Our vision

OUR VISION

is a world aware of encephalitis, its consequences and the support available

OUR MISSION

is to increase global awareness of encephalitis, saving lives and building better futures

OUR AIM

To improve the quality of life of all people affected directly and indirectly by encephalitis, by:

Providing support and information
Raising awareness
Promoting and collaborating on research

OUR OBJECTIVES

By 2027, our objectives are to:

Annually raise over £5 million from a diverse range of sustainable and ethical sources
Have 50% of the general population aware of encephalitis in 10 countries
To be meeting the individual needs of 80,000 people through our support services
To fund four internationally based research studies
To be the go-to organisation for over 100,000 professionals worldwide.

OUR VALUES

Our core beliefs shape our culture and our work

Passionate: We are passionate about what we do and the difference this makes in the lives of others

Empowering: We empower people to access support and together we find meaningful solutions to their difficulties

Trust: We are talented experts, informed by medical professionals and inspired by people who experience encephalitis

Transparent: We are open, honest and transparent in our decision making and how we deal with people

Accessible: We make it easy for people to access information about our work and the services we provide. We connect people together to share experiences and support each other

Listening: We help people reach a better understanding of encephalitis, their situation and the options open to them

OUR KEY MESSAGES TO YOU

You are not alone, we are encephalitis experts and can provide the support, advice, information and training you need. Encephalitis is serious and indiscriminate - we must all act now to raise awareness of this devastating condition.

Latest

Gavin's story

Gavin, from Kentucky, was four-years-old when he became poorly with meningoencephalitis. His mum, Andrea, writes about his illness, the difficulties he faced, and his new career as a model
22 highlights from World Encephalitis Day 2020

Twenty two highlights from World Encephalitis Day 2020 on Saturday, 22nd February
World Health Organization visit

We recently paid a visit to the offices of the World Encephalitis Day to hand over a 28,000 petition calling on the World Health Organization to talk about why encephalitis matters.
£2.6 million study to look at new treatment for autoimmune encephalitis

A £2.6 million study will investigate new treatments for autoimmune encephalitis

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.