About us Our impact Our history The Encephalitis Society was founded in 1994 by a group of parents whose children had been affected by the condition. They found that information about encephalitis and support for people affected and their families was virtually non-existent. The beginning In the early days, the information we provided was a simple leaflet while the newsletters were primitive. Support was by telephone with occasional meetings across the UK, including the first Family Weekend. A web site was established and a parent pack produced with information written by professionals, some of whom are still with us on our Scientific Advisory Panel. Growing Up We moved from a bedroom to a small unit in Malton. There was a big jump in the quality and quantity of our information material and the jigsaw logo was adopted. Our Scientific Advisory Panel expanded and the first Encephalitis Conference was held. We changed our name to the Encephalitis Society and celebrated the first 10 years with tea at the House of Commons. Our web site is hailed as the most comprehensive source of information on encephalitis anywhere. An independent evaluation of our Support service hailed it as "A Light in a Very Dark Place". We deliver tailor-made training programmes to professionals. The Future By 2027, our objectives are to: Annually raise over £5 million from a diverse range of sustainable and ethical sources Have 50% of the general population aware of encephalitis in 10 countries To be meeting the individual needs of 80,000 people through our support services To fund four internationally based research studies To be the go-to organisation for over 100,000 professionals worldwide. Manage Cookie Preferences