Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

Latest

Spring newsletter 2020

Your spring newsletter is now available to read featuring highlights from the Encephalitis Society from the past three months
Coronavirus - a message from our CEO

A message from Dr Ava Easton, the Chief Executive of the Encephalitis Society in response to the Covid-19 outbreak
Caring for Someone with an ABI: the Role of Psychological Flexibility
Covid-19 and encephalitis - podcast

A podcast answering your questions about Covid-19 (Coronavirus) and encephalitis. Filmed on March 20.

Coronavirus - a message from our CEO

A message from Dr Ava Easton, the Chief Executive of the Encephalitis Society in response to the Covid-19 outbreak
Covid-19 and encephalitis - podcast

A podcast answering your questions about Covid-19 (Coronavirus) and encephalitis. Filmed on March 20.
Young Expert Residential Weekend

The young expert focus group weekend is a residential weekend for children and young people between 12-25 years-old. The weekend includes focus group sessions, filming and outdoor adventure activities.
Covid-19 - Live Blog

Our live blog offers updates on Covid-19 and encephalitis, as well as useful factsheets and information from the Encephalitis Society
Announcement - My Brain & Medicine postponed

My Brain & Medicine at the Royal Society of Medicine has been postponed due to advice surrounding Coronavirus (Covid-19)
Coronavirus statement

A statement from the Encephalitis Society on coronavirus and encephalitis. (Updated March 10)
Membership

Become a member of the Encephalitis Society. Membership is free and open to everyone across the world
22 highlights from World Encephalitis Day 2020

Twenty two highlights from World Encephalitis Day 2020 on Saturday, 22nd February
World Health Organization visit

We recently paid a visit to the offices of the World Encephalitis Day to hand over a 28,000 petition calling on the World Health Organization to talk about why encephalitis matters.
£2.6 million study to look at new treatment for autoimmune encephalitis

A £2.6 million study will investigate new treatments for autoimmune encephalitis

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.