Our vision

OUR VISION

A world where encephalitis matters to everyone

OUR MISSION

Building better futures by driving research, accelerating awareness, and saving lives

OUR OBJECTIVES

By 2027, our objectives are to:

Annually increase our income by 10% reaching £1.4 million from a diverse range of sustainable and ethical sources.
Have 50% of the general population aware of encephalitis in 10 countries.
Be meeting the individual needs of 80,000 people through our support services.
Fund or collaborate on six international based research studies or guidelines.
Grow our professional membership by 15% each year and be the go-to resource for professionals worldwide.

OUR VALUES

Our core beliefs shape our culture and our work

Passionate: We are dedicated to making a positive impact in the lives of our beneficiaries

Inclusive: Our aim is for everyone to be respected for who they are and feel supported and empowered

Changemakers: We create the change in the world that makes life better for our community

Latest

WEDA Conference - Empowering Hope

A three-day World Encephalitis Day event in Jacksonville, Florida, in February 2024. Brought to you by The World Encephalitis Day Alliance
Baroness Fiona Twycross

Baroness (Fiona) Twycross was appointed to the House of Lords in November 2022. She is Education Spokesperson in the Lords and a Labour Whip.
Predictors and psychological outcomes associated with perceived boundary ambiguity in families affected by acute, non-progressive neurological conditions
CIELO study

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.