My Brain: My Story - 7 October 2023

We would love you to join us in York, England, - or virtually - at My Brain: My Story this October.

This is an event for anyone who wants to listen to the experiences of people who have been directly or indirectly affected by encephalitis. The cost is £5.00 per ticket.

There will also be opportunities to ask questions of the speakers and join us afterwards for a drinks reception or virtual gathering.

York, Grand Hotel

and

Virtual - Worldwide

Saturday October 7th 2023

Book your place

Highlights 2021

Please Note:

In order to attend My Brain: My Story, you will need to be a member of the Encephalitis Society. Please click on the Membership link to go to the Membership page.

If you have any questions in the meantime, please email or call us on +44(0)1653 692583

The event is kindly been sponsored by :-

Latest

The Encephalitis Society and research

A brief look at how the Encephalitis Society has supported and funded research
Support Research

All donations will be doubled - and support research - during Encephalitis Research Month in June
Encephalitis 2023 Programme

Full Conference Programme to be announced in September. Keynote and guest speakers and final running order for both days confirmed.
Euroimmun UK

Retreat 2023

Why not get away from it all by joining us for three nights at Nanpantan Hall nestled in the heart of Charnwood national forest for our popular Retreat Weekend which will be taking place 13 - 16 November 2023
Family Weekend 2023

Booking now opened! Places are limited, so book early to avoid disappointment! Family weekend is a residential weekend aimed at children and young people up to 25 years old whose lives have been touched by encephalitis.
In-person support groups

We run in-person support groups across the UK and in Ireland. Hosted by our Support Volunteers in the local area, this is an opportunity to meet like-minded people in an informal and relaxed setting.
Online Peer Support Groups

Join the staff and supporters of the Encephalitis Society in a regular online chat. Meetings held weekly and monthly.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.