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Online questionnaire for patients, caregivers and clinicians about patient’s information needs in Autoimmune Encephalitis

My name is Ana Vasconcelos and I’m a scientific illustrator, science communicator, and PhD student at the University of Coimbra, in Portugal. In my research, I want to investigate how to design information about Autoimmune Encephalitis that helps patients and their families to better understand their medical condition. For that, I need the help of Autoimmune Encephalitis patients, recovered patients, caregivers, and clinicians.

Are you an Autoimmune Encephalitis patient, recovered patient or caregiver?

I kindly ask you to complete this online questionnaire about your information needs – what you find challenging and
important to understand about Autoimmune Encephalitis as well as the difficulties you face while searching for and
accessing information about your medical condition.

Are you a clinician with experience in diagnosing and/or following-up patients with Autoimmune Encephalitis?

I kindly ask you to complete this online questionnaire to gather your views on topics related to communicating
information to patients with Autoimmune Encephalitis – the challenges you face and your opinion on the topics more
important and more difficult to communicate.

Thank you in advance for your help in achieving the main goal of this project: to design information that promotes
communication and health literacy about Autoimmune Encephalitis!

Page Created: 22 January 2024
Last Modified: 29 January 2024
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