, the Bois de Vincennes, Notre Dame and the Arc de Triomphe.
Edinburgh Marathon Festival
The Edinburgh Marathon Festival offers a varied programme of events across the weekend, with kids races, 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.
Copenhagen Half Marathon (Superhalfs)
Sight-seeing and running combine - you’ll cross all of Copenhagen’s charming, hip and colourful bridge districts and pass through the historic inner city. A half marathon route with plenty of atmosphere and entertainment!
South England - UK Challenges
Take the leap with a bungee jump, bounce along an obstacle course, or choose from a range of distances for challenge walks, jogs or runs. Whatever you choose to support us in the South of England, there'll be plenty of fun!
Yorkshire - UK Challenges
From bungee jumps to bouncing along an inflatable 5k, there's plenty of fun to be had fundraising in Yorkshire. The county also offers a great range of walking and running events.
Wales - UK Challenges
If you're a supporter based in Wales, or just fancy a bit of charity challenge tourism, there are some great walk and run options to explore in support of Encephalitis International.
South West England - UK Challenges
Explore challenge event options available in the South West of England. Will you choose to run, walk, bounce or bungee to support Encephalitis International?!
Scotland - UK Challenges
There's plenty of fun to be had in Scotland with fundraising challenges! You can brave a bungee jump, bounce along an obstacle course or tackle a walking or running challenge to raise vital funds and awareness for Encephalitis International.
South East England - UK Challenges
Ultra Challenge on the Isle of Wight, Kent Downs or Chilterns? How about a half marathon or obstacle race? There are plenty of challenge options in the South East of England to support us!
North West England - UK Challenges
Bungee jump, run, walk, or take on an inflatable obstacle course to support Encephalitis International in the North West of England. What will you choose? Browse all the options here!
Midlands - UK Challenges
The Midlands region of England has lots to offer those in search of a great challenge to raise awareness and funds for Encephalitis International. Walks, runs, bungee jumps and obstacle courses await!
SuperHalfs Series
The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!
North East England - UK Challenges
The North East offers a great range of challenges you can take on to fundraise for Encephalitis International. Will you choose running, walking or bouncing through an inflatable obstacle course to show your support?!
East of England - UK Challenges
Run, walk, or take on an obstacle course in the East of England, UK. Join our community of fundraisers and support Encephalitis International.
London - UK Challenges
Run, walk, cycle or take on a Tough Mudder - there is plenty of choice for challenge events in London to support Encephalitis International. Why not browse the options available and join our wonderful community of fundraisers?
Swimming Challenges
Open water challenges - including the Great North Swim - and triathlon options to support Encephalitis International. Swim to show your support!
Cycling Challenges
From 25km cycles to epic multi-day international rides, we have a range of cycling challenges to choose from. Get on your bike and support Encephalitis International!
Bungee Jump
Are you brave enough?! Experience the thrill of a lifetime with an exhilarating bungee jump. Perfect for thrill seekers or those in search of an adrenaline challenge!
Inflatable 5k - 2.5km, 5km, 10km, or 15km
A unique inflatable obstacle course you'll need to run, bounce, swing and slide along! Take part on your own or as part of a group with your family (suitable for kids 5 years and over!), friends or colleagues.
Ultra Challenge - Walk, Jog, or Run
Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.
Tough Mudder
Tough Mudder creates hardcore obstacle courses designed to test your all around strength, stamina, and mental grit. Innovative courses combine running and a number of obstacles - featuring mud (lots of mud!), ice and 10,000 volts of electricity!
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