Encephalitis Information Week

Day Six: Saturday, October 23, 2021.

The first annual Encephalitis Information Week (October 18 to 25) is aimed at healthcare professionals and the general public and helping them to discover more about encephalitis, the latest in research, as well as our resources which may be useful for managing encephalitis and recovery and rehabilitation.

Today we look at recovery and rehabilitation.

Recovery and rehabilitation after encephalitis

The brain takes much longer to recover from an injury than other parts of the body such as muscles, bones and skin. 

Recovery can be a long and slow process and should not be rushed. The main aim of rehabilitation is to help the person affected by encephalitis develop new skills, habits and strategies for coping with their remaining difficulties.

Depending on the nature of the person’s problems, rehabilitation may range from residential programs to home-based client services.

The needs of each patient are unique and multiple. No two patients have the same outcomes.

Input from various professionals, tailored to the individual needs is necessary (neuropsychologist, educational psychologist, occupational-therapist, speech and language therapist, physiotherapist, psychiatrist, dietician and/or nurses specialist).

Coming to terms with the problems left by encephalitis can be potentially distressing and challenging for everyone concerned. Unlike other parts of the brain, you cannot see the brain injury or repairing. People assume all is back to normal when in fact some areas are still in recovery. Encephalitis can be described as an invisible disability which affects not only one person, but the whole family. Emotional support for the whole family may be needed.

Guidelines for recovery

  • What is the long-term prognosis for people affected by encephalitis?

Rehabilitation after encephalitis

  • What does rehabilitation mean and what it can and cannot do

Professionals involved in recovery and rehabilitation

  • Various healthcare professionals will be involved in your recovery and rehabilitation after encephalitis

Neuropsychological assessment

  • What is a clinical neuropsychologist and what is it that they do?

Dr Thomas Pollak - Clinical Lecturer in Psychiatry at King's College London - talks about the role of a clinical neuropsychologist.

Research Study: Can you help?

Dr Pollak has also just launched a major new study looking at the mental health and well-being of people after encephalitis.

This is an online questionnaire  - open to anyone 18+ around the world - which could make a real difference to the mental health and well-being needs of people who have had encephalitis.

It can also be filled out by carers on behalf of their family member or friend.

Take part

Practical strategies for recovery and rehabilitation

We have a selection of factsheets which may be helpful for anyone recovering from encephalitis.

Managing Anger after encephalitis

Depression after encephalitis

Driving after encephalitis

Managing Fatigue after encephalitis

Managing memory problems after encephalitis

Holidays and respite breaks

Social care needs

Behaving management in children after encephalitis

Meet other Members

We offer opportunities for members from across the world to meet other, either virtually or in-person (COVID-19 permitting).

Become a member

  • We offer free membership for survivors, family members and medical professionals no matter where you live in the world.

Connection Scheme

  • Our connection scheme enables people affected by encephalitis and their families to make contact with others in similar situations

Virtual Gatherings

  • Introduced at the beginning of the COVID-19 pandemic, our virtual gatherings are held weekly with special monthly meetings also organised.

Encephalitis Support Forum

  • This is an online community where members of the Encephalitis Society can connect and support others. 

If you have found this information helpful, please consider making a donation to help us continue our life-saving work in the future.

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