India's Story

India, who had NMDAR-antibody encephalitis when she was about to start her GCSE's, shares her story with us. She gives her advice on recovery, seizures, returning to school, hobbies and friendships. India's brother, Shaan, also shares his advice for siblings and family members of young people affected by encephalitis.

If you are affected by this story at all we encourage you to get in touch with our support team

Latest

Overview of autoimmune encephalitis and its relevance to psychiatry

Webinar organised by the The Romanian Association for Autoimmune Encephalitis (RAAE).
Gift in Your Will

By leaving a gift in your Will, you can ensure we will be there to help people affected by encephalitis and their families for generations to come
Japanese Encephalitis in Australia - The Encephalitis Podcast

Dr Lance Turtle joins the Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia since March 2022.
Patient and Public Involvement (PPI) Research Manager

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.