Here is a collection of films made by the Encephalitis Society featuring young people sharing their experiences of encephalitis. Jasmine and Thomas have both been living with parents affected by encephalitis since they were little. Alexander, Alison, Claudia, Paul, Rochelle and Roz have all been affected by encephalitis in their young lives. Thank you to each and every one of our contributors for sharing your stories with the community. 

Alexander's Story

Alexander was affected by Acute disseminated encephalomyelitis (ADEM) at the age of 6. In this film he shares his story and experiences with us:

Alison's Story

Alison was affected by ADEM when she was 6. In this story she tells us what impact encephalitis has had on her growing up:

Claudia's Story

Claudia was an active 20 year old when she was affected by post-infectious autoimmune encephalitis. She talks openly about her recovery and how encephalitis has affected her life:


Jasmine's Story

Jasmine, aged 13 (whose mum was affected by infectious encephalitis before she was born) tells us about how encephalitis has impacted her life. She talks about being a young carer, family life and shares her advice for other families and children living with the effects of encephalitis:

Paul's Story

Paul was 16 when he was affected by encephalitis. He shares his journey to diagnosis, return to education, and reflections on his recovery:

Rochelle's Story

Rochelle was in her third year of medical school when she was affected by encephalitis. She talks about her initial symptoms and illness, recovery, relapse, and rehabilitation:

Roz's Story

Roz was studying for her GCSEs before being affected twice by anti NMDA receptor encephalitis. She shares her illness journey and advice for returning to education:

Thomas's Story

Thomas was a toddler when his mum was affected by encephalitis. In this story, he tells us what is it like to grow up with brain injury a part of his family:

If you are a young person interested in sharing your experiences with encephalitis with the community, please get in touch with us via email