News

New research on emotional adjustment after encephalitis

6 May 2025

Key points: A team of UK researchers, including Encephalitis International’s CEO Dr Ava Easton, explored how to accurately capture experiences of emotional adjustment after encephalitis. Transdiagnostic cognitive behavioural therapy (T-CBT), previously tested for anxiety, can capture experiences of emotional adjustment after encephalitis. Future clinical trials and psychological therapy may be informed by this work. Introduction […]

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Football auction!

6 May 2025

On Friday 9th May, Encephalitis International will be holding a 10-day auction of over 20 football shirts and memorabilia including several items from Premier Leagues teams across England and Scotland. The shirts have been donated by the clubs in response to a request made jointly by Encephalitis International, Huddersfield Town AFC and Peter and Kathy […]

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Extraordinary concert raises funds in memory of Eleanor

24 April 2025

We are always deeply thankful to many of our community who raise funds for Encephalitis International in a variety of ways. Earlier this year, on the 9th February 2025, Peter and Kathy Haigh in partnership with the Masquerade and Belcanto Ladies Choirs organised a fundraising concert at Kettering Arts Centre to raise funds in memory […]

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Celebrating 25 years with Dr Ava Easton

24 April 2025

Today marks 25 years since Ava started working for Encephalitis International and what a 25 years it has been! To help celebrate this incredible milestone we thought we should share some of  her career highlights and successes (trust us there are many more!) – not in any particular order! Earlier this year the World Health […]

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The What, Why, When and Where of Will Writing

1 April 2025

Thousands of non-profits like Encephalitis International rely on legacies – gifts that people have left in their will – to fund their charitable work across the world. Encephalitis International dedicates campaigns to promote leaving a gift in your will and has webpages featuring this area of our fundraising: Gift in Will – Leave a Legacy […]

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Improving brain infection diagnostics in India

18 March 2025

By Dr Angel T Miraclin India (Vellore Centre) Co-Investigator, Brain Infections Global Intervention Study Associate Professor, Neurology, Christian Medical College & Hospital, Vellore, India. To view the full paper click here (external link). Brain infections remain a major cause of illness and death, requiring timely and accurate diagnosis for effective treatment. In India, the healthcare […]

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Improving brain infection diagnostics in Malawi

18 March 2025

By Dr Gareth D Lipunga Malawi Study Physician, Brain Infections Global Intervention Study, Study Physician, Malawi-Liverpool-Wellcome Trust Clinical Research Programme & Queen Elizabeth Central Hospital, Blantyre, Malawi. To view the full paper click here (external link). In an effort to improve timely diagnosis and early management of patients with suspected brain infections, we implemented a […]

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Brain infection diagnostics in Brazil and beyond

14 March 2025

By Dr Rafael FO Franca Brazil Principal Investigator, Brain Infections Global Intervention Study Virologist & Group Leader, Fiocruz (Oswaldo Cruz Foundation), and currently Director, Fiocruz São Paulo. To view the full paper click here (external link).   Brain infections, including encephalitis and meningitis, pose a serious health challenge, particularly for impoverished populations who are more […]

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Encephalitis International Conference 2024

7 March 2025

The 2024 Encephalitis International Conference was held in person and virtually at the Royal College of Physicians from 2nd – 3rd December 2024. The Encephalitis International Conference is a two-day event that is the largest of its kind. In 2024, the conference brought together 515 delegates across 71 countries, virtually and in person, at the […]

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Criminality in patients with autoimmune encephalitis

28 February 2025

Key points: Study links autoimmune encephalitis to delayed criminal behaviour. Treated patients showed lasting behavioural changes despite reduced antibodies. Delayed treatment may cause permanent brain changes in patients. Introduction Although patients with autoimmune encephalitis respond to immunotherapy, many exhibit neurobehavioural features. A 2024 retrospective study examined five cases of criminal behaviour among autoimmune encephalitis (AE) patients seen […]

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World Encephalitis Day History

14 February 2025

World Encephalitis Day is the biggest day of the year for people whose lives have been affected by inflammation of the brain. Encephalitis International established this global awareness day on the 22nd February 2014. Since its launch in 2014, World Encephalitis Day has reached 628 million people globally in our efforts to grow global awareness […]

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GENIE – A Portuguese association for autoimmune encephalitis research and care

