Types of service offered by the Encephalitis Society Neuropsychology Service

1.    Cognitive Assessment

This is an assessment of thinking skills such as attention and concentration, memory, and problem solving abilities. An assessment of this nature helps to improve understanding of strengths and weaknesses in thinking skills after being ill with Encephalitis. It can also help to determine which strategies might be useful for helping to manage everyday tasks such as shopping, studying or returning to work.

2.    Cognitive Rehabilitation

Cognitive rehabilitation involves introducing strategies that might be useful for managing thinking problems. Examples of strategies include the use of ‘compensatory aids’ such as a diary, alarm or camera for helping to minimise the impact of problems with memory.

3.    Therapy

Psychological therapy involves developing an improved understanding of problems and implementing techniques for improving cognitive, behavioural and emotional functioning. The aim is to help people engage in roles and relationships that are important to them. After being ill with Encephalitis therapy might involve:

  • Improving insight into the nature of problems experienced
  • Managing low mood
  • Reducing stress and anxiety and improving confidence
  • Improving anger management
  • Promoting assertiveness
  • Adjusting to difficulties and achieving acceptance of changes

We recognise that Encephalitis impacts not only on the person that was ill but also on their loved ones. For this reason we provide psychological support to carers affected by Encephalitis. We also offer relationship counselling.

4.    Behaviour Management

When more seriously affected after being ill with Encephalitis, it can be difficult for people to manage their own behaviour. They may not recognise, for example, the full extent of their difficulties with aggression or disinhibited social behaviour, including associated risks posed to themselves and the impact of their behaviour on others. In such cases, instead of working with the person affected by Encephalitis, it may be more appropriate to work with the individuals’ loved ones and/or paid carers to help devise strategies for managing these behaviours.

5.    Capacity Assessment

For some, decision-making ability is adversely affected after being ill with Encephalitis. Capacity Assessment involves evaluating an individual’s ability to make certain decisions such as regarding their finances, where to live, or how to instruct a solicitor.

6.    Consultation

Consultation can be helpful to assist individuals and their families/ carers understand the problems displayed by a person who has been ill with Encephalitis, as well strategies that may be useful for managing problems. Consultation might involve providing specialist advice to staff in residential facilities.

7.    Expert Witness Reports

We specialise in completing expert witness reports for people who have experienced Encephalitis and are pursuing a compensation claim. More information about this can be obtained by contacting the service.

How are we funded?

We predominantly rely on charitable donations for running The Encephalitis Society Neuropsychology Service. This is supplemented with money obtained from medicolegal work undertaken.

Cost of accessing the service

We recognise that many people with Encephalitis and their carers may find it difficult to contribute to the costs of neuropsychological support (both assessment and therapy) due to a range of factors including, for example, the impact of the illness on their ability to work. Others are in a more fortunate position. Currently, we are endeavouring to provide neuropsychological support for free. However, we do accept donations and hope that you will make a contribution if you feel able to – especially if you feel that we have done a good job!

However, if you have a compensation claim relating to Encephalitis (i.e., a medical negligence claim) then there will be fees associated with accessing the service. You should contact us to discuss this further in the first instance.

We are planning to run a pilot of the Encephalitis Society Neuropsychology Service for approximately six months, after which time we will need to evaluate the viability of the service remaining free for access in the longer-term. We also plan to collect the views of our members as this is very important to us.

How do I obtain referral to/ refer to the service?

There are a number of ways that people can be referred to the service. These include:

  • Referral from all health and social care professionals (e.g., GP, Social Worker)
  • Medicolegal referrals (e.g., Case Manager, Solicitor)
  • Self-referral

Please submit a copy of the referral form.  If you are making a self-referral, please contact our support line to obtain assistance with completing the form on: 01653 699 599.