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Event Teasers

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Illustration of two scientists and a human brain

My Brain & Medicine, Sweden

Please note this is a FREE in-person event only for patients diagnosed with encephalitis, their family members and caregivers. Venue: Elite Hotel Carolina Tower, Eugeniavägen 6, 171 64, Stockholm, Sweden  Room: Wilhelm Röntgen Hall Date:  Monday 26 January 2026 – 12.30 – 18.30hrs (CEST) (exact timings to be confirmed) Most of this event will be […]

26 January 2026
Sweden
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Images of participants in the Lisbon Half Marathon.

Lisbon Half Marathon (Superhalfs)

The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.

8 March 2026
Lisbon, Portugal
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Images of participants in Run Rome The Marathon.

Run Rome The Marathon (inc. Relay)

Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views. 

15 March 2026
Rome, Italy
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Full Story Archive

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Japanese Encephalitis

Japanese Encephalitis Lived Experience - Chelsea's story

As part of the My Brain and Me series Chelsea talks about when she contracted Japanese encephalitis whilst in Thailand. If you are affected by this story at all we encourage you to get in touch with our support team.

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Bev who shares her encephalitis story

Caring for my son with encephalitis - Bev's story

As part of our My Brain and Me project, Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s.

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Stolen Lives

A short video about what encephalitis is and how those affected are supported by Encephalitis International.

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An image of Becky whose story is being shared

Encephalitis Lived Experience - Becky's story

Becky, who had encephalitis when she was 16, in May 2012, shares her story with us. She talks openly about her after-effects, and shares her advice for adapting after encephalitis.

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Autoimmune Encephalitis

Autoimmune Encephalitis Lived Experience - Aliya's Story

I quickly was diagnosed with bipolar 2 disorder and I had a new treatment plan, everyone knew I’d be okay. That was until my roommate found me seizing in my room; I was immediately sent to the hospital with uncontrollable seizures, transferred to another hospital, put under a medically-induced coma, was on a forced medical leave from school, and was ultimately flown back to Philadelphia.

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Epstein Barr Encephalitis

Epstein Barr Encephalitis - Alex's Story told by mum, Pennie

We got Alex to the Emergency Room. As the day progressed, Alex’s voice became higher and more shrill. When he was asked questions at the hospital he would seem confused and look at us to answer for him. A cat scan of his brain was done and he was given a lumbar puncture. His dad held him up for LP and he fell asleep during the procedure. We knew something was very wrong - who could fall asleep while getting a painful lumbar puncture?

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Autoimmune Encephalitis following Measles

Autoimmune Encephalitis following Measles - Ailís' Story

I contracted encephalitis at five years of age. It started with measles, followed immediately by chickenpox and then encephalitis. I was ill for a long time, missed a lot of school and was cared for at home by my Mother (writes Ailís Ní Ríain)

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Full Event Archive

This section is intended for use only on the main Events page.

Illustration of two scientists and a human brain

My Brain & Medicine, Sweden

Please note this is a FREE in-person event only for patients diagnosed with encephalitis, their family members and caregivers. Venue: Elite Hotel Carolina Tower, Eugeniavägen 6, 171 64, Stockholm, Sweden  Room: Wilhelm Röntgen Hall Date:  Monday 26 January 2026 – 12.30 – 18.30hrs (CEST) (exact timings to be confirmed) Most of this event will be […]

26 January 2026
Sweden
View Event
Images of participants in the Lisbon Half Marathon.

Lisbon Half Marathon (Superhalfs)

The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.

8 March 2026
Lisbon, Portugal
View Event
Images of participants in Run Rome The Marathon.

Run Rome The Marathon (inc. Relay)

Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views. 

15 March 2026
Rome, Italy
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Images of participants in the Berlin Half Marathon.

Berlin Half Marathon (Superhalfs)

Explore the sights and avenues of Berlin with 35,000 other participants in this half marathon - part of the Superhalfs series. Runners, wheelchair users, inline skaters and hand cyclists are all welcome.

29 March 2026
Berlin, Germany
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Images of participants in the Paris Marathon.

Paris Marathon

The Schneider Electric Marathon de Paris offers a unique opportunity to traverse this iconic French city and experience landmark sights like the Champs Elysées, the Bois de Vincennes, Notre Dame and the Arc de Triomphe.

