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Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. Register your interest for 2026!

13 September 2026
Newcastle upon Tyne, UK
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My Brain & Medicine Birmingham, England 2026

My Brain & Medicine (MB&M) is an in-person event only. We would love you to join us in Birmingham, England on Friday 9 October 2026. This event is for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis and learn more about the after-effects. There […]

9 October 2026
The Old Library, Zellig, Gibb St, Birmingham B9 4AT
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Encephalitis 2026 - Registration

7th and 8th December 2026 Royal College of Physicians (RCP), London and virtually (Please note the attendance is both in-person and virtual. Those who register will be able to watch the Conference sessions on demand for 60 days after the event) Registrations are now open! (in-person and virtual tickets are available) Book your tickets here   […]

7 - 8 December 2026
Hybrid
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Full Story Archive

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Anti-NMDAR Encephalitis Lived Experience - Hannah W's story

On September 4th, I was initially admitted to a psych ward. I was diagnosed with Bipolar Disorder Type 1 with psychotic features and mania. After no improvement was observed, I was admitted to another hospital on the 15th as it was suspected my condition was not psychiatric, but medical. After several weeks of assessments, tests, and procedures, I was diagnosed with Anti-NMDA Receptor Encephalitis a rare auto-immune disorder where antibodies attacked the receptors of my brain.

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Herpes Simplex Encephalitis Lived Experience - Aurelio's story

My father was diagnosed with HSV-1 Encephalitis in October 2020. My father is what you would call a stand-up guy, the life of the party, a heart of gold-type person. He fills every room he walks into with love, joy, and happiness so naturally this incident heavily affected all our lives: friends, family, and everyone around us.

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Herpes Simplex Encephalitis

Herpes Simplex Encephalitis Lived Experience - Hannah J's story

Hannah, a primary school teacher, fell ill with Herpes Simplex encephalitis in the Autumn of 2017. Watch almost two years on as she takes us on her journey from her time in hospital, through her rehabilitation, and the impact the illness has had on her and her family.

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Herpes Simplex Encephalitis

Herpes Simplex Encephalitis Lived Experience - Dawn's story

Dawn - who was affected by Herpes simplex virus encephalitis at the age of 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.

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Japanese Encephalitis

Japanese Encephalitis Lived Experience - Chelsea's story

As part of the My Brain and Me series Chelsea talks about when she contracted Japanese encephalitis whilst in Thailand. If you are affected by this story at all we encourage you to get in touch with our support team.

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Bev who shares her encephalitis story

Caring for my son with encephalitis - Bev's story

As part of our My Brain and Me project, Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s.

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Stolen Lives

A short video about what encephalitis is and how those affected are supported by Encephalitis International.

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Encephalitis Lived Experience - Becky's story

Becky, who had encephalitis when she was 16, in May 2012, shares her story with us. She talks openly about her after-effects, and shares her advice for adapting after encephalitis.

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Autoimmune Encephalitis

Autoimmune Encephalitis Lived Experience - Aliya's Story

I quickly was diagnosed with bipolar 2 disorder and I had a new treatment plan, everyone knew I’d be okay. That was until my roommate found me seizing in my room; I was immediately sent to the hospital with uncontrollable seizures, transferred to another hospital, put under a medically-induced coma, was on a forced medical leave from school, and was ultimately flown back to Philadelphia.

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Epstein Barr Encephalitis

Epstein Barr Encephalitis - Alex's Story told by mum, Pennie

We got Alex to the Emergency Room. As the day progressed, Alex’s voice became higher and more shrill. When he was asked questions at the hospital he would seem confused and look at us to answer for him. A cat scan of his brain was done and he was given a lumbar puncture. His dad held him up for LP and he fell asleep during the procedure. We knew something was very wrong - who could fall asleep while getting a painful lumbar puncture?

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Full Event Archive

This section is intended for use only on the main Events page.

Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. Register your interest for 2026!

