Factsheets

The Encephalitis Society produces a wide range of factsheets aimed at people affected by encephalitis, their families, friends, carers, professionals involved in their care and anybody interested in encephalitis and its consequences.

They are available in different format: electronic (website pages and PDFs on the Encephalitis explained section of the website) and paper copy on request from our office. All our factsheets are accredited by The Information Standard, a certification scheme supported by the NHS England.

We produce factsheets on following topics:

symptoms, diagnosis and treatment
types of encephalitis
effects of encephalitis: cognitive, emotional, behavioural, physical and social
returning to work or education

Please see below an alphabetical list of our factsheets:

If you have found this information helpful, please consider making a donation to help us continue our life-saving work in the future.

Make a Donation

Latest

Reggie's story

Reggie was four-years-old when he became poorly with COVID-19 encephalitis. His parents tell his story.
London Marathon 2021

Find out more about our runners in the London Marathon 2021
Chiltern 50 Challenge

24 September 2022, Chiltern 50 Challenge - This challenge covers some of the best of the Chilterns countryside. You can Walk, Jog, or Run along historic trails and over rolling hills. Starting & finishing at our Base Camp in Henley-on-Thames, there's a Saturday night celebration BBQ & entertainment with camping options. Choose from the full 50km challenge, or the 25km half distance.
Thames Bridges Trek

10 September 2022, Thames Bridges Trek - Join 2000 trekkers as we venture 25km across the Capital taking in unrivalled views of the skyline from its best vantage points. Setting out from Putney Bridge - it's East towards the City, zig-zagging over the array of historic bridges - each with its fascinating story.

London Marathon 2021

Find out more about our runners in the London Marathon 2021
Volunteer adverts

Interested in joining the team? Take a look at what's involved
My Brain: My Story 2021

Join us on Saturday 23rd October at the Conference Aston Hotel, Birmingham, UK and virtual (worldwide) for a special opportunity to hear and share the real-life stories of encephalitis
An interview with author Catherine Jessop

Author Catherine Jessop joins Dr Ava Easton to talk about her excellent new book Pulling Through: Help for Families Navigating Life-Changing Illness.
Bron drums up support for Virtual London Marathon

Bron Bury, our Individual Giving Manager, is drumming up support for his 2021 Virtual London Marathon attempt in October. Please make a donation for our very own Little Drummer Boy.
Aled Davies

Aled is a Welsh international rugby player who currently plays for Saracens Rugby Club
An interview with Rebecca Adlington - podcast

Rebecca Adlington talks about the Tokyo Olympics, motherhood, her connections to encephalitis, the pandemic and her experiences winning four Olympic medals in the swimming pool
Fatigue and encephalitis - podcast

Donna Malley, from the Oliver Zangwill Centre, answers your questions about fatigue and encephalitis
WHO discussion on global impact of encephalitis

The World Health Organization is to meet with Encephalitis Society and discuss report looking at global impact of encephalitis
Sign up for a challenge in 2021

Find out which challenge events you can enter for the Encephalitis Society in 2021

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Japanese encephalitis

Japanese encephalitis is an infectious encephalitis caused by Japanese encephalitis virus transmitted by mosquitoes, called ‘Culex’ mosquitoes.
Encephalitis:after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Hashimoto's encephalopathy

Hashimoto's encephalopathy is a rare condition, which is probably of autoimmune origin. The concept of HE is becoming fragmented into a number of other types of autoimmune encephalitis which appear to have their own autoantibodies, prognosis and associated features.