12 April 2026
Paris, France
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Images of Edinburgh Marathon Festival participants and logo.

Edinburgh Marathon Festival

The Edinburgh Marathon Festival offers a varied programme of events across the weekend, with kids races, 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.

23 - 24 May 2026
Edinburgh, UK
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Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. Register your interest for 2026!

13 September 2026
Newcastle upon Tyne, UK
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Images of participants in the Copenhagen Half Marathon.

Copenhagen Half Marathon (Superhalfs)

Sight-seeing and running combine - you’ll cross all of Copenhagen’s charming, hip and colourful bridge districts and pass through the historic inner city. A half marathon route with plenty of atmosphere and entertainment!

20 September 2026
Copenhagen, Denmark
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London challenge participants and scenery.

London - UK Challenges

Run, walk, cycle or take on a Tough Mudder - there is plenty of choice for challenge events in London to support Encephalitis International. Why not browse the options available and join our wonderful community of fundraisers?

Various Dates - London, UK
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Cycling challenge participants.

Cycling Challenges

From 25km cycles to epic multi-day international rides, we have a range of cycling challenges to choose from. Get on your bike and support Encephalitis International!

Various Dates / Locations, United Kingdom
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Swimming challenge participants.

Swimming Challenges

Open water challenges - including the Great North Swim - and triathlon options to support Encephalitis International. Swim to show your support!

Various Dates / Locations, United Kingdom
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Logos and photos of participants in challenge events in England's Midlands.

Midlands - UK Challenges

The Midlands region of England has lots to offer those in search of a great challenge to raise awareness and funds for Encephalitis International. Walks, runs, bungee jumps and obstacle courses await!

Various Dates - Midlands England, UK
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Logos and photos of participants in challenge events in North West England, UK.

North West England - UK Challenges

Bungee jump, run, walk, or take on an inflatable obstacle course to support Encephalitis International in the North West of England. What will you choose? Browse all the options here!

Various Dates - North West England, UK
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Logos and photos of participants in challenge events in Scotland.

Scotland - UK Challenges

There's plenty of fun to be had in Scotland with fundraising challenges! You can brave a bungee jump, bounce along an obstacle course or tackle a walking or running challenge to raise vital funds and awareness for Encephalitis International.

Various Dates - Scotland, UK
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Logos and photos of participants in challenge events in South West England, UK.

South West England - UK Challenges

Explore challenge event options available in the South West of England. Will you choose to run, walk, bounce or bungee to support Encephalitis International?!

Various Dates - Wales, UK
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Logos and photos of participants in challenge events in Wales, UK.

Wales - UK Challenges

If you're a supporter based in Wales, or just fancy a bit of charity challenge tourism, there are some great walk and run options to explore in support of Encephalitis International.

Various Dates - Wales, UK
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Logos and photos of participants in challenge events in Yorkshire, England.

Yorkshire - UK Challenges

From bungee jumps to bouncing along an inflatable 5k, there's plenty of fun to be had fundraising in Yorkshire. The county also offers a great range of walking and running events.

Various Dates - Yorkshire, UK
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Ultra Challenge events - logo and participants.

Ultra Challenge - Walk, Jog, or Run

Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.

Various Dates / Locations, United Kingdom
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Logos and photos of participants in challenge events in East England.

East of England - UK Challenges

Run, walk, or take on an obstacle course in the East of England, UK. Join our community of fundraisers and support Encephalitis International.

Various Dates - East of England, UK
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Logos and photos of participants in challenge events in the South of England.

South England - UK Challenges

Take the leap with a bungee jump, bounce along an obstacle course, or choose from a range of distances for challenge walks, jogs or runs. Whatever you choose to support us in the South of England, there'll be plenty of fun!

Various Dates - South England, UK
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Logos and photos of participants in challenge events in the South-East of England.

South East England - UK Challenges

Ultra Challenge on the Isle of Wight, Kent Downs or Chilterns? How about a half marathon or obstacle race? There are plenty of challenge options in the South East of England to support us!

Various Dates - South East England, UK
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UK Bungee Club logo and bungee jump participants.

