Support line: +44 (0)1653 699599
Your stories help to raise awareness of encephalitis among the general public and encourage and inspire others whose lives are only just beginning after encephalitis.
We also welcome short films, vlogs, music and more - if you would like to submit any media to us for consideration, please email [email protected] or call +44(0)1653 692583.
A Letter from Your Brain by Stephanie St. Claire may help you understand what happens with your brain after encephalitis. Read more
Composer and theatre writer Ailís Ní Ríain was five-years-old when she became ill with encephalitis Read more
Aisling, from Northern Ireland, became poorly with Rhombencephalitis in 2018. This is her story Read more
Alex had just started studying music at a university in Nashville when he became poorly with Epstein-Barr viral encephalitis. This is his story. Read more
Aliya was a 20-year-old college junior in Massachusetts, USA, when she was diagnosed with autoimmune encephalitis in December, 2019. Read more
Amy, from Sydney, Australia, underwent numerous tests before her eventual diagnosis with autoimmune encephalitis. This is her story. Read more
Anaïs, from Dublin, was 15 when she fell ill with encephalitis and her 'brain rewired'. This is her story. Read more
Ana, from Minnesota, was a happy 10-year-old when she came down with flu-like symptoms. Within days, she couldn't eat, write or wash her hair. She was later diagnosed with anti-NMDA receptor encephalitis. Read more
Andrew was affected by rhombencephalitis last year. Sadly, he passed away. His mum, Karen, talks about her son's illness and shares her eulogy to him. Read more
Annette, from East Sussex, had heard of encephalitis but didn't know what it was until she fell ill with meningoencephalitis in 2018. Today, she is still discovering what the side-effects of her illness will be. Read more
Becky, who had encephalitis while she was at school, shares her story with us. Read more
Bev talks about being the full time carer for her son Richard who was affected by encephalitis in his early 20s. Read more
Brie writes about how art has helped during her recovery from HSV encephalitis Read more
Bruno fell ill with viral encephalitis when he was 16 years old. He explains the impact it had on him at the time, and today as a 49-year-old father of two. Read more
Kerry talks about her daughter Cerys who was diagnosed with Anti-NMDAR encephalitis just before her 13th birthday Read more
Charles' circumstances dramatically changed when, in November 1981, he contracted viral encephalitis whilst loading a ship in Cardiff. Read more
Charlie became poorly with ADEM in February 2019. His mum, Louise, tells his story. Read more
Chelsea talks about when she contracted Japanese Encephalitis whilst in Thailand. Read more
WATCH - When Clair woke up in hospital after falling ill with encephalitis, she had no idea that the people by her bedside were her parents. Her dad, Mark, tells her story. Read more
Corinna, a travel writer from Australia, fell ill with Herpes Simplex Virus Encephalitis and talks about her illness and the lessons she has learned as she continues her recovery Read more
Dave was affected by autoimmune encephalitis in January 2016. In part one of his story, he writes about falling ill and his treatment. Read more
Dave, from Midlothian, Scotland, was affected by autoimmune encephalitis in January 2016. In part two of his story, he gives an update on his recovery and progress. Read more
Dawn - who was affected by HSV encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life. Read more
Denis, from Scotland, developed encephalitis as an infant. Now approaching his 70s, he talks about his life, the challenges he has faced, and the successes he has enjoyed Read more
Elisabeth, from Tours, France, 'discovered hell' when she fell ill with autoimmune encephalitis as a 19-year-old. Read more
Erin, from New South Wales, Australia, was five when she fell ill with acute disseminated encephalomyelitis (ADEM). Her mum, Michelle, tells her story. Read more