Donate

News

Reggie's Story

Reggie was four-years-old when he became poorly with COVID-19 encephalitis. His parents tell his story.   Sunday, the 7th of February, 2021, was a day we as a family will never forget as this was the start of something that would change our thought process through life forever. Our son Reggie, four, started out with […]

Read Story

Herpes Simplex Encephalitis Lived Experience - Natasha's Story

Natasha had encephalitis when she was just two years old. Here, she shares examples of her lived experience including fatigue and changes to her co-ordination.

Read Story

Maddi's Story

Before November 2015, my daughter Maddilyn was a ‘typical’ 5 year old (writes Tricia). She was silly, loud, full of energy, and bit sassy. She had always been a kind and affectionate child. She was helpful and mindful of others, until one day, she wasn’t. Suddenly, Maddilyn became sarcastic, aggressive and combative. Everyday things became […]

Read Story

Viral Encephalitis Lived Experience - Ken's Story

Ken, who was diagnosed at just 2 years old, talks about his experience of viral encephalitis and growing up with very little information in the 60's and 70's.

Read Story

Anti-NMDAR Encephalitis Lived Experience - Kelly's Story

Kelly talks about her experience of having meningococcal encephalitis as a seven month old and then 3 subsequent experiences of encephalitis including Anti-NMDAR encephalitis.

Read Story

Isabella's Story

Towards of the end of the half-term holidays in October 2017, my daughter Isabella went from being a lively, bubbly nine-year-old to suddenly complaining of headache and flu-like systems (writes mum, Madalen). Over the weekend, Isabella would only sleep and drink water and go to the bathroom when she needed. She did not have much […]

Read Story

Gavin's Story

This is the story of Gavin Lingenfelter, the strongest person I know. If you look at Gavin, you see a very handsome young man, who looks to have it all together. What you don’t see is the struggle inside that he deals with daily. Gavin was born a healthy 7lb, 7oz, 21in long, baby boy. […]

Read Story

Gary's Story

I lived in Detroit, Michigan, in February 1950. I was eight years old and in the third grade. I contracted the measles, which transitioned into encephalitis. The only symptom I had suggesting that it was encephalitis was I that could not stay awake. My mother telephoned my doctor and he said for her to call […]

Read Story

Erin's Story

This story is about our daughter and the fateful day in 2014 which changed the course of our life (writes mum Michelle). Erin, who had just turned five, and our seven-year-old son Jack had both come home from school with flu-like symptoms, a fever, lethargy and a runny nose. We dosed them both up and […]

Read Story

Denis' Story

When I was a wee lad in 1952, I lived in Springburn, the Railway Capital of Scotland, amidst the stark dull and grey environs of smoke smitten buildings of the engines of empire, as Glasgow was then known as the second city of Empire. On a sadly eventful day, a mother took her infant son […]

Read Story

Charlie's Story

By Charlie’s mum and dad, Louise and Lee. Charlie will be 10 on the 9th March 2021 and we are nearly two years on from him falling ill with ADEM in February 2019. Towards the end of January 2019, Charlie came down with a cold and mild fever. We kept him off school to rest and take […]

Read Story

Paula's Story

Paula became poorly with viral encephalitis just after her first birthday party.

Read Story

Ana's Story

Ana was a happy 10-year-old just finishing the 4th grade when she came down with flu-like symptoms

Read Story
Main Menu