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  1. About us
  2. Our policies

Our policies

Complaints Policy

Complaints Policy

Our policy on complaints. Read more

Published: 27th April, 2020

Updated: 8th March, 2022

Author: Phillippa Chapman

Cookie Policy

Cookie Policy

Read our policy on cookies used whilst visiting our site. Read more

Published: 25th March, 2014

Updated: 20th August, 2019

Author:

Data protection and security

Data protection and security

Encephalitis Society data protection and security policy. Read more

Published: 3rd July, 2019

Updated: 20th August, 2019

Author: Alina Ellerington

Financial support statement

Financial support statement

Policy Statement on funding patient medical fees and grants to individuals Read more

Published: 11th November, 2020

Updated: 21st March, 2022

Author: Alina Ellerington

Fundraising Policy

Fundraising Policy

We are committed to being open about how we fundraise and this page gives supporters more information. Read more

Published: 20th August, 2019

Updated: 6th July, 2020

Author: Phillippa Chapman

Safeguarding

Safeguarding

The purpose of these policies is to make sure that the actions of any adult in the context of the work carried out by the Society are transparent and safeguard and promote the welfare of all children and adults at risk. Read more

Published: 19th March, 2019

Updated: 4th March, 2023

Author: Alina Ellerington

Statement of activities

Statement of activities

The activities we undertake towards achieving our aim are to provide support and information, raise awareness and promote and collaborate on research on encephalitis. Read more

Published: 17th July, 2018

Updated: 19th October, 2021

Author: Alina Ellerington

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Showing 10 of 7

Latest

  • Patient and Public Involvement (PPI) Research Manager

  • Senior Medical Writer

  • Neuropsychological outcomes following autoimmune encephalitis (AIE)

  • Balfour & Manson LLP

    Balfour & Manson LLP

Most read

  • NMDAR antibody encephalitis

    NMDAR antibody encephalitis

    NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.

  • Herpes Simplex  virus encephalitis

    Herpes Simplex virus encephalitis

    Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.

  • What is encephalitis?

    What is encephalitis?

    Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.

  • Guidelines for recovery

    Guidelines for recovery

    No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.

  • Limbic encephalitis

    Limbic encephalitis

    The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.

  • Death from encephalitis

    Death from encephalitis

    Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.

  • West Nile encephalitis

    West Nile encephalitis

    West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.

  • Encephalitis: after-effects, recovery and rehabilitation

    Encephalitis: after-effects, recovery and rehabilitation

    This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.

  • Emotional and behavioural changes

    Emotional and behavioural changes

    Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.

  • Get support

    Get support

    Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.

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Contact us

Encephalitis Society, 32 Castlegate,
Malton, North Yorkshire YO17 7DT
United Kingdom
T: +44(0)1653 692583
E: [email protected] (general enquiries)
E: [email protected] (support enquiries)
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The Encephalitis Society is the operating name of the Encephalitis Support Group which is a registered Charity and Company Limited by Guarantee.

Registered in England and Wales No. 04189027. Registered Office as above. Registered Charity No. 1087843. Registered Charity in Scotland: SC048210

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