Shirley, who works as a clinical instructor nurse in the Philippines, shares her daughter, Shiloh’s, experience of autoimmune encephalitis.

Before her illness, Shiloh loved driving, racing, fitness, nature, friends, and work. In 2022, her life changed dramatically as worsening symptoms including headaches, hallucinations, memory loss, seizures, and physical complications which led to a diagnosis of autoimmune encephalitis and a long, intensive hospital stay. Her recovery required ICU-level care at home and immense emotional, physical, and financial support from her family and community. Today, Shiloh continues to heal and has regained independence, with her family reflecting on the power of faith, resilience, love, and positivity throughout their ongoing journey.

PLEASE NOTE There are some photographs and video footage focusing on the recovery and care at home which may include brief clips of seizure activity which you may find upsetting and may cause distress.

This video was recorded as part of the My Brain; My Story event in 2025

if you would like to speak to someone about encephalitis, please contact our helpline.