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My Brain & Medicine 2026

My Brain & Medicine 2026 – Registration is now open FREE virtual (online) event Join us online for a patient event and listen to professionals and lived experience speakers. The presentations are aimed at patients, caregivers and family members with an interest with encephalitis. Starting on Monday, April 27, 2026 at 1:00PM BST, this event will […]

27 April 2026
Online
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Images of Edinburgh Marathon Festival participants and logo.

Edinburgh Marathon Festival

The Edinburgh Marathon Festival offers a varied programme of events across the weekend, with kids races, 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.

23 - 24 May 2026
Edinburgh, UK
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five children smiling holding in a group

Family Resilience Day

Family Resilience Event 28-30 May 2026 Yorkshire Wildlife Park, Doncaster, UK   This is an in-person only event aimed at children (up to 16-year-old) and their families who experienced encephalitis and its aftereffects. It is an opportunity for both children and parents to connect with each other and share experiences in a safe environment. Schedule […]

28 - 30 May 2026
Yorkshire Wildlife Park
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Full Story Archive

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Autoimmune Encephalitis

Autoimmune Encephalitis Lived Experience - Aliya's Story

I quickly was diagnosed with bipolar 2 disorder and I had a new treatment plan, everyone knew I’d be okay. That was until my roommate found me seizing in my room; I was immediately sent to the hospital with uncontrollable seizures, transferred to another hospital, put under a medically-induced coma, was on a forced medical leave from school, and was ultimately flown back to Philadelphia.

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Epstein Barr Encephalitis

Epstein Barr Encephalitis - Alex's Story told by mum, Pennie

We got Alex to the Emergency Room. As the day progressed, Alex’s voice became higher and more shrill. When he was asked questions at the hospital he would seem confused and look at us to answer for him. A cat scan of his brain was done and he was given a lumbar puncture. His dad held him up for LP and he fell asleep during the procedure. We knew something was very wrong - who could fall asleep while getting a painful lumbar puncture?

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Full Event Archive

This section is intended for use only on the main Events page.

My Brain & Medicine 2026

My Brain & Medicine 2026 – Registration is now open FREE virtual (online) event Join us online for a patient event and listen to professionals and lived experience speakers. The presentations are aimed at patients, caregivers and family members with an interest with encephalitis. Starting on Monday, April 27, 2026 at 1:00PM BST, this event will […]

27 April 2026
Online
View Event
Images of Edinburgh Marathon Festival participants and logo.

Edinburgh Marathon Festival

The Edinburgh Marathon Festival offers a varied programme of events across the weekend, with kids races, 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.

23 - 24 May 2026
Edinburgh, UK
View Event
five children smiling holding in a group

Family Resilience Day

Family Resilience Event 28-30 May 2026 Yorkshire Wildlife Park, Doncaster, UK   This is an in-person only event aimed at children (up to 16-year-old) and their families who experienced encephalitis and its aftereffects. It is an opportunity for both children and parents to connect with each other and share experiences in a safe environment. Schedule […]

28 - 30 May 2026
Yorkshire Wildlife Park
View Event
Images of participants in the Great North Run, including Encephalitis International supporters.

Great North Run

The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. Register your interest for 2026!

13 September 2026
Newcastle upon Tyne, UK
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My Brain & Medicine Birmingham, England 2026

My Brain & Medicine (MB&M) is an in-person event only. We would love you to join us in Birmingham, England on Friday 9 October 2026. This event is for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis and learn more about the after-effects. There […]

9 October 2026
The Old Library, Zellig, Gibb St, Birmingham B9 4AT
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Encephalitis 2026 - Registration

7th and 8th December 2026 Royal College of Physicians (RCP), London and virtually (Please note the attendance is both in-person and virtual. Those who register will be able to watch the Conference sessions on demand for 60 days after the event) Registrations are now open! (in-person and virtual tickets are available) Book your tickets here   […]

7 - 8 December 2026
Hybrid
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Ultra Challenge events - logo and participants.

Ultra Challenge - Walk, Jog, or Run

Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.

Various Dates / Locations, United Kingdom
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Image of challenge participants supporting Encephalitis International around the UK.

UK Challenges - Run, Tough Mudder, Bungee

Want to run your first 5k? Or how about the challenge of a marathon or obstacle race? There are plenty of challenge options in the UK to support us!

Various Dates / Locations, United Kingdom
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Image of challenge participants supporting Encephalitis International around the world.

Global Running Challenges

Sight-seeing and running combine brilliantly for these global challenge events. Run through must-see cities and past iconic landmarks whilst supporting Encephalitis International!

Various Dates / Locations, Worldwide
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Cycling challenge participants.

Cycling Challenges

From short cycles to epic multi-day international rides, there is a huge range of cycling challenges to choose from. Get on your bike and support Encephalitis International!

Various Dates / Locations, Europe
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Images of participants and the logos for the SuperHalfs Series.

SuperHalfs Series

The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!

Various Dates / Locations, Europe
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Story Teasers

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A man stands looking a clear blue sky.

Infectious Encephalitis - George's Story

In early November 2024, I became unwell with what appeared to be gastro like symptoms. My immune system began fighting the virus but, in doing so, accidentally shut my brain down, causing it to inflame.   How it started I battled this at home for a week – high temperatures, extreme fatigue, confusion, and a […]

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A man and woman stand next to each other in sports gear after completing a swimrun race.

Tick-borne encephalitis - Bill's story

Alarming symptoms hit me over a couple of days, a horror show of unbearable headache, fatigue, vision difficulties and loss of balance that put me in hospital where I had multiple intravenous drug infusions, blood tests, scans and a cerebro spinal fluid (CSF) sampling. I somehow failed to absorb the messages about potential outcomes and relaxed in the feeling the hospital staff were doing everything possible to sort me out. I credit this ignorance and confidence with why I didn't express the post-traumatic stress disorder (PTSD) that is not unusual after TBE hospitalisation. That's not to deny this is an emotional journey and I went to some dark places under my own steam.

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Woman holding a koala

Enterovirus Encephalitis - Erin's Story

I had a seizure while in the coma which made things worse. My mum recalls the doctors saying I was "extremely unwell" which she knew from watching medic shows on TV was code for "it's not looking good". When I woke up from my coma I recall saying "where's my husband, I want my husband". No-one else was that important at that moment. I was incredibly distressed and confused. I couldn't move. Couldn't sit up or even roll over in bed. When my husband came and visited me he handed me phone which I immediately dropped and was convinced he'd filled my phone case with bricks.

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Dr Ava Easton MBE

Chief Executive, Encephalitis International

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Phillippa Chapman

Deputy Chief Executive

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Alina Ellerington

Alina Ellerington

Director of Services

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Calum Goodwin

Director of Partnerships and Fundraising

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Caroline Clark

Finance Manager

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Emma Collins

Patient and Public Involvement Manager

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Julie Welburn

Admin and Events Manager

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Jo Brooke

Trusts and Foundation Manager

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Poonam Mistry

Data Insights and CRM Manager

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Prav Prathapan

Prav Prathapan

Senior Medical Writer

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Vicky Burgess

Fundraising and Finance Admin Manager

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Ally Phillips

Personal Assistant to the CEO

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Leisa Sherry

Graphic Designer

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