Job Title:  Patient and Public Involvement (PPI) Research Manager                                         

Location: Encephalitis Society Headquarters, 32 Castlegate, Malton, North Yorkshire Y017 7DT

Team/Directorate: Support/Research  

Salary: £25-30k (depending on experience)

Type: Permanent full time (37h)

Base: Hybrid base (home/our HQ in Malton, North Yorkshire)

Responsible To: Director of Services


Responsible for managing the delivery of the Society’s Patient and Public Involvement (PPI) and Research Engagement services to ensure the highest quality patient-centred encephalitis research.


  • Assist with developing and delivering the Encephalitis Society (ES) PPI strategy to enable the Society to achieve its research objectives.
  • Manage all aspects of the Society’s PPI projects including attending and Chairing meetings, recruiting and liaising with patients and researchers, mapping PPI outputs and impact, and other related administrative tasks ensuring research is done for and with beneficiaries.
  • Assist with collecting and analysing data to enable appropriate evaluation, monitoring and reporting of PPI activities to ensure we are using funding effectively.
  • Maintain our AMRC accreditation to promote high quality involvement in research and collaboration with other institutions.
  • Assist with external communications and marketing campaigns (i.e. Research Month) aimed at improving patient engagement with global encephalitis research demonstrating importance and enabling wider participation.
  • Assist with organising and delivery of events for professionals to raise awareness of encephalitis and its advances among professionals and promote education and networking experiences.
  • Ensure the Society’s PPI work is aligned to the NIHR Standards for Patient and Public Involvement to help the Society maintain its highest-level services.
  • Assist in preparing funding applications to support PPI projects and provide input and expertise into other funding proposals to help meet funding targets.

 Key Relationships – Internal & External

The Patient and Public Involvement Research Manager’s external contacts include other patient organisations and departments, beneficiaries (lay people and professionals), volunteers and other key stakeholders such as our scientists and researchers. Internally, the Public Involvement and Research Engagement Coordinator’s will work with all departments.

 Health & Safety

  • Comply with safe working practices as defined by the Encephalitis Society.
  • Complete online training as and when required.
  • Take reasonable care for your own health and safety and that of others who may be affected by acts or omissions at work.
  • Report any accidents, incidents or near misses as soon as reasonably practicable.


  • Join in the life of the charity, including becoming involved in events and other activities as appropriate.
  • Be aware of and always adhere to the charity’s policies.
  • Attend training including safeguarding as required to meet the requirements of the role.
  • Take responsibility for own personal development, seeking out opportunities to learn new skills.
  • Undertake any other duties as requested by management which are reasonably deemed to be within the scope of the role or necessary for the smooth running of the charity.


  • Always apply the Encephalitis Society’s values and behaviours to every aspect of the role
  • Protect and enhance the interests and reputation of the Encephalitis Society internally and externally.

Download the full candidate pack.

Please send your CV and supporting statement, telling us why you would like to join our Team to [email protected] by noon on 31st March 2023.

We would encourage you to have an informal discussion before you apply - please call or email Alina Ellerington, Director of Services on 01653 692583 or email [email protected]