Encephalitis Information Week

Day Five: Friday, October 22, 2021.

The first annual Encephalitis Information Week (October 18 to 25) is aimed at healthcare professionals and the general public and helping them to discover more about encephalitis, the latest in research, as well as our resources which may be useful for managing encephalitis and recovery and rehabilitation.

Today we look at the effects of encephalitis.

What are the after-effects of encephalitis?

Nerve cells (neurons) may be damaged or destroyed and this damage is termed acquired brain injury (ABI).

No two people affected will have the same outcome. Effects of encephalitis can be long-term.

In children, injury to the parts of the brain that are not developed at the time of the illness can manifest later in life, well after the illness with encephalitis.

Tiredness, recurring headaches, difficulties with memory, concentration, balance, mood swings, aggression, clumsiness, seizures, physical problems (weakness down one side of the body, loss of sensations and of control of bodily functions and movement), speech and language problems, reduced speed of thought and reaction, changes in personality, depression, anxiety, and in the ability to function day-to-day, problems with senses and hormones are reported.

The potential impact on social relationships should not be underestimated and returning to work and school can be difficult.

Encephalitis: After-effects, recovery and rehabilitation

This guide provides key information about the type of issues that people may have after encephalitis, why rehabilitation and support from professionals and families are important and what options for self-help are available.

Cognitive changes after encephalitis

  • Cognition refers to mental processes such as attention, memory, language, problem solving, decision making, planning and organisation.

Emotional and behavioural changes

  • Following encephalitis, some people may experience low mood, increased anxiety, depression, frustration and more changes.

Physical Difficulties after encephalitis

  • Information about fatigue, headaches, seizures/epilepsy, speech and swallowing and more

Social consequences of encephalitis

  • It can be common for people to experience changes in their thinking, behaviour and feelings.

The effect I find by far the hardest to cope with is my memory. I was four months pregnant when I was ill and, although I do have memories of my now 17-year-old son’s life, I have way more of my own childhood.

Helen, Aliya and John, who are all volunteers with the Encephalitis Society, write about how encephalitis has had an impact on their lives. Read Now


Encephalitis in Adults

Encephalitis in Adults. A Guide

  • This guide explains the symptoms, diagnosis, treatment and after-effects of the illness and provides guidelines for recovery and rehabilitation.

Encephalitis in Children

Encephalitis in Children - A Guide

  • This guide follows the child's journey from hospital ward to rehabilitation settings, school and home, directing them through the maze of health care, education and social care.

Effects on Learning and School Life

  • What may a child or young person experience after encephalitis

Returning to School after encephalitis. Guidance for school staff.

  • Guidance for school staff which aims to help them understand encephalitis and the what a child will need to have a successful return to school.

Personally, the best way to relieve these fears and have a somewhat normal education was to be open to my professors about my situation.

In this blog, Aliya shares her experiences of returning to full-time education and Nicky offers some tips for anyone returning to work. Read Now


Encephalitis in Children. E-Learning

  • The e-learning programme aims to improve the knowledge about encephalitis and its consequences.

Gilley the Giraffe

  • This book was written by a mum for the siblings of her child recovering from encephalitis. 

MediKidz Explain Encephalitis

  • A comic book about encephalitis which is aimed at children in primary school 

Juliana, a volunteer with the Encephalitis Society, shares her experiences of returning to school after falling ill with encephalitis as a 14-year-old.


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