Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

Latest

Accessibility and Acceptability of Voice Assistants for People with Cognitive Impairments due to ABI
My Brain and Me - Roz's Story

Roz, who was affected twice by anti NMDAR encephalitis while completing her secondary education, shares her story with us.
My Brain and Me - Eddie's Story

Eddie shares his experiences and insights five years on from his first diagnosis of encephalitis.
Great North Run 2020

Join thousands of runners for the iconic half marathon in Newcastle upon Tyne on Sunday, September 13, 2020.

London Winter Walk

Join over 2,000 challengers on the 2020 London Winter Walk on Sunday, January 19
Tick-borne encephalitis virus in the UK

In response to the presence of the Tick-borne encephalitis virus in two parts of England
My Brain: My Story 2019

Supporters of the Encephalitis Society travelled to Liverpool on Saturday, October 19, 2019, for My Brain: My Story, our annual event.
New autobiography from Professor Barbara Wilson

The Story of a Clinical Neuropsychologist by Professor Barbara Wilson OBE is the story of her 42-year career which has changed the way we think about brain injury rehabilitation
Our autumn newsletter is now available to read

Read about all the latest news from the Encephalitis Society in our autumn newsletter
Encephalitis Society honoured twice in Third Sector Awards

The Encephalitis Society has been presented with two prizes in the Third Sector Awards 2019
our volunteers

Get to know some members of Team Encephalitis, our volunteer scheme.
Encephalitis Conference 2019

Global experts in encephalitis are invited to London on December 2 for the 2019 Encephalitis Conference. Early bird booking rates available.
Read our summer newsletter

Catch up on the latest news, views and stories from the Encephalitis Society in our summer newsletter
My Brain and Me - Sue's story

Sue talks about her experiences with meningoencephalitis, its diagnosis, her treatment and recovery

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.