Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

Latest

My Brain and me - Dawn's story

Dawn - who was affected by HSV encephalitis at 17 - talks about her experiences of encephalitis, her recovery, and its impact on her life.
Encephalitis Matters

Please sign our petition today because #EncephalitisMatters
Corinna's story

Corinna, a travel writer from Australia, fell ill with Herpes Simplex Virus Encephalitis and talks about her illness and the lessons she has learned as she continues her recovery
Understanding consequences of encephalitis

Encephalitis Matters

Please sign our petition today because #EncephalitisMatters
Read our summer newsletter

Catch up on the latest news, views and stories from the Encephalitis Society in our summer newsletter
My Brain and Me - Sue's story

Sue talks about her experiences with meningoencephalitis, its diagnosis, her treatment and recovery
Celebrating our 25th anniversary

The Encephalitis Society celebrated its 25th anniversary with a party in central London on June 20. Read more and see all the photographs.
Clair's Story

WATCH - When Clair woke up in hospital after falling ill with encephalitis, she had no idea that the people by her bedside were her parents. Her dad, Mark, tells her story.
Cameroon and Brazil research projects given £20,000 in seed funding

Life-saving research projects in Brazil and Cameroon have each received £10,000 as part of our 25th anniversary international research seed funding project. Find out more.
Why we need your help during Encephalitis Research Month

Dr Ava Easton, Chief Executive of the Encephalitis Society, on why we need your help during Encephalitis Research Month.
Encephalitis Conference 2019

Global experts in encephalitis are invited to London on December 2 for the 2019 Encephalitis Conference. Early bird booking rates available.
Measles, vaccines and encephalitis - a blog

A blog by Dr Ava Easton, Chief Executive of the Encephalitis Society, about measles, vaccinations and encephalitis
Your chance to Meet the Scientists

You are invited to family fun days in Liverpool, Oxford and London to meet some of our favourite scientists, learn about the brain and get your hands dirty with some experiments!

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.