Data protection and security

Data Quality

The Data Protection Act 1998 came into effect on 1^st March 2000. The Act regulates the use of personal data and gives effect in UK Law to the European Directive on Data Protection. The Encephalitis Society has access personal data of our service users and we take the processing of this information very seriously.

Data Quality Policy

Privacy Policy

The Encephalitis Society is committed to keeping your information secure and managing it in accordance with our legal responsibilities under privacy and data protection laws where we operate.

This Privacy Policy provides information about how we process your personal information.

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Latest

WEDA Conference - Empowering Hope

A three-day World Encephalitis Day event in Jacksonville, Florida, in February 2024. Brought to you by The World Encephalitis Day Alliance
Baroness Fiona Twycross

Baroness (Fiona) Twycross was appointed to the House of Lords in November 2022. She is Education Spokesperson in the Lords and a Labour Whip.
Predictors and psychological outcomes associated with perceived boundary ambiguity in families affected by acute, non-progressive neurological conditions
CIELO study

Sanctions statement

The global nature of our activities and because sanctions apply across borders means the transactions we engage in, may be subject to sanctions imposed by multiple government authorities.
Financial support statement

Policy Statement on funding patient medical fees and grants to individuals
Complaints Policy

Our policy on complaints.
Fundraising Policy

We are committed to being open about how we fundraise and this page gives supporters more information.
Safeguarding

The purpose of these policies is to make sure that the actions of any adult in the context of the work carried out by the Society are transparent and safeguard and promote the welfare of all children and adults at risk.
Statement of activities

The activities we undertake towards achieving our aim are to provide support and information, raise awareness and promote and collaborate on research on encephalitis.
Cookie Policy

Read our policy on cookies used whilst visiting our site.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.