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Michele's Story - Part Two

Over the next day or two we did little walks and went for lunch, in hindsight I now recall Ross again coughing and also sweating when eating. Ross was not sleeping at all and was becoming very distressed. We arranged a back and shoulder massage for him and he tried breathing exercises as well. Nothing […]

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Michele's Story - Part One

If there is one thing I’ve learnt as I have got older is the fact that we cannot control everything that life throws at us. I realise that we can only keep hope and faith but along with that we can and must fight for our loved ones when they need us most and always, […]

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Maddi's Story

Before November 2015, my daughter Maddilyn was a ‘typical’ 5 year old (writes Tricia). She was silly, loud, full of energy, and bit sassy. She had always been a kind and affectionate child. She was helpful and mindful of others, until one day, she wasn’t. Suddenly, Maddilyn became sarcastic, aggressive and combative. Everyday things became […]

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Macy's Story

HOW IT STARTED On July 3, 2020 I began my day with a 10-mile run in the Northeast Georgia neighborhood surrounding my childhood home. I followed with a smoothie, took my labrador retriever for a walk, responded to work emails, FaceTimed my partner across the pond, and celebrated an early Independence Day with an intimate […]

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Le récit d'Elisabeth

Bonjour, Je m’appelle Elisabeth. Je suis une étudiante française, je vais avoir 23 ans bientôt. Mes parents sont mariés et j’ai deux petits frères, maintenant plus grands que moi. Je râle beaucoup. Je râlais déjà beaucoup avant que cela m’arrive. Et pourtant, j’ai bien conscience que je suis une jeune femme chanceuse. Une survivante. Il […]

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Kelly's Story

Please note: It is very rare for someone to have several relapses of encephalitis. If you have any concerns about your own health, please contact our support team. My name is Kelly and I have had encephalitis four times and meningitis once. I had meningococcal encephalitis when I was 7 months old. I then had encephalitis when […]

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Juliana's Story

It all started in the first week of my freshman year of high school when I was only 14 years old. I began to get very anxious all the time, I would have fuzzy thoughts and I was not able to concentrate during class. I thought this was all part of the nerve-wreck of starting […]

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Hayleigh's Story

Hayleigh, from London, became poorly with Anti-NMDAR encephalitis towards the end of 2012. As part of her degree at the University of West London in Ealing, she filmed a documentary about her story, speaking to family members, including her twin, Laura, her doctors as well as talking about her own experiences.  

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Hannah's Story - Part Two

Hannah was affected by Anti-NMDAR encephalitis. This is her story: One of my first memories of waking up was looking at the door beside my bed. I couldn’t move, my fingers were locked together like cement and my mouth was glued shut. I thought if I screamed I could maybe wake myself up from this nightmare, […]

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Hannah's Story

Hannah, from Dublin, was diagnosed with Anti-NMDAR encephalitis. This is her story: When I first woke up this woman called Martina and her daughter came into visit me. She hugged me and looked at me as if she knew me. I didn’t know who she was or how I knew her. This woman was in […]

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Ger's story

Ger tells the story of his three experiences with Anti-NMDAR encephalitis and how it affected the course of his life.

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Cerys' Story

My daughter was diagnosed with Anti-NMDA Receptor encephalitis just before her 13th birthday. I had never heard of this disease before and it has been a scary year, constantly worrying of a relapse and having little information about this disease. Encephalitis International’s website has helped so much. Being able to read other people’s stories and their roads […]

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Kelly's story

My name is Kelly and I have had encephalitis four times and meningitis once.

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Ana's Story

Ana was a happy 10-year-old just finishing the 4th grade when she came down with flu-like symptoms

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Hannah W's story

Hannah from North Carolina was diagnosed with Anti NMDAR encephalitis in the summer of 2021. She writes about her experience in hospital and her return to university.

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