Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

Latest

Safeguarding

The purpose of these policies is to make sure that the actions of any adult in the context of the work carried out by the Society are transparent and safeguard and promote the welfare of all children and adults at risk.
Andrew's story

Andrew was affected by Rhombencephalitis last year. Sadly, he passed away. His mum, Karen, talks about her son's illness and shares her eulogy to him.
EU exit information for patients

Information for patients in a no-deal EU exit
Dr Thomas Pollak

NIHR Clinical Lecturer at the Institute of Psychiatry, Psychology and Neuroscience, King’s College London

Encephalitis Society take on Three Peaks Challenge

Celebrating 25 years with a 25 mile challenge!
Encephalitis Conference 2019

Global experts in encephalitis are invited to London on December 2 for the 2019 Encephalitis Conference. Early bird booking rates available.
Highlights from World Encephalitis Day 2019

Highlights from World Encephalitis Day 2019, including photographs, articles, blogs, radio and television interviews and podcasts.
National Lottery Community Fund awards £147,500 grant to Encephalitis Society

A £147,500 National Lottery Community Fund grant will fund a three-year project helping families affected by encephalitis
Breakthrough in NMDAR-antibody encephalitis research

New research means NMDAR-antibody encephalitis may now be diagnosed and treated much earlier, thanks to a team at the Oxford Autoimmune Neurology Group
How can you help on World Encephalitis Day

There is not long to go until World Encephalitis Day on Friday, February 22. Find out how you can be a part of our global awareness day!
House of Lords hosts Encephalitis Society for World Encephalitis Day launch

The Encephalitis Society visited the House of Lords to kick start our countdown to World Encephalitis Day 2019 and launch #BrainWalk, our award-winning smartphone App
International Research Seed Funding

We are inviting applications from researchers for our Encephalitis Futures - International Research Seed Funding project
Connect Professional

Read issues of Connect Professional, our newsletter for professionals interested in encephalitis
Appeal - your stories needed for Life After Encephalitis follow-up

Can you help? Dr Ava Easton, the Chief Executive of the Encephalitis Society, needs contributors for the follow-up to her best-selling book, Life After Encephalitis.

Anti-NMDAR encephalitis

Anti-NMDAR encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Measles infection and encephalitis

Measles causes encephalitis in children with measles infection. Measles, mumps and rubella (MMR) vaccine is a very effective way to prevent against these diseases.