Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

Latest

Bruno's story

Bruno fell ill with viral encephalitis when he was 16 years-old. He explains the impact it had on him at the time and today as a 49 year-old father of two.
Read our Autumn newsletter

The Autumn 2018 newsletter of the Encephalitis Society is here. Our quarterly magazine is full of news, useful information and details about upcoming events.
Silver Jubilee PhD Fellowship

The Encephalitis Society encourages invitations from Academic Institutions to host the 2019 PhD Fellowship.
Encephalitis Society joins CAF Resilience programme

Encephalitis Society recently joined Charities Aid Foundation (CAF) Resilience, an exciting new pilot programme designed to provide bespoke support to smaller UK charitable organisations.

Firing on all cylinders with My Brain: My Family

London was calling for My Brain: My Family - our family fun and resilience day - at London Fire Brigade Museum, Lambeth
Patients needed to help with Rasmussen's Encephalitis study

University College London needs UK-based patients affected by Rasmussen's Encephalitis to help with a groundbreaking project
Award nominations are just four-some!

The Encephalitis Society has earned FOUR award nominations for its work around World Encephalitis Day and for the dedication of both Chief Executive Dr Ava Easton and Ambassador Rebecca Adlington
My Brain: My Story

Join us in Edinburgh for a special opportunity to hear and share the real-life stories of encephalitis.
Brain on Fire coming to Netflix

Brain on Fire, starring Chloe Grace Moretz, will be coming to Netflix on June 22. The film is an adapted from New York Post journalist Susannah Cahalan's best-selling book of the same name which follows her battle with Anti-NMDAR Encephalitis
Hollyoaks and encephalitis

Channel 4 soap Hollyoaks and the Encephalitis Society are working together on an encephalitis storyline. Find out more.
Hollyoaks #OneFamily campaign

Our #OneFamilly campaign highlights how encephalitis happens in every community to ordinary families and the children they love. Read about some of the families that we have helped, here.
Wayne's Manx Mountain Marathon

Wayne Marshall, from Lancashire, battled his way to the finishing line of the 50km Manx Mountain Marathon for his father-in-law. Read his story.
Other ways to give

Explore the different ways you can make a donation to the Encephalitis Society and support our work
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.

Anti-NMDAR encephalitis

Anti-NMDAR encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.
Get support (now)

Our Helpline is here to help you with any questions about encephalitis