Our new site has just launched, and some of the pages are currently still under construction.
We thank you for your patience, please don't hesitate to contact us if you have any questions or queries.
by Bonnie-Kate Dewar, Clinical Neuropsychologist
Following Encephalitis, some people may experience emotional changes including low mood, increased anxiety, mood swings and frustration. These changes may reflect the direct effect of Encephalitis on brain systems that help us to perceive understand and express our emotions. Emotional changes may also reflect an individual’s reaction to the difficulties in everyday functioning as a result of cognitive, motor or behavioural impairments subsequent to Encephalitis.
The emotional impact of Encephalitis will be different for each individual depending on the brain systems affected by Encephalitis, their personality, their emotional state prior to their illness, and their social support network.
Emotional changes include:
Following Encephalitis, some people may experience uncharacteristic extremes of emotion, which are difficult to control. For example, they may find that they become very tearful more easily without warning or in response to something sad, such as a movie. Others find that they laugh or smile inappropriately, such as when being told a sad story or bad news.
For others, rather than there being an increase in emotion the brain injury can cause what seems to be an absence or dulling of emotion. A person may intellectually 'know' that something is distressing, but they are detached from the experience and do not 'feel' distressed or upset.
Frustration and Anger
Frustration and anger are a common experience following Encephalitis and may reflect a change in personality. Anger may reflect the direct effect of Encephalitis on the brain systems that control emotional responses. For example, following Encephalitis a person may act inappropriately and say or do things without thinking due to changes in frontal system functioning. It can be more difficult to control emotional reactions with an increase in anger outbursts. At the extreme, this may include acting with verbal or physical aggression. Frustration, irritability and anger may also be a response to the everyday difficulties that arise from cognitive, motor or behavioural changes. For example, it can be irritating to misplace belongings or not be able to get the words out when you want to. Other people may express frustration at not being able to return to work or join in their usual social activities.
Perception of Emotion
Encephalitis may affect the brain systems involved in the perception and understanding of emotion. This may make it difficult to ‘read’ and understand emotions in others as portrayed by their tone of voice or facial expression. Difficulty recognising and understanding these non verbal social cues may lead to misunderstandings and social difficulties.
An increase in anxiety and worry may occur after Encephalitis. This may reflect the direct effects of Encephalitis on the emotional regulatory centres of the brain, such that the sense of threat is amplified or there is difficulty taking on feedback to dampen down an increased sense of anxiety. Anxiety can also be a response to the changes to an individual’s world after Encephalitis as a person tried to make sense of cognitive, emotional and behavioural changes and the limitations to everyday life imposed by these changes. Previous coping strategies to manage stress or worry may no longer be available. Some people experience worry and anxiety related to their memory and attention problems as they find it difficult to keep track of plans, what they have done or where they have put things.
Depression is common response to the life changes that occur following Encephalitis. Low mood and symptoms of depression may reflect the difficulty of achieving personal goals or taking part in activities, including work or social groups. A person may mourn the end of a relationship, the inability to pursue a former active social life or chosen career, or changes to family roles and capabilities. Mood changes can also reflect changes to self-concept with a discrepancy between a person’s self-image and goals before the Encephalitis and how they see themselves after the Encephalitis with associated cognitive and behavioural changes. Feeling sad is distinct from the pervasive low mood associated with depression. Referral to a clinical psychologist or clinical neuropsychologist is recommended to help manage depression following Encephalitis.
Changes in self-concept:
A greater understanding of the psychological reaction to Encephalitis can lead to the development of appropriate ways to help people begin to make sense of these changes and have a better social outcome. Following Encephalitis many people experience a change to their sense of who they are. This may be due to changes in what they are able to do at home, at work, at school, with their family or friends due to the direct effects of the illness. There may be a discrepancy between ‘who I was’ before my illness compared to ‘who I am now’. It has been suggested that the more a person perceives a discrepancy between who they are now and who they were before the illness, the higher the level of emotional distress.
Help and support
Support from a clinical psychologist or neuropsychologist may help to develop appropriate coping strategies for symptoms of low mood and anxiety post Encephalitis. Access to good rehabilitation services adopting a bio-psychosocial approach which supports a person in hospital, the community, at school and at work is essential.
It is also important for people to re-connect with their previous social roles. Group memberships, e.g. a sports team, church choir, or book club, act as sources of both practical and emotional support. This is partly because group memberships help us to define who we are and thus if a person can remain a member of their social group following Encephalitis, this may help to lessen their sense of being different to the person before the Encephalitis and reduce the impact of emotional changes.
Coping emotionally following Encephalitis is an on-going journey which can potentially lead to better relationships with family and friends, improved functioning at work or school, and so potentially a better quality of life.
FS029V2 Emotional Changes after Encephalitis: Page Created: July 1999/Last Updated December 2014/ Review date: December 2017
The Encephalitis Society is the operating name of the Encephalitis Support Group which is a registered Charity and Company Limited by Guarantee.
Registered in England and Wales No. 4189027. Registered Office as above. Registered Charity No. 1087843.