Bungee Jump

Are you brave enough?! Experience the thrill of a lifetime with an exhilarating bungee jump. Perfect for thrill seekers or those in search of an adrenaline challenge!

Various Dates / Locations, United Kingdom
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Logos and photos of participants in challenge events in the North East of England.

North East England - UK Challenges

The North East offers a great range of challenges you can take on to fundraise for Encephalitis International. Will you choose running, walking or bouncing through an inflatable obstacle course to show your support?!

Various Dates - North East England, UK
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Images of participants and the logos for the SuperHalfs Series.

SuperHalfs Series

The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!

Various Dates / Locations, Europe
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Inflatable 5k events - logo and participants.

Inflatable 5k - 2.5km, 5km, 10km, or 15km

A unique inflatable obstacle course you'll need to run, bounce, swing and slide along! Take part on your own or as part of a group with your family (suitable for kids 5 years and over!), friends or colleagues.

Various Dates / Locations, United Kingdom
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Image Tough Mudder participants.

Tough Mudder

Tough Mudder creates hardcore obstacle courses designed to test your all around strength, stamina, and mental grit. Innovative courses combine running and a number of obstacles - featuring mud (lots of mud!), ice and 10,000 volts of electricity!

Various Dates / Locations, United Kingdom
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Story Teasers

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Herpes Simplex Encephalitis - Sanjay's Story

All was well, on 3rd August 2019, until it wasn’t. My father, out of the blue, started having a headache in the evening. He got checked from his aunt (who is a doctor), and she suggested that we take him to the hospital in our hometown, Udaipur (India), as he had started stuttering. Upon reaching the hospital, his brain’s MRI was conducted and my father was admitted in the ICU. Over the course of the next few days, my father’s health deteriorated. He felt feverish, started drooling and passed urine. His blood test suggested that he had contracted an infection, due to which the doctors put him on steroids. Soon, he started losing control over the right side of his body, and my mother, his aunt and friends decided to take him to Bombay, where he can get better treatment. My brother was immediately called home from his job in Gurgaon. I was still in college and knew nothing about what had happened.

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Measles Encephalitis - Renee's Story

I collapsed.  I had fallen into a coma.  I was rushed to the hospital by ambulance and the doctor told my mother that I would most likely be a vegetable for the rest of my life. If I survived at all. There I was lying on a trolley in a coma but I saw everything. The next thing I remember was being moved through a long hall into a dark room with two nurses and a surgeon looming over me sticking a needle into my lower spine.  Still in a coma.  I travelled through a long tunnel at the end of which was a bright light and then back again as one of the nurses stroked my hair.

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Acute Disseminated Encephalomyelitis (ADEM) - Anji's Story

I awoke and intermittently struggled to move my right leg and had to really think about how to swallow, kind of like when you have tonsillitis and you are preparing for the razor blade feeling.  I was staying with friends who thought I was having a stroke and took me to hospital for assessment.  Things continued to deteriorate as the day went on and early hours of the morning I could no longer walk, talk, or move my right arm.  Panic set in.  Then I remember being transferred to another hospital by ambulance at approximately 2am.  I was in and out of consciousness but remember the ambulance man asking me questions and I remember thinking why?  I can't answer you so just stop!  When I got to the hospital my consultant was there waiting.  From here I remember very little for the best part of a week while they ran every test known to man twice!  Every day the consultant would assess me to see if I needed a high dependency unit. 

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Dr Ava Easton

Chief Executive of Encephalitis International

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Phillippa Chapman

Deputy Chief Executive

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Alina Ellerington

Alina Ellerington

Director of Services

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Calum Goodwin

Director of Partnerships and Fundraising

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Caroline Clark

Finance Manager

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Emma Collins

Patient and Public Involvement Manager

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Jon Ainley

Support Line Manager

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Julie Welburn

Admin and Events Manager

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Jo Brooke

Trusts and Foundation Manager

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Poonam Mistry

Data Insights and CRM Manager

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Prav Prathapan

Prav Prathapan

Senior Medical Writer

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Vicky Burgess

Fundraising and Finance Admin Manager

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Alex Amareia

Digital Outreach and Volunteer Manager

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Ally Phillips

Personal Assistant to the CEO

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Natalie Herbert

Administration Executive

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Leisa Sherry

Graphic Designer

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