7 February 2025

By Ana Vasconcelos (GENIE member) On January 24th, at the University of Coimbra (Portugal), we celebrated the official launch and inaugural meeting of GENIE – Grupo de Estudos em Neuroimunologia e Encefalites (translated as Neuroimmunology and Encephalitis Study Group). GENIE is a Portuguese association dedicated to raising awareness, conducting and disseminating research, fostering collaborations, and […]

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Experts call for unified classification system for tick-borne encephalitis

17 January 2025

A recent paper involving Encephalitis International’s CEO Ava Easton has highlighted a critical gap in how we classify tick-borne encephalitis virus (TBEV) infections. The research, published in the scientific journal ‘Ticks and Tick-borne Diseases’, brought together an expert panel of European clinicians and scientists with diverse expertise in TBEV infection to create a consensus statement […]

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Support Encephalitis International - Donate Online

6 January 2025

We’re very excited to be launching our new online donation form! This is hosted on our website and will allow our supporters to make a donation in a number of currencies: Great British Pounds, £GBP Euros, €EUR Australian Dollars, $AUD American Dollars, $USD Payments can be made using a credit / debit card, or via […]

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Fundraising for Encephalitis International

20 December 2024

As we near the end of 2024, we want to congratulate all our wonderful fundraisers – over 300 across the world – who have spread awareness and raised vital funds throughout the year. Their generosity ensures we can continue to support the encephalitis community into the future. Our 99 Brain Gamers spent September challenging themselves with […]

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David Brown 1952-2024

11 December 2024

It is with great sadness that we announce the passing of Professor David W G Brown, MBBS MSc FRCPath FFPH. An internationally renowned public health virologist, David served with distinction as director of the Health Protection Agency’s Virus Reference Department from 2004 until his retirement in 2012, and a visiting professor at LSHTM. After training […]

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Encephalitis International and PPI (Patient & Public Involvement) 

5 December 2024

What is PPI? PPI stands for Patient and Public Involvement in research. It describes how patients and the public can participate in medical research.  It is important that, where possible, patients and the public have the opportunity to be involved in all stages of research.  PPI can include:  sharing lived experience of encephalitis, as a […]

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Autoimmune causes of seizures and epilepsy

25 November 2024

A seizure is a sudden change in behaviour, movement, and/or consciousness due to abnormal electrical activity in the brain. While 1 in 10 people will have a seizure during their lifetime, only around 1 in 100-200 will develop epilepsy, which means having repeated seizures over time. There are many causes of seizures and epilepsy. However, […]

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Murray Valley Encephalitis

Eastern Equine Encephalitis (EEE)

28 October 2024

Key points: EEE is a viral disease transmitted to humans through the bite of infected mosquitoes. EEE virus is rare but has a 30% mortality rate among infected individuals. Half of survivors have brain or nerve problems. There is no human vaccine for EEE – so prevention is crucial. Introduction  EEE has been in the […]

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Encephalitis International is PIF TICK accredited

21 October 2024

Encephalitis International is proud to be accredited with the PIF TICK. What is PIF TICK? PIF TICK is a UK quality mark for reliable health information. Encephalitis International has received this accreditation from the Patient Information Forum (PIF), which means our health information is trustworthy. Why is it important? The PIF TICK accreditation helps people […]

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Mpox and encephalitis

20 September 2024

Key points: Mpox, formerly known as monkeypox, can lead to rare but severe neurological complications. Encephalitis is the most common neurological complication of mpox infection, causing inflammation of the brain. Vaccination and early treatment are crucial in preventing severe outcomes of mpox infection. Introduction When you think about mpox (formerly known as monkeypox), you might […]

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We are closing our X account

16 September 2024

Our account on X, formerly known as Twitter, has been a source of connection and information for our members and wider community for many years. However, after an internal review, we have decided to close it. At Encephalitis International, we aim for everyone to be respected for who they are. Everyone deserves to feel supported […]

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Oropouche virus – what you need to know

29 August 2024

A virus in Brazil has been causing concern for health organisations around the world. Introduction The Oropouche virus (pronounced o-ro-push) has now been described as a ‘mysterious’ and ‘emerging’ threat in the prestigious scientific journal The Lancet (1). In July, authorities in Brazil reported the deaths of two adults from Oropouche fever as a result […]

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Psychology Today - The Inflamed Brain (June)

9 August 2024

Protect Your Brain and Body Health While Exploring the World By Prav Prathapan, Encephalitis International While encephalitis can happen to anyone anywhere in the world, certain regions and travel activities can increase your chances of exposure to the bugs that can trigger this illness. Importantly, in recent years, there has been an increase in the […]

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