Team Encephalitis Support Volunteers

Team Encephalitis Support Volunteers are people who have personal experience of encephalitis, either directly affected or as a family member/carer or friend. They have completed the Society's Support Volunteer Training which includes a DBS check and Safeguarding training, to provide information and a listening ear to people affected by encephalitis and their families.

If you would like to get in touch with one of our Support Volunteers please contact Laura, Volunteer Manager -[email protected]

Volunteer-led regional Virtual Gatherings

A number of our trained Support Volunteers also hold regular regional virtual gatherings on Zoom. These are a fantastic way to meet and connect with other members of the Society in your area who have been directly or indirectly affected by encephalitis.

We have the following set up so far this year:

England
Portsmouth - Saturday 20 March
London - Saturday 27 March

Scotland
Saturday 20 March

Northern Ireland
Saturday 10 April
Saturday 8 May
Saturday 12 June

Republic of Ireland
Saturday 27 March
Saturday 24 April
Saturday 29 May

If you are interested in joining any of the above - or would like to set one up in your area in the UK - please email Laura, Volunteer Manager - [email protected]

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Latest

Garfield Weston Foundation awards £45,000 grant

The Garfield Weston Foundation has awarded the Encephalitis Society a £45,000 grant
An interview with Rebecca Adlington - podcast

Rebecca Adlington talks about the Tokyo Olympics, motherhood, her connections to encephalitis, the pandemic and her experiences winning four Olympic medals in the swimming pool
Fatigue and encephalitis - podcast

Donna Malley, from the Oliver Zangwill Centre, answers your questions about fatigue and encephalitis
About us

Encephalitis Support Forum

Our online community where members of the Encephalitis Society can connect and support others who have been directly or indirectly affected by encephalitis
Virtual gatherings

Join the staff and supporters of the Encephalitis Society in a regular online chat. Meetings held weekly.
Connection scheme

The Connection Scheme enables people affected by encephalitis and their families to make contact with others in similar situations to themselves.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.