News
My Neurology Academic Clinical Fellowship (ACF): First year - by Dr Abdusshakur Muhammad Auwal
4 July 2025
By Dr Abdusshakur Muhammad Auwal, NIHR Academic Clinical Fellow, University of Liverpool and Walton NHS Foundation Trust Introduction The first year of my Neurology Academic Clinical Fellowship (ACF) has been intense but very rewarding. It was intense due to the need to combine clinical work and research at the same time while maintaining competency in […]
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Psychology Today - The Inflamed Brain (May 2025)
23 May 2025
The 100-year-old Brain Disease That Could Come Back How to face a pandemic that affects the mind. by Jonathan Rogers, Ph.D A hundred years ago, a pandemic swept around the world and we had no idea what caused it. Worse still, even today, we’re still not sure. Patients often developed Parkinson’s-like symptoms, personality changes, or […]
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New research on emotional adjustment after encephalitis
6 May 2025
Key points: A team of UK researchers, including Encephalitis International’s CEO Dr Ava Easton, explored how to accurately capture experiences of emotional adjustment after encephalitis. Transdiagnostic cognitive behavioural therapy (T-CBT), previously tested for anxiety, can capture experiences of emotional adjustment after encephalitis. Future clinical trials and psychological therapy may be informed by this work. Introduction […]
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Football auction!
6 May 2025
On Friday 9th May, Encephalitis International will be holding a 10-day auction of over 20 football shirts and memorabilia including several items from Premier Leagues teams across England and Scotland. The shirts have been donated by the clubs in response to a request made jointly by Encephalitis International, Huddersfield Town AFC and Peter and Kathy […]
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Extraordinary concert raises funds in memory of Eleanor
24 April 2025
We are always deeply thankful to many of our community who raise funds for Encephalitis International in a variety of ways. Earlier this year, on the 9th February 2025, Peter and Kathy Haigh in partnership with the Masquerade and Belcanto Ladies Choirs organised a fundraising concert at Kettering Arts Centre to raise funds in memory […]
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Celebrating 25 years with Dr Ava Easton
24 April 2025
Today marks 25 years since Ava started working for Encephalitis International and what a 25 years it has been! To help celebrate this incredible milestone we thought we should share some of her career highlights and successes (trust us there are many more!) – not in any particular order! Earlier this year the World Health […]
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The What, Why, When and Where of Will Writing
1 April 2025
Thousands of non-profits like Encephalitis International rely on legacies – gifts that people have left in their will – to fund their charitable work across the world. Encephalitis International dedicates campaigns to promote leaving a gift in your will and has webpages featuring this area of our fundraising: Gift in Will – Leave a Legacy […]
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Improving brain infection diagnostics in India
18 March 2025
By Dr Angel T Miraclin India (Vellore Centre) Co-Investigator, Brain Infections Global Intervention Study Associate Professor, Neurology, Christian Medical College & Hospital, Vellore, India. To view the full paper click here (external link). Brain infections remain a major cause of illness and death, requiring timely and accurate diagnosis for effective treatment. In India, the healthcare […]
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Improving brain infection diagnostics in Malawi
18 March 2025
By Dr Gareth D Lipunga Malawi Study Physician, Brain Infections Global Intervention Study, Study Physician, Malawi-Liverpool-Wellcome Trust Clinical Research Programme & Queen Elizabeth Central Hospital, Blantyre, Malawi. To view the full paper click here (external link). In an effort to improve timely diagnosis and early management of patients with suspected brain infections, we implemented a […]
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Brain infection diagnostics in Brazil and beyond
14 March 2025
By Dr Rafael FO Franca Brazil Principal Investigator, Brain Infections Global Intervention Study Virologist & Group Leader, Fiocruz (Oswaldo Cruz Foundation), and currently Director, Fiocruz São Paulo. To view the full paper click here (external link). Brain infections, including encephalitis and meningitis, pose a serious health challenge, particularly for impoverished populations who are more […]
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Encephalitis International Conference 2024
7 March 2025
The 2024 Encephalitis International Conference was held in person and virtually at the Royal College of Physicians from 2nd – 3rd December 2024. The Encephalitis International Conference is a two-day event that is the largest of its kind. In 2024, the conference brought together 515 delegates across 71 countries, virtually and in person, at the […]
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Criminality in patients with autoimmune encephalitis
28 February 2025
Key points: Study links autoimmune encephalitis to delayed criminal behaviour. Treated patients showed lasting behavioural changes despite reduced antibodies. Delayed treatment may cause permanent brain changes in patients. Introduction Although patients with autoimmune encephalitis respond to immunotherapy, many exhibit neurobehavioural features. A 2024 retrospective study examined five cases of criminal behaviour among autoimmune encephalitis (AE) patients seen […]
