LGi1 Autoimmune Encephalitis – Graeme’s Story

Graeme shares his lived experience of LGi1 autoimmune encephalitis.

Graeme shares his experience of developing sudden, involuntary spasms in early 2022 that gradually worsened and disrupted his daily life. Despite repeated medical consultations, his symptoms were misdiagnosed or overlooked for nearly two years. The episodes, later identified as dystonic seizures, were triggered by stress, fatigue, and everyday activities.

 

If you would like to speak to us about encephalitis, please contact our helpline.

Recorded as part of My Brain; My Story October 2025.

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