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Big Stats
Full Story Archive
This section is intended for use only on the main Stories page.
LGi1 Autoimmune Encephalitis Lived Experience - Pauline's Story
Pauline was affected by autoimmune LGI1 encephalitis in 2015 and then again in 2017. Here she shares her story and experiences with us. This film is part of our My Brain and Me Project.
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Viral Encephalitis - Nicholas' Story - 5 years on
Five years on for Nicolas's mum. Sarah talks about her son's battle with the after effects of viral encephalitis. Nicolas fought for over 20 years before losing his life.
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Herpes Simplex Encephalitis Lived Experience - Natasha's Story
Natasha had encephalitis when she was just two years old. Here, she shares examples of her lived experience including fatigue and changes to her co-ordination.
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Anti-NMDAR Encephalitis Lived Experience - Michele's Story - Part Three
This is Part 3 of Michele sharing her son Ross’ lived experience of Anti-NMDAR Encephalitis. This includes the struggles with the care system, finally getting a diagnosis, treatment and life since treatment.
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Anti-NMDAR Encephalitis Lived Experience - Michele's Story - Part Two
This is Part 2 of Michele sharing her son Ross’ lived experience of Anti-NMDAR Encephalitis. This includes the struggles to get a diagnosis.
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Anti-NMDAR Encephalitis Lived Experience - Michele's Story - Part One
Michele shares her son Ross' lived experience of Anti-NMDAR Encephalitis. This includes the initial symptoms and the effect on Ross' family.
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Herpes Simplex Virus Lived Experience - Martin's Story
This is Martin's Herpes Simplex Virus lived experience. Martin discusses symptoms, diagnosis and how his life has changed since having encephalitis.
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Epstein Bar Virus Encephalitis Lived Experience - Mark's Story
Mark describes his Epstein Bar Virus Encephalitis lived experience. This includes diagnosis and how he is coping now.
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Anti-NMDA Encephalitis Lived Experience - Maddi's Story
Tricia talks about her daughter Maddi's diagnosis of anti-NMDA receptor antibody encephalitis. About how she went from a 'typical' 5 year old to showing signs of anger and aggression and the struggles that came with it.
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NMDA Autoimmune Encephalitis Lived Experience - Macy's Story
Macy talks about her lived experience of NMDA Autoimmune Encephalitis and how she fought to maintain her joy of running.
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Autoimmune Limbic Encephalitis Lived Experience - Lorna's Story
Lorna talks about her lived experience and induced coma as a result of unknown autoimmune encephalitis and limbic encephalitis.
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LGi1 Autoimmune Encephalitis Lived Experience - Lisa's Story
Lisa talks about her lived experience of autoimmune encephalitis which, in her case, cased seizures, mobility issues, problems with cognitive function such as short term memory loss and aphasia.
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Encéphalite auto-immune vécue - L’histoire d’Elisabeth
Elisabeth partage son expérience d’un diagnostic d’encéphalite auto-immune. La confusion que cela a causée et comment et comment elle a passé Noël, le Nouvel An et son 20e anniversaire à l’hôpital.
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Viral Encephalitis Lived Experience - Ken's Story
Ken, who was diagnosed at just 2 years old, talks about his experience of viral encephalitis and growing up with very little information in the 60's and 70's.
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Anti-NMDAR Encephalitis Lived Experience - Kelly's Story
Kelly talks about her experience of having meningococcal encephalitis as a seven month old and then 3 subsequent experiences of encephalitis including Anti-NMDAR encephalitis.
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Mengioencephilitis Live Experience - Katie's Story
Katie talks about her experience of Mengioencephilitis, that causes flu like symptoms, that she had while she was working for the NHS.
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Meningoencephalitis Live Experience - Katharina's Story
Katharina talks about her experience of Meningoencephalitis which can cause flu like symptoms. She tells her story from the memory of others and how her life has changed as a result of encephalitis.
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Anti-NMDR Encephalitis Lived Experience - Juliana's Story
Juliana talks about her lived experience of Anti-NMDR encephalitis which she had when she was just 14 years old and how her live changed as a result.
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Herpes Simplex Encephalitis Lived Experience - Joshua's Story
Joshua shares his experience of panic attacks, anxiety and fatigue as a result of his herpes simplex encephalitis diagnosis.
