Finished grants/projects

Seed funding Brazil

Awarded in 2019, this pilot study aimed to investigate clinical and laboratory aspects of patients who developed encephalitis during a triple epidemic of Dengue, Zika and Chikungunya in Brazil. Read more

Seed Funding Cameroon

Awarded in 2019, this project intends to investigate the aetiologies and pathogen-specific elements in the clinical presentation of encephalitis in HIV-negative adults from urban and rural areas in Cameroon. Read more

Seed funding Columbia University, USA

Awarded in 2020, this study will elucidate possible routes of CNS infection by the virus and identify brain regions and cell types most vulnerable to either direct infection or the effects of systemic cytokines. Read more

SEED FUNDING Memorial Sloan Kettering Cancer Center, USA

Awarded in 2020, this pilot study aims to dissect the mechanisms through which subsets of neurons, specifically dopamine neurons, are susceptible to SARS-CoV-2 infection Read more

SEED FUNDING SENEGAL

Awarded in 2021, this seed funding aims to to increase the knowledge of the viral aetiologies of meningoencephalitis in Senegal. Read more

Latest

Fundraising Relationships Manager
WEDA Conference - Empowering Hope

A three-day World Encephalitis Day event in Jacksonville, Florida, in February 2024. Brought to you by The World Encephalitis Day Alliance
Baroness Fiona Twycross

Baroness (Fiona) Twycross was appointed to the House of Lords in November 2022. She is Education Spokesperson in the Lords and a Labour Whip.
Predictors and psychological outcomes associated with perceived boundary ambiguity in families affected by acute, non-progressive neurological conditions

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.