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World Encephalitis Day History
14 February 2025
World Encephalitis Day is the biggest day of the year for people whose lives have been affected by inflammation of the brain. Encephalitis International established this global awareness day on the 22nd February 2014. Since its launch in 2014, World Encephalitis Day has reached 628 million people globally in our efforts to grow global awareness […]
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GENIE – A Portuguese association for autoimmune encephalitis research and care
7 February 2025
By Ana Vasconcelos (GENIE member) On January 24th, at the University of Coimbra (Portugal), we celebrated the official launch and inaugural meeting of GENIE – Grupo de Estudos em Neuroimunologia e Encefalites (translated as Neuroimmunology and Encephalitis Study Group). GENIE is a Portuguese association dedicated to raising awareness, conducting and disseminating research, fostering collaborations, and […]
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Experts call for unified classification system for tick-borne encephalitis
17 January 2025
A recent paper involving Encephalitis International’s CEO Ava Easton has highlighted a critical gap in how we classify tick-borne encephalitis virus (TBEV) infections. The research, published in the scientific journal ‘Ticks and Tick-borne Diseases’, brought together an expert panel of European clinicians and scientists with diverse expertise in TBEV infection to create a consensus statement […]
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Support Encephalitis International - Donate Online
6 January 2025
We’re very excited to be launching our new online donation form! This is hosted on our website and will allow our supporters to make a donation in a number of currencies: Great British Pounds, £GBP Euros, €EUR Australian Dollars, $AUD American Dollars, $USD Payments can be made using a credit / debit card, or via […]
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Fundraising for Encephalitis International
20 December 2024
As we near the end of 2024, we want to congratulate all our wonderful fundraisers – over 300 across the world – who have spread awareness and raised vital funds throughout the year. Their generosity ensures we can continue to support the encephalitis community into the future. Our 99 Brain Gamers spent September challenging themselves with […]
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David Brown 1952-2024
11 December 2024
It is with great sadness that we announce the passing of Professor David W G Brown, MBBS MSc FRCPath FFPH. An internationally renowned public health virologist, David served with distinction as director of the Health Protection Agency’s Virus Reference Department from 2004 until his retirement in 2012, and a visiting professor at LSHTM. After training […]
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Encephalitis International and PPI (Patient & Public Involvement)
5 December 2024
What is PPI? PPI stands for Patient and Public Involvement in research. It describes how patients and the public can participate in medical research. It is important that, where possible, patients and the public have the opportunity to be involved in all stages of research. PPI can include: sharing lived experience of encephalitis, as a […]
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Autoimmune causes of seizures and epilepsy
25 November 2024
A seizure is a sudden change in behaviour, movement, and/or consciousness due to abnormal electrical activity in the brain. While 1 in 10 people will have a seizure during their lifetime, only around 1 in 100-200 will develop epilepsy, which means having repeated seizures over time. There are many causes of seizures and epilepsy. However, […]
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Eastern Equine Encephalitis (EEE)
28 October 2024
Key points: EEE is a viral disease transmitted to humans through the bite of infected mosquitoes. EEE virus is rare but has a 30% mortality rate among infected individuals. Half of survivors have brain or nerve problems. There is no human vaccine for EEE – so prevention is crucial. Introduction EEE has been in the […]
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Encephalitis International is PIF TICK accredited
21 October 2024
Encephalitis International is proud to be accredited with the PIF TICK. What is PIF TICK? PIF TICK is a UK quality mark for reliable health information. Encephalitis International has received this accreditation from the Patient Information Forum (PIF), which means our health information is trustworthy. Why is it important? The PIF TICK accreditation helps people […]
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Mpox and encephalitis
20 September 2024
Key points: Mpox, formerly known as monkeypox, can lead to rare but severe neurological complications. Encephalitis is the most common neurological complication of mpox infection, causing inflammation of the brain. Vaccination and early treatment are crucial in preventing severe outcomes of mpox infection. Introduction When you think about mpox (formerly known as monkeypox), you might […]
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We are closing our X account
16 September 2024
Our account on X, formerly known as Twitter, has been a source of connection and information for our members and wider community for many years. However, after an internal review, we have decided to close it. At Encephalitis International, we aim for everyone to be respected for who they are. Everyone deserves to feel supported […]
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