Coronavirus and encephalitis

This is our homepage for all information about Covid-19 (Coronavirus) and encephalitis.

We have been updating supporters since March 2020, sharing information about the pandemic, factsheets and updates from the Encephalitis Society.

Our services are continuing as normal and if you wish to contact our support team, please do so via the website or by calling +44(0)1653 699599.

We have also been regularly updating our social media channels on Facebook, Twitter, LinkedIn, Instagram and YouTube. If you have anything you would like to include, please get in touch.

Best wishes, the Encephalitis Society team.

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£2.3m study to investigate neurological effects of COVID-19

A £2.3 million study will investigate the neurological or neuropsychiatric effects of COVID-19 Read more

Covid-19 and encephalitis research

COVID-19 research papers Read more

Covid-19 podcasts

Our podcasts regularly look at the impact of COVID-19 on encephalitis, neurology, health and wellbeing. Read more

Covid-19 surveillance programmes

Can you help? Physicians are needed to describe the neurological features of their Covid-19 patients. Read more

COVID-19 vaccination statement

A statement from the Encephalitis Society in relation to the COVID-19 Vaccine. Developed in collaboration with our Scientific Advisory Panel Read more

Latest

WEDA Conference - Empowering Hope

A three-day World Encephalitis Day event in Jacksonville, Florida, in February 2024. Brought to you by The World Encephalitis Day Alliance
Baroness Fiona Twycross

Baroness (Fiona) Twycross was appointed to the House of Lords in November 2022. She is Education Spokesperson in the Lords and a Labour Whip.
Predictors and psychological outcomes associated with perceived boundary ambiguity in families affected by acute, non-progressive neurological conditions
CIELO study

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.