Connection scheme

The Connections Scheme has been set up to enable our members to make contact with others in similar situations to themselves.

The Society has members from all over the world, and although no two people have the exact same experience, sometimes there are shared difficulties and outcomes. The Society knows the strength of impact that connecting with someone else affected directly or indirectly by encephalitis can have on individuals and families.

This scheme may be able to connect members, helping to relieve feelings of isolation that are felt by many, following encephalitis. Many of our members have benefitted from our similar schemes and we would encourage you to become part of the Encephalitis Society family. The Support Team are always here if you need them!

For more details on this brilliant scheme, download the full information pack

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Latest

Encephalitis Support Forum

Our online community where members of the Encephalitis Society can connect and support others who have been directly or indirectly affected by encephalitis
Virtual gatherings

Join the staff and supporters of the Encephalitis Society in a regular online chat. Meetings held weekly.
Team Encephalitis Support Volunteers

Team Encephalitis Support Volunteers are people who have personal experience of encephalitis. They have completed the Society's Support Volunteer Training to provide information and a listening ear to people affected by encephalitis and their families.

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.