PhD Researcher: Sarah Martin

Supervisor: Dr Kata Pauly-Takacs

 

Overview

This study looks at how people who were treated for autoimmune limbic encephalitis remember and forget verbal information over time. We are aware that changes in the brain after encephalitis may result in ongoing problems with memory for some people. However, the types of difficulties that people have are under researched. When assessed in the clinic these memory difficulties may seem mild, but it is evident that they have significant impacts on day-to-day functioning. Therefore, the purpose of this study is to gain a better understanding of patients’ real- world memory problems, with which we hope to inform their care and support needs.

Who is invited to take part?

We are inviting you to take part if

  • you are 18-65 years old
  • had a previous diagnosis of Autoimmune Limbic Encephalitis and have completed treatment.

What do you have to do?

Before you take part in the study we will ask you to confirm a few details related to your diagnosis, if you can.

There will be two parts to this study:

  • You will be asked to take part in some brief assessments of memory and thinking ability which will last no longer than 1-1.5 hours in total.
  • You will then be asked to take part in a memory task that looks at learning and forgetting information over the course of 1 month. You will be asked to listen to and memorise some very short stories and then answer a series of questions about them at four different time points:
  •  Immediately
  • 1 day later
  • 1 week later
  • 1 month later

This study will take place remotely, so you need to be comfortable with the use of:

  •  a computer/tablet device
  • video-conferencing software (Skype, Teams or Zoom) or have someone to assist you with such technology.

Alternatively, sessions may take place face to face at Leeds Beckett University if covid guidelines allow and if that is your preference.

You will receive a £20 ‘love to shop’ voucher as token of appreciation for giving up your time.

Interested in taking part?

If you are interested in taking part or would like more information on the study please contact the PhD Researcher, Sarah Martin at [email protected]