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Herpes Simplex Encephalitis Lived Experience- Tim's Story

Tim's lived experience of herpes simplex encephalitis from initial symptoms to recovery.

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LGi1 Autoimmune Lived Experience - Steve's Story

Steve shares his written and recorded account of his experience and diagnosis of LGI1 Autoimmune Encephalitis and how his active life has changed as a result.

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Autoimmune Encephalitis Lived Experience - Tony's Story

Tony tells the story of his initial symptoms of Autoimmune Encephalitis, his two month stay in hospital and his life after Encephalitis.

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A picture of Veronique with her family: her fiancé and 3 boys. Veronique describes her lived experience with meningoencephalitis.

Meningoencephalitis Lived Experience - Veronique's Story

  Below is Veronique’s lived experience of meningoencephalitis in both text and video form. This is a video documentary about Veronique by Attitude Read Veronique’s Weird Wonderful Brain blog It all started pretty suddenly for me. I was vacuuming when I felt like something had hit me behind the head leaving me headachy and foggy. Never […]

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Yvonne with her family. She describes her lived experience of Herpes Simplex Virus encephalitis in the text.

Herpes Simplex Virus Encephalitis lived experience - Yvonne's Story

This is Yvonne’s lived experience of Herpes Simplex Virus Encephalitis. One Saturday night at the end of January 2013, I lost my sense of taste, and was unable to eat my evening meal. It was no big deal; after all, this had to be the symptoms of a stomach bug, didn’t it? By the next […]

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Varicella Zoster Virus (VZV) Lived Experience - Shawn's Story

After waking up to a pain in his eye, Shawn had various trips to hospital before being diagnosed with encephalitis. Here, he shares his story of that experience.

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Herpes Simplex Encephalitis Lived Experience - Ross' Story

Ross talks about his experience and ongoing recovery from Herpes Simplex Virus Encephalitis.

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Rachel's lived experience of herpes simplex encephalitis

Herpes Simplex Virus Lived Experience - Rachel's Story

Rachel talks about her experience of encephalitis including fatigue and memory loss but how she will not allow the changes it made to her life define her.

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Pete with hiss family. Pete shares his live experience of viral encephalitis

Viral Encephalitis Lived Experience - Pete's Story

Below, Pete shares his lived experience of Viral Encephalitis. Viral encephalitis: the first seven months ‘Errr, I really don’t feel well. Errr, early start but must make it up to the Snow Roads Scenic Route – last day of construction, can’t miss that. And then back to the office for financial year end!’ Three days […]

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A photo of Paul. Paul shares his lived experience of Encephalitis.

Meningoencephalitis Lived Experience - Paul's Story

Paul shares his lived experience of Encephalitis. This includes his symptoms and how it affected his life, but also what helped in life after Encephalitis.

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LGi1 Autoimmune Encephalitis Lived Experience - Pauline's Story

Pauline was affected by autoimmune LGI1 encephalitis in 2015 and then again in 2017. Here she shares her story and experiences with us.

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A photo of Ross and his dad. Michele describes Ross' lived experience of Anti-NMDA Receptor Encephalitis.

Anti-NMDA Receptor Encephalitis Lived Experience - Michele's Story - Part Three

This is Part 3 of Michele sharing her son Ross’ lived experience of Anti-NMDA Receptor Encephalitis. This includes the struggles with the care system, finally getting a diagnosis, treatment and life since treatment.

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A picture of the family including Ross and Michele. Michele describes Ross' lived experience of Anti-NMDA Receptor Encephalitis.

Anti-NMDA Receptor Encephalitis Lived Experience - Michele's Story - Part Two

This is Part 2 of Michele sharing her son Ross’ lived experience of Anti-NMDA Receptor Encephalitis. This includes the worsening of his symptoms, how it affected the family, their struggles with the healthcare system and getting a diagnosis

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A photo of Michele and Ross. Michele shares Ross' lived experience of Anti-NMDA Receptor Encephalitis.

Anti-NMDA Receptor Encephalitis Lived Experience - Michele's Story - Part One

Michele shares her son Ross' lived experience of Anti-NMDA Receptor Encephalitis. This includes the initial symptoms and the effect on Ross' family.

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Autoimmune Limbic Encephalitis Lived Experience - Lorna's Story

Lorna talks about her lived experience and induced coma as a result of unknown autoimmune encephalitis and limbic encephalitis.

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LGi1 Autoimmune Encephalitis Lived Experience - Lisa's Story

Lisa talks about her lived experience of autoimmune encephalitis which, in her case, cased seizures, mobility issues, problems with cognitive function such as short term memory loss and aphasia.

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Katie's Story

My story starts on a Sunday when I first got a headache. I’d been to an aquarium earlier in the day and thought maybe the lights had triggered it. I woke on Monday morning and still had the headache but just didn’t feel right, so I called in sick to work. I work for the […]

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Charles' Story

I have penned a summary of my experiences with encephalitis to help those who have recently encountered encephalitis. Fortunately, my encephalitis leaves me with the knowledge that this illness does not have to be totally debilitating or fatal. In my case, positive medical action resulted in me surviving without any major ongoing problems. The causes […]

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Annette's Story

Like so many others, I had heard of encephalitis but didn’t really understand what it was.

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Amy's Story

In early 2017 shortly after the birth of my fifth child, I began to have some short-term memory loss.

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Betzabé's Story

This is the story of my sister Betzabé, who was affected by viral encephalitis in 2017 when she was 45 years old.

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Dawn's story

Dawn - who was affected by Herpes simplex virus encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.

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