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Encephalitis International

What is encephalitis?

Encephalitis is an inflammation of the brain. It is caused either by an infection invading the brain (infectious encephalitis) or through the immune system attacking the brain in error (post-infectious or autoimmune encephalitis).

1.5M

People are affected by encephalitis globally each year

78%

of people across the world do not know what encephalitis is

224M

People reached during our 2024 World Encephalitis Day campaign

Your Stories

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Viral Encephalitis Lived Experience — Graham and Sandra's story

During the My Brain: My Story event at the Liverpool Medical Institution, Graham delivers a presentation on the effects of viral encephalitis on him and his wife Sandra 22 years ago and how their family continue to manage its outcomes together.

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Autoimmune Encephalitis Lived Experience - Diane's Story

Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure.

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Lived Experience of Encephalitis — Eduarda's Story

"After the three days I only got worse, so my mum took me to the hospital again. She later told me that on the way to the hospital I started saying things that didn’t make sense. I asked her several times where we were going and why. Within one hour of arriving at hospital, I had two seizures and was sent to the ICU. I don’t have any memory of this, as a matter of fact, I don’t have any memory of most of 2022..."

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One person is diagnosed with encephalitis every minute.

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The above number reflects how many people have been diagnosed so far this year.
Support us so they don’t have to face that diagnosis alone.

Donate

Make a donation today

One person is diagnosed with encephalitis every minute, and life for them and their family will never be the same again. Make a donation today and help us build a world without death and disability from encephalitis.

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Upcoming Events

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World Encephalitis Day Alliance 2025 - Conference & Conversations (In Person event only)

3 days of inspiring talks, networking, and thought-provoking discussions in person (cannot be attended virtually) Come join us at the Kinne Auditorim, Mayo Building, Mayo Clinic Jacksonville Fl for a three day event filled with insightful sessions, engaging discussions, and opportunities to connect with others that have been affected by encephalitis. The WEDA 2025 event […]

7 - 9 February 2025
Mayo Building, Mayo Clinic, 14301 San Pablo Road South, Jacksonville, FL 32224
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Anti NMDA Encephalitis Webinar - patient event (online)

Please note that this is an online event aimed at patients and their caregivers/families. Invited Speaker: Associate Professor Stacey Clardy Department of Neurology, University of Utah, Salt Lake City, Utah, US. The webinar will consist of a 30 minute presentation by Dr Stacey Clardy following by a 20 minute Q&A. There will be an opportunity […]

19 March 2025
Online
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My Brain & Medicine 2025

  My Brain & Medicine 2025 – Registration is now open (virtual event) Join us online for a patient event where we will be joined by a host of professional and lived experience speakers. The presentations are aimed at patients, carers and family members with an interest with encephalitis. Starting on Monday, April 28, 2025 at […]

28 April 2025
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Page Created: 3 October 2023
Last Modified: 10 December 2024
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