Download PDF Social consequences of encephalitis

By Alina Ellerington, Encephalitis Society

Following encephalitis, it is common for people to experience changes in their thinking, behaviour and feelings. These changes may make it difficult to take part in everyday activities such as work, driving, running a household, or making plans with friends or family.

Inability to drive

Driving involves many more complex skills than simply the mechanical ability to drive a vehicle. Concentration difficulties, memory problems, difficulties in learning, a slowed response to situations and emotional problems are all common after encephalitis and may affect the ability to drive. In some cases more obvious physical or visual impairments or seizures may pose significant difficulties for those who want to return to driving.

Inability/difficulty to return to work

Following encephalitis some people may find they are able to return to their occupation with little or no adjustment. However for others, return to work is big challenge and sometimes impossible. Returning to work can be hampered by many things, such as memory problems, tiredness, mood swings, behavioural constraints, reduced organisational skills, finances, personal or family worries and stress, prejudices of potential employers etc.

Financial difficulties

Being in hospital, caring for or visiting somebody in hospital, not being able to go back to work and insurance problems may impact on people’s finances. This can add at the stress brought up already by the illness and its consequences.

Altered family relationships

Encephalitis may have an impact on family relationships. All families are different, but no matter how well a family is functioning, there may be major challenges ahead. Initially there may be relief that a loved one has survived the illness but the person themselves may have little or no recollection of the illness.  This can bring up a conflict of feelings with relief and joy on one side, and confusion, even anger, on the other, as the person affected finds that they are less able to function as they once did.  

When encephalitis affects a family, its coping strategies will be tested. Spouses may feel isolated and trapped as roles are reversed and relationships put under strain. Children may also experience emotional problems and sometimes their needs can be overlooked.  Extended family and friends often want to help but don’t know how.  Accepting the situation can help, however this is not always easy and may be difficult to achieve. Not all families have good relationships and sometimes the sudden impact of encephalitis adds to already strained relations. Typically families will go through a process of coming to terms with the consequences of the illness then finding ways of coping.


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FS020V1 Social consequences of encephalitis

Date created: June 2017; Review date: June 2020

Disclaimer: We try to ensure that the information is easy to understand, accurate and up-to-date as possible. If you would like more information on the source material the author used to write this document please contact the Encephalitis Society. None of the authors of the above document has declared any conflict of interest which may arise from being named as an author of this document.