Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

Latest

Pam Gourley

Supporter Care Coordinator
Janet's story

Janet was 64 years-old when she was affected by viral encephalitis in January 2007. Her husband, Peter, tells Janet's story.
Appeal - your stories needed for Life After Encephalitis follow-up

Can you help? Dr Ava Easton, the Chief Executive of the Encephalitis Society, needs contributors for the follow-up to her best-selling book, Life After Encephalitis.
Hannah's Story - Part 2

November 12, 2018, marks one year since Hannah woke up in the hospital after falling ill with Anti-NMDAR Encephalitis. In her second blog, she writes about the past year and the progress she has been making.

Appeal - your stories needed for Life After Encephalitis follow-up

Can you help? Dr Ava Easton, the Chief Executive of the Encephalitis Society, needs contributors for the follow-up to her best-selling book, Life After Encephalitis.
BrainWalk app picks up two national awards

The Encephalitis Society has claimed two leading awards for its World Encephalitis Day mobile phone App,
Encephalitis Conference 2018

Global experts in encephalitis will arrive in London on December 3 for the 2018 Encephalitis Conference 2018.
Award nominations are just four-some!

The Encephalitis Society has earned FOUR award nominations for its work around World Encephalitis Day and for the dedication of both Chief Executive Dr Ava Easton and Ambassador Rebecca Adlington
Hollyoaks #OneFamily campaign

Our #OneFamilly campaign highlights how encephalitis happens in every community to ordinary families and the children they love. Read about some of the families that we have helped, here.
Other ways to give

Explore the different ways you can make a donation to the Encephalitis Society and support our work
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Charity of the Year!

The Encephalitis Society is named Charity of the Year in the 2017 Charity Times Awards
Encephalitis in children. E-learning

The e-learning programme aims to improve the knowledge about encephalitis and its consequences to parents/guardians and their children. It also provides advice and practical strategies in order to develop copings skills and enhance their recovery.
Responding to challenging behaviour

Following encephalitis, some people may experience behaviours that are challenging to manage. Families and friends may struggle to understand and cope with these new behaviours.

Anti-NMDAR encephalitis

Anti-NMDAR encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.
Get support (now)

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