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Meningoencephalitis Lived Experience - Jeremy's Story
Jeremy shares his story of waking from a 10 day coma to a diagnosis of amoebic meningoencephalitis, a type of infectious encephalitis.
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Viral Encephalitis - Janet's Story told by husband, Peter
Janet's husband, Peter, recalls their experience of encephalitis when Janet was diagnosed in 2007 with viral encephalitis. She later passed away in 2018.
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Limbic Autoimmune Encephalitis Lived Experience - James' Story
Sue talks about her experience of James being diagnosed with limbic autoimmune encephalitis and how there were no warning signs. Read about his diagnosis and recovery.
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Autoimmune Encephalitis Lived Experience - Jackie's Story
This is the article that Jackie wrote about her experience of encephalitis for The Gavel, the quarterly magazine of the North Dakota State Bar Association. She talks about her diagnosis or autoimmune encephalitis.
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Viral Encephalitis - Nicholas' story told by mum, Sarah
At the age of 16 years, Nicholas was struck down by a completely random virus, which caused encephalitis and subsequent brain damage. He was in intensive care for a long while and had to learn to walk, talk, eat, read, and basically live, all over again. Nicholas’ mental age never fully recovered, and he became the perpetual teenager in his thoughts and actions.
Read StoryFull Event Archive
This section is intended for use only on the main Events page.
Prague Half Marathon
The Prague Half Marathon is an unforgettable race due to its stunning scenery, with landmarks including Prague Castle, the National Theatre, Vyšehrad Castle and the Rudolfinum Concert Hall. It is one of the races in the popular SuperHalfs Series.
Milano Marathon
The Wizz Air Milano Marathon offers an amazing flat route for those looking to run from the Piazza del Duomo, through the extraordinary architecture of Milan. It's the perfect setting for a personal best too - known as the fastest marathon in Italy.
London Landmarks Half Marathon
London Landmarks half marathon features Tower Bridge, Nelson's Column and Big Ben - the only half marathon to go through both the City of London and City of Westminster and one of the largest fundraising events in Europe.
Paris Marathon
The Schneider Electric Marathon de Paris offers a unique opportunity to traverse this iconic French city and experience landmark sights like the Champs Elysées, the Bois de Vincennes, Notre Dame and the Arc de Triomphe.
Big Sur International Marathon
Big Sur International Marathon is a point-to-point course run on scenic CA Highway 1 from Big Sur to Carmel in California. Towering redwoods, crashing waves, coastal mountains and verdant pastures are featured on this bucket list course.
My Brain & Medicine 2025
My Brain & Medicine 2025 – Registration is now open (virtual event) Join us online for a patient event where we will be joined by a host of professional and lived experience speakers. The presentations are aimed at patients, carers and family members with an interest with encephalitis. Starting on Monday, April 28, 2025 at 1:00PM […]
Climate change, infectious diseases and encephalitis FREE webinar - Health professional event (online)
Registration is now OPEN! If you are a health professional please join us on the 29 April 2025, at 2pm (BST) to find out more about the impact of climate change on infectious diseases and encephalitis. If you are not able to join ‘live’, please register and a link to the recordings will be sent […]
Edinburgh Marathon Festival
The Edinburgh Marathon Festival offers a varied programme of events - 5km, 10km, half marathon and full marathon, including the Hairy Haggis Team Relay option for 4 runners.
Great North Run
The AJ Bell Great North Run is the world’s biggest half marathon, with 60,000 runners taking on the 13.1 mile route from Newcastle to South Shields. 2025 places SOLD OUT - register your interest for 2026.
Thames Path Ultra Challenge
Whether you choose to walk, jog or run - England’s most famous river provides a fantastic backdrop for an unforgettable Thames Path Ultra Challenge. Distance options include 100km, 75km, 50km, 25km and 10km.
My Brain My Story 2025
Please note My Brain : My Story is a hybrid event (in-person and virtual via Zoom) We would love you to join us in York, England, – or virtually – at My Brain : My Story on Saturday 4 October 2025. This event is a hybrid event for anyone who wants to listen to the […]
Great Scottish Run
The Great Scottish Run offers a half marathon and 10km option in the vibrant and friendly city of Glasgow. Urban architecture combines with green spaces and riverside views - a great way to explore this part of Scotland.
