Team Encephalitis Support Volunteers

Team Encephalitis Support Volunteers are people who have personal experience of encephalitis, either directly affected or as a family member/carer or friend. They have completed the Society's Support Volunteer Training which includes a DBS police check and Safeguarding training.

If you would like to get in touch with one of our Support Volunteers please contact Laura, Volunteer Manager -[email protected]

Volunteer-led Regional Virtual Gatherings

A number of our trained Support Volunteers also hold monthly regional virtual gatherings on the Zoom app. These are a fantastic way to meet and connect with other members of the Society in your area who have been directly or indirectly affected by encephalitis.

You can find a list of when these are, here under the Volunteer-led Regional Virtual Gatherings section of the page.

Keep up-to-date with all the latest news and events of the Encephalitis Society by becoming a free member today.

Become a Member

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Latest

Reggie's story

Reggie was four-years-old when he became poorly with COVID-19 encephalitis. His parents tell his story.
London Marathon 2021

Find out more about our runners in the London Marathon 2021
Chiltern 50 Challenge

24 September 2022, Chiltern 50 Challenge - This challenge covers some of the best of the Chilterns countryside. You can Walk, Jog, or Run along historic trails and over rolling hills. Starting & finishing at our Base Camp in Henley-on-Thames, there's a Saturday night celebration BBQ & entertainment with camping options. Choose from the full 50km challenge, or the 25km half distance.
Thames Bridges Trek

10 September 2022, Thames Bridges Trek - Join 2000 trekkers as we venture 25km across the Capital taking in unrivalled views of the skyline from its best vantage points. Setting out from Putney Bridge - it's East towards the City, zig-zagging over the array of historic bridges - each with its fascinating story.

Encephalitis Support Forum

Our online community where members of the Encephalitis Society can connect and support others who have been directly or indirectly affected by encephalitis
Virtual gatherings

Join the staff and supporters of the Encephalitis Society in a regular online chat. Meetings held weekly.
Connection scheme

The Connection Scheme enables people affected by encephalitis and their families to make contact with others in similar situations to themselves.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.