My Brain: My Story: My Family
Please note My Brain: My Story; My Family is a hybrid event.
We would love you to join us in Newcastle, England or virtually at My Brain : My Story : My Family this October.
My Brain: My Story: My Family is a hybrid event is for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis. There will be opportunities to ask questions of the speakers and join us afterwards for a drinks reception (in person attendees) or the virtual support gathering.
At this years event we will be having a session in the morning which will be aimed at encephalitis in children. The afternoon session will be aimed at encephalitis in adulthood.
You are welcome to attend one or both sessions.
Children and young people are welcome to attend and we will provide activities throughout the day (the activities are suitable for ages 4+ and are available to in person attendees only). Please note we are not able to provide one to one specialist care.
Confirmed Children’s workshops
- Big Science UK – a fantastic opportunity for children to participate in hands on science experiments which may include slime, sherbert making, film canister rockets as well as Big Science demonstrations.
Confirmed Speakers:
Encephalitis in children
- Diane Adebayo (UK) – Person Affected and Team Encephalitis Volunteer
- Kellie Bennett (Ireland) – Parent of child affected
- Daniel Starr (UK) – Person Affected as a child now adult
Encephalitis in adults
- Hannah Rowlands (UK) – Person Affected and Team Encephalitis Volunteer
- Jim Cooper (US) – Person Affected.
- Chris Moore (UK) – Person Affected.
- Eduarda Moreira (Brazil) – Person Affected.
- Steven Burkinshaw JP (UK) – Bereaved Family Member
- Ana Medina Martin (Germany) – Family Member and Team Encephalitis Volunteer
Programme
10.30am – registration
11.00am-12 noon
- parents/young person ‘lived’ experience speakers.
- children/young people workshop activities
12noon lunch
1pm-5pm –
- adult ‘lived’ experience speakers.
- children/young people workshop activities.
5pm – drinks reception (in person attendees) / On line after event support gathering (virtual attendees)
6.00pm – close
Download a copy of the programme here
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Ticket Information
The cost to attend in person is £5.00 per adult (25+)
Tickets for Children/Young people (25 & under free of charge)
If you are joining virtually tickets are free of charge. If you are not able to join us virtually on the day please note that the event will be recorded which will be available for 30 days to all those who have registered for a ticket.
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The Venue
Northumbria Students Union: 2 Sandyford Road Domain Newcastle upon Tyne NE1 8SB
Venue is accessible by public transport.
There are a limited number of car parking spaces available. To reserve a space please register for a car park ticket if required.
Lunch and refreshments will be provided.
Sponsors
With thanks to our sponsors:-
