Influenza Encephalitis Lived Experience- Audrey B's Story

Audrey's mum talks about how Audrey had encephalitis when she was just 4 years old and shares her experience of the flu like symptoms.

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Mark's Story

Mark became ill with viral encephalitis caused by the Epstein Bar Virus when he was a teenager. Now 33, he reflects on his journey. I feel ill in my first year of college at the age of 17. My parents told me at the time I was complaining of headaches in the run up to […]

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Juliana's Story

It all started in the first week of my freshman year of high school when I was only 14 years old. I began to get very anxious all the time, I would have fuzzy thoughts and I was not able to concentrate during class. I thought this was all part of the nerve-wreck of starting […]

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Elisabeth's Story

My name is Elisabeth. I am a French student and I’m 23 years old. My parents are married and I have two younger brothers. I complain a lot. I did before it happened to me. But I am conscious that I am a lucky woman. A survivor. It has been four years since I got […]

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Ger's story

Ger tells the story of his three experiences with Anti-NMDAR encephalitis and how it affected the course of his life.

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Cerys' Story

My daughter was diagnosed with Anti-NMDA Receptor encephalitis just before her 13th birthday. I had never heard of this disease before and it has been a scary year, constantly worrying of a relapse and having little information about this disease. Encephalitis International’s website has helped so much. Being able to read other people’s stories and their roads […]

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Bruno's Story

My encephalitis started suddenly from one day to the next. I was 16 at the time, and I was half way through my lunch hour when it happened. All of a sudden and without any warning, I felt very dizzy and lost all sense of balance. I spent a good deal of the afternoon with […]

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Kelly's story

My name is Kelly and I have had encephalitis four times and meningitis once.

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Ana's Story

Ana was a happy 10-year-old just finishing the 4th grade when she came down with flu-like symptoms

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Anais' Story

When I was 15, my brain rewired. It’s an experience that honestly changed my life and everything that has happened since has been a result of it.

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Aliya's Story

Aliya was a 20-year-old college junior in Massachusetts, USA, when she was diagnosed with autoimmune encephalitis in December, 2019.

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Alex's Story

Alex had just started studying music at a university in Nashville when he became poorly with Epstein-Barr viral encephalitis. This is his story.

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