Our impact

What is the Encephalitis Society and what is it that we do?

For nearly 30 years, we have been building better futures by driving research, accelerating awareness and saving lives.

We have a global supporter base - including leading experts in the field of encephalitis - who are devoted to helping us to increase understanding of encephalitis among the general public and healthcare professionals.

Please watch the following film to see some of our highlights from 2022 - and keep reading for others ways we have made a difference.

Our Accounts

Here you will find all the information about how we spend the money given to us to achieve our charitable objectives. Read more

Our feedback

Hear from the people that have been helped by the Encephalitis Society. Read more

Our history

The history of the Encephalitis Society Read more

Our stats

Some recent facts and figures about the work of the Encephalitis Society Read more

Research Impact Report

This first research impact report gives some examples of the many ways we engaged in research and the difference we made. Read more

Latest

Carly Skelton

Digital Engagement Manager
My Brain: My Gift - Godfrey's story

Godfrey Smith shares his story and why he supports the Encephalitis Society
Emma Collins

Patient and Public Involvement Manager
Challenge events near me

Do you want to take a challenge for the Encephalitis Society? Wherever you are in the world, we want to help!

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.