13 September 2026
Newcastle upon Tyne, UK
View Event

My Brain & Medicine Birmingham, England 2026

My Brain & Medicine (MB&M) is an in-person event only. We would love you to join us in Birmingham, England on Friday 9 October 2026. This event is for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis and learn more about the after-effects. There […]

9 October 2026
The Old Library, Zellig, Gibb St, Birmingham B9 4AT
View Event

Encephalitis 2026 - Registration

7th and 8th December 2026 Royal College of Physicians (RCP), London and virtually (Please note the attendance is both in-person and virtual. Those who register will be able to watch the Conference sessions on demand for 60 days after the event) Registrations are now open! (in-person and virtual tickets are available) Book your tickets here   […]

7 - 8 December 2026
Hybrid
View Event
Ultra Challenge events - logo and participants.

Ultra Challenge - Walk, Jog, or Run

Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.

Various Dates / Locations, United Kingdom
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Image of challenge participants supporting Encephalitis International around the UK.

UK Challenges - Run, Tough Mudder, Bungee

Want to run your first 5k? Or how about the challenge of a marathon or obstacle race? There are plenty of challenge options in the UK to support us!

Various Dates / Locations, United Kingdom
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Image of challenge participants supporting Encephalitis International around the world.

Global Running Challenges

Sight-seeing and running combine brilliantly for these global challenge events. Run through must-see cities and past iconic landmarks whilst supporting Encephalitis International!

Various Dates / Locations, Worldwide
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Cycling challenge participants.

Cycling Challenges

From short cycles to epic multi-day international rides, there is a huge range of cycling challenges to choose from. Get on your bike and support Encephalitis International!

Various Dates / Locations, Europe
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Images of participants and the logos for the SuperHalfs Series.

SuperHalfs Series

The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!

Various Dates / Locations, Europe
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London Marathon

We have been unsuccessful in receiving a London marathon charity ballot place for 2027. The public ballot for 2027 is now open, you can apply for your own place here: Enter the ballot | London Marathon Events   The London Marathon is one of the world’s biggest marathon, with 55,000 runners taking on the route […]

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Story Teasers

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Autoimmune Encephalitis - Jonathan and Elle's Story

Jonathan, my husband of 21 years, passed away from health complications following a diagnosis of autoimmune encephalitis in 2024. How it started My story begins in February 2023 when my husband started acting strangely and the “essential tremor” in his hands seemed to spread to his legs. He’d been diagnosed with an essential tremor a […]

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Herpes Simplex Virus Encephalitis - Daniel's Story

Daniel sadly passed away after a few years from a diagnosis of Herpes Simplex Virus (HSV) encephalitis. This is his story told by daughter, Natalie.   Symptoms and diagnosis In September 2022 my father was showing odd symptoms like confusion and flu-like symptoms. My mother took him to the hospital and after performing several testing […]

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Autoimmune Encephalitis - Elise's Story

In the last couple of days of our trip, I couldn't really understand what he was saying to me, and I just thought this was my hearing after having blocked sinuses, and because we were in a foreign country and not really talking to anyone else, I didn't know that it was actually everyone that I couldn't understand; not just him. All I wanted to do was rest and sleep, and I was getting very angry with myself that whatever was said to me had to be repeated multiple times. I remember watching kids films before bed and being very entertained by them, like a 4-year-old would be. I did not feel in my right mind.

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Dr Ava Easton MBE

Chief Executive, Encephalitis International

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Phillippa Chapman

Deputy Chief Executive

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Alina Ellerington

Alina Ellerington

Director of Services

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Calum Goodwin

Director of Partnerships and Fundraising

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Caroline Clark

Finance Manager

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Emma Collins

Patient and Public Involvement Manager

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Julie Welburn

Admin and Events Manager

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Jo Brooke

Trusts and Foundation Manager

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Poonam Mistry

Data Insights and CRM Manager

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Prav Prathapan

Prav Prathapan

Senior Medical Writer

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Vicky Burgess

Fundraising and Finance Admin Manager

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Alex Amareia

Digital Outreach and Volunteer Manager

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Ally Phillips

Personal Assistant to the CEO

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Anna Heister

Helpline & Support Manager

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Leisa Sherry

Graphic Designer

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