Cardiff Half Marathon
Cheering crowds, entertainment and a scenic road route are on offer at the Cardiff Half Marathon. What a fun and memorable way to challenge yourself and support Encephalitis International!
Chicago Marathon
An ever popular option, the Chicago Marathon attracts 40,000 runners each year. A flat road course explores the city - a great way to combine an epic challenge with some sight-seeing!
Great South Run
The AJ Bell Great South Run is probably the world’s favourite 10 mile running event, with inspiring history, salty seaside air and glorious views across to the Isle of Wight, as you weave your way around Portsmouth and Southsea.
Dublin Marathon
The Irish Life Dublin Marathon offers an unmissable opportunity to run through iconic landmarks like Phoenix Park, along the River Liffey, and past historic Georgian streets. With a relatively flat course and enthusiastic local support, it's a popular event with 22,000 runners.
Valencia Half Marathon
Part of the popular SuperHalfs Series, Valencia Half Marathon offers fabulous city scenery and a flat, fast course. A great option for a 13.1 mile challenge in support of Encephalitis International.
Encephalitis 2025 - Registration
3rd and 4th December 2025 Royal College of Physicians, London and virtually Registrations are now open! (in-person and virtual tickets are available) Book your tickets here ENCEPHALITIS 2025 is an excellent forum for physicians, scientists, researchers, and healthcare professionals to exchange ideas, knowledge and clinical experience relating to encephalitis. You can join us in-person at […]
Valencia Marathon
A beautifully scenic city route awaits for the Valencia Marathon in Spain. An incredibly popular flat road course offers an opportunity for personal bests or an ideal option for first-time marathon runners.
Lisbon Half Marathon
The EDP Lisbon Half Marathon forms part of Portugal’s biggest running event and is one of the races in the popular SuperHalfs Series. The route follows the shores of the River Tagus and crosses the iconic bridge, Ponte 25 de Abril, giving you unbeatable views of Lisbon.
Run Rome The Marathon
Run Rome The Marathon offers an unmatched route through history, culminating at Italy's world-famous Colosseum. Join 30,000 runners to take in the sights of Rome in the most spectacular fashion, with ambient temperatures and breath-taking views.
Tough Mudder
Tough Mudder creates hardcore obstacle courses designed to test your all around strength, stamina, and mental grit. Innovative courses combine running and a number of obstacles - featuring mud (lots of mud!), ice and 10,000 volts of electricity!
Ultra Challenge - Walk, Jog, or Run
Whether along stunning coastlines, or trails through wonderful countryside, your Ultra Challenge® will be unforgettable. Walk, jog or run - take on a 10km, 25km, 50km 75km or even a 100km Ultra Challenge.
Inflatable 5k - 2.5km, 5km, 10km, or 15km
A unique inflatable obstacle course you'll need to run, bounce, swing and slide along! Take part on your own or as part of a group with your family (suitable for kids 5 years and over!), friends or colleagues.
Bungee Jump
Are you brave enough?! Experience the thrill of a lifetime with an exhilarating bungee jump. Perfect for thrill seekers or those in search of an adrenaline challenge!
Cycling Challenges
From 25km cycles to epic multi-day international rides, we have a range of cycling challenges to choose from. Get on your bike and support Encephalitis International!
Swimming Challenges
Open water challenges - including the Great North Swim - and triathlon options to support Encephalitis International. Swim to show your support!
London - UK Challenges
Run, walk, cycle or take on a Tough Mudder - there is plenty of choice for challenge events in London to support Encephalitis International. Why not browse the options available and join our wonderful community of fundraisers?
East of England - UK Challenges
Run, walk, or take on an obstacle course in the East of England, UK. Join our community of fundraisers and support Encephalitis International.
North East England - UK Challenges
The North East offers a great range of challenges you can take on to fundraise for Encephalitis International. Will you choose running, walking or bouncing through an inflatable obstacle course to show your support?!
SuperHalfs Series
The SuperHalfs Series brings together six epic destination half marathons which runners complete to secure their SuperMedal and a place in the SuperHalfs Hall of Fame. The events take place in Berlin, Cardiff, Copenhagen, Lisbon, Prague and Valencia. What an awesome challenge to take on in support of Encephalitis International!
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