PhD Researcher: Sarah Martin (Leeds Beckett University)

Supervisor: Dr Kata Pauly-Takacs (Leeds Beckett University)

 

Overview

This study looks at how people who have been treated for Autoimmune Encephalitis perceive or experience their own memory in everyday situations. We are aware that changes in the brain after encephalitis may result in ongoing problems with memory for some people. However, the types of difficulties that people have are under researched. When assessed in the clinic these memory difficulties may seem mild, but it is evident that they have significant impacts on day-to-day functioning. Therefore, the purpose of this study is to gain a better understanding of patients’ real-world memory problems, with which we hope to inform their care and support needs.

Who is invited to take part?

We are inviting you to take part if

  • you are 18-65 years old
  • based in the UK
  • had a previous diagnosis of Autoimmune Encephalitis and have completed treatment.

OR

We are also looking for healthy participants (18-65 years based in the UK) without an Autoimmune Encephalitis diagnosis for the purpose of comparison

What do you have to do?

Before you take part in the study, we will ask you to confirm a few details related to your diagnosis, if you can (if you had a diagnosis of Autoimmune Encephalitis). You will then be asked to complete a memory questionnaire online which will take 15-20 minutes of your time. It will ask you to rate your experience in relation to how you use your memory and how satisfied you are with your memory in everyday situations. For example, the questionnaire asks you to rate the extent to which you agree with the following statements:

‘I am generally pleased with my memory ability’

‘I worry that I will forget something important’

This study will take place online. We will send you a link to the questionnaire via email if you wish to take part.

Interested in taking part?

If you are interested in taking part or would like more information on the study please contact the PhD Researcher, Sarah Martin at [email protected] or on 0113 812 5456.