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The Encephalitis Society

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  1. Get Help
  2. Get information
  3. Information for carers & family

Information for Carers and family

Encephalitis can not only have an impact on the person affected but also their family and friends. Our guides and factsheets offer information for family members, carers, teachers, family doctors and work colleagues as well as opportunities to connect with others whose lives have been affected by encephalitis.

Our award-winning support team are also available to answer any questions you may have. Contact the support team


If you have found this information helpful, please consider making a donation to help us continue our life-saving work in the future.

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Carer and family virtual gathering

Carer and family virtual gathering

We are holding monthly virtual meetings for carers and family members where you can chat and share experiences and make friends. Read more

Published: 11th January, 2022

Updated: 12th August, 2022

Author: Alina Ellerington

Carer's stories

Carer's stories

Coping with the consequences of encephalitis can be highly stressful for the whole family. You may find you are taking a new and responsible role- the carer, but it is likely you may also need support and looking after yourself. Read more

Published: 22nd February, 2022

Updated: 22nd August, 2022

Author: Alina Ellerington

The challenge of caring

The challenge of caring

If you are caring for someone affected by encephalitis, it is important to acknowledge that this is likely to have a significant effect on you, and you too will need support. Read more

Published: 10th July, 2017

Updated: 16th November, 2021

Author: Alina Ellerington

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Showing 10 of 3

Latest

  • Gift in Your Will

    Gift in Your Will

    By leaving a gift in your Will, you can ensure we will be there to help people affected by encephalitis and their families for generations to come

  • Japanese Encephalitis in Australia - The Encephalitis Podcast

    Japanese Encephalitis in Australia - The Encephalitis Podcast

    Dr Lance Turtle joins the Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia since March 2022.

  • Patient and Public Involvement (PPI) Research Manager

  • Senior Medical Writer

Most read

  • NMDAR antibody encephalitis

    NMDAR antibody encephalitis

    NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.

  • Herpes Simplex  virus encephalitis

    Herpes Simplex virus encephalitis

    Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.

  • What is encephalitis?

    What is encephalitis?

    Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.

  • Guidelines for recovery

    Guidelines for recovery

    No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.

  • Limbic encephalitis

    Limbic encephalitis

    The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.

  • Death from encephalitis

    Death from encephalitis

    Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.

  • West Nile encephalitis

    West Nile encephalitis

    West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.

  • Encephalitis: after-effects, recovery and rehabilitation

    Encephalitis: after-effects, recovery and rehabilitation

    This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.

  • Emotional and behavioural changes

    Emotional and behavioural changes

    Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.

  • Get support

    Get support

    Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.

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Encephalitis Society, 32 Castlegate,
Malton, North Yorkshire YO17 7DT
United Kingdom
T: +44(0)1653 692583
E: [email protected] (general enquiries)
E: [email protected] (support enquiries)
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The Encephalitis Society is the operating name of the Encephalitis Support Group which is a registered Charity and Company Limited by Guarantee.

Registered in England and Wales No. 04189027. Registered Office as above. Registered Charity No. 1087843. Registered Charity in Scotland: SC048210

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