Encephalitis Information Week

Day Seven: Sunday, October 24, 2021.

The first annual Encephalitis Information Week (October 18 to 25) is aimed at healthcare professionals and the general public and helping them to discover more about encephalitis, the latest in research, as well as our resources which may be useful for managing encephalitis and recovery and rehabilitation.

Today we focus on carers and family members of people affected by encephalitis.

Information for carers, family members and friends

Encephalitis can not only have an impact on the person affected but also their family and friends. Our guides and factsheets offer information for family members, carers, teachers, family doctors and work colleagues as well as opportunities to connect with others whose lives have been affected by encephalitis.

Our award-winning support team are also available to answer any questions you may have. Contact the support team

The Challenge of Caring

  • Our factsheet explains the impact of caring, information about the effects of encephalitis, and other resources which can help.

Connection Scheme

  • Our Connection Scheme helps to put people in similar situations in touch with each other.

Virtual Gatherings

  • We also hold monthly virtual gatherings for carers/family members/support networks. The next meetings are planned for the 3rd November and 15th December. Get in touch if you are interested in joining us.

Caring for anyone with multiple disabilities is relentless and exhausting; our love for Nicholas is what enabled us to care for him over a twenty year period.

What is it like to be a carer? In this blog, Sarah and Kristin share their experiences. Read Now

During Encephalitis Information Week, Juliana, a volunteer with the Encephalitis Society, has kindly shared her experiences and advice for people who have been affected by encephalitis.

Juliana, from Miami, was affected by Anti-NMDAR encephalitis as a 14-year-old and today is in her fourth year studying Psychology and Neuroscience at the University of Florida.


Volunteers are the lifeblood of the Encephalitis Society and have helped to turn us into the award-winning organisation we are today.

There are many ways you can become a volunteer with Team Encephalitis - and you don't need to be working in our office to get involved.

Find out more

Being a volunteer isn’t about how much knowledge or experience you have with something, it’s about a passion and desire to improve the world around us through acts such as raising awareness, encouraging donations, or supporting those impacted.

John, Natasha and Sarah write about volunteering with the Encephalitis Society. Read Now

Help us win up to £1,000

The Encephalitis Society is in the running to win up to £100,000 from the Persimmon Homes Building Futures fund to support our award-winning work - but we need your help to win!

How to help us

  1. Visit www.persimmonhomes.com/building-futures/finalists
  2. Search for the Encephalitis Society.
  3. Vote! (you can vote once every 24 hours until the 19th November)

Please note: you can also use your mobile's phone data so others in your house or office can vote too.

Thank you - and thank you for all your support during our first ever Encephalitis Information Week!