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Tim's Story

One day in May 2014, I woke up with a high fever (103+), and a severe headache that wouldn’t go away. This was odd because I was never sick before. I was 48 and in the best shape of my life at the time, as a personal trainer, a P90X Xtreme finisher, a soccer coach, […]

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Lucy's story

Lucy, from London, began experiencing flu-like symptoms in the spring of 2006. Within weeks, she was hospitalised and had a number of seizures on the day she was admitted.

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Yvonne's Story

One Saturday night at the end of January 2013, I lost my sense of taste, and was unable to eat my evening meal. It was no big deal; after all, this had to be the symptoms of a stomach bug, didn’t it? By the next day, I was vomiting profusely and I was losing sensation […]

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Martin's Story

My encephalitis journey: coping with a re-designed mind In December 2014, my life was going as expected. I had completed an MBA at the age of 40 in 2010, and was working as a senior manager in a large organisation. I had a beautiful fiancée and was looking forward to an incredible future – life […]

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Joshua's Story

Hey there! My name is Joshua, and I am a survivor of herpes simplex encephalitis (HSE). It is currently almost eight months since I was diagnosed, but it has taken me until now to honestly reflect upon what happened during that time. Growing up, I was always driven by my family to excel in my work. My […]

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Corinna's Story

THE NEW SELF – RECOVERING FROM BRAIN INFECTION   I was sitting on top of a beautiful sand dune watching the sun disappear into the ocean, when I realised that I was no longer fit to do my job. I had travelled here with a group of writers to draft a story for a German […]

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Audrey's story

Audrey writes about the early signs of her illness as well as the long term affects encephalitis has had on her life after being diagnosed at age 58.

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Bruno's Story

My encephalitis started suddenly from one day to the next. I was 16 at the time, and I was half way through my lunch hour when it happened. All of a sudden and without any warning, I felt very dizzy and lost all sense of balance. I spent a good deal of the afternoon with […]

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Brie's Story

In November 2019 I started to feel run down. Initial diagnosis was an ear infection. However, after a week of antibiotics and steroids I wasn’t any better.

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Aurelio's Story

My father, Aurelio, was diagnosed with HSV-1 Encephalitis in October 2020. He does not remember much of what happened to him except vivid dreams and hallucinations, so I’m here to tell his story and spread awareness on his behalf.  

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Aurelio's story

Aurelia became poorly with HSV encephalitis in 2020. His daughter, AnnaMaria, shares his story.

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Dawn's story

Dawn - who was affected by Herpes simplex virus encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.

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