Herpes Simplex Encephalitis Lived Experience – Lucy’s Story

Lucy shared her lived experience of Herpes Simplex Encephalitis.

Lucy, from London, shares her lived experience of Herpes Simplex Encephalitis.

Lucy began experiencing flu-like symptoms in the spring of 2006.

Within weeks, she was hospitalised and had a number of seizures on the day she was admitted.

Thankfully, the consultant who treated Lucy recognised her condition and she was immediately treated with Acyclovir.

Lucy was off work for three months and would have a slow recovery, losing her short-term memory and the ability to do simple maths.

She would forget names, faces, and places.

Her hearing was also affected and, as a result, she has been left with tinnitus.

In 2014, Lucy became a volunteer for Encephalitis International and has become a key support volunteer with the charity, also helping to raise lots of awareness through her lived experience of herpes simplex encephalitis.

Lucy shared her story for My Brain: My Story in October, 2023.

Learn more about Herpes Simplex Encephalitis

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Page Created: 13 December 2023
Last Modified: 15 July 2024
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