Spring newsletter 2020

The spring edition of Connect is now available to read.

Inside, you will find information about Coronavirus, a look back at World Encephalitis Day 2020, information about a £2.6m encephalitis study, an in-depth feature on the Encephalitis Conference, a salute to our fundraisers, and much more!

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Gift in Your Will

By leaving a gift in your Will, you can ensure we will be there to help people affected by encephalitis and their families for generations to come
Japanese Encephalitis in Australia - The Encephalitis Podcast

Dr Lance Turtle joins the Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia since March 2022.
Patient and Public Involvement (PPI) Research Manager
Senior Medical Writer

Japanese Encephalitis in Australia - The Encephalitis Podcast

Dr Lance Turtle joins the Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia since March 2022.
Iram's Appeal

Help us tackle mental health challenges this World Encephalitis Day
22 Highlights from World Encephalitis Day 2023

Take a look at a selection of highlights from World Encephalitis Day 2023
One week to go until World Encephalitis Day 2023

There is only one week to go until World Encephalitis Day - discover what you can do to raise awareness of encephalitis on Wednesday, 22nd February.
Encephalitis Podcast - An interview with Suzie Miller

Suzie Miller, the award-winning playwright behind the West End hit, Prima Facie, joins the Encephalitis Podcast for an interview about her experiences of encephalitis and much more
Research: Monkeypox linked to encephalitis in some patients

Monkeypox can sometime lead to neurological complications such as encephalitis, according to new review of evidence
The Kirsty and Philip Walk

A team of walkers are entering the Peak District Ultra Challenge in loving memory of two teenagers
Twitter Art Exhibit: An Interview with Susannah Cahalan

Susannah Cahalan, author of Brain on Fire, chats to Mathew Bose about the Twitter Art Exhibit and how the drawing of a clock helped a doctor diagnose her with autoimmune encephalitis
Seven-year HSV encephalitis study nears the finishing line

Researchers are entering the final stages of a seven-year study which they hope will revolutionise the treatment of patients with Herpes Simplex Virus (HSV) encephalitis.
Japanese encephalitis in Australia

Information about Japanese encephalitis following the 2022 outbreak in Australia, including information on symptoms and prevention

NMDAR antibody encephalitis

NMDAR antibody encephalitis is an autoimmune disease that causes psychiatric features, confusion, memory loss and seizures followed by a movement disorder, loss of consciousness and changes in blood pressure, heart rate and temperature.
Herpes Simplex virus encephalitis

Herpes simplex encephalitis is a type of infectious encephalitis which happens when herpes simplex virus (HSV) enters the brain. Usually, it begins with ‘flu-like’ symptoms followed by neurological deterioration, which may include personality and behavioural changes, seizures, weakness and difficulties in communication.
What is encephalitis?

Encephalitis is an inflammation of the brain caused by an infection or through the immune system attacking the brain in error.
Guidelines for recovery

No two people with encephalitis have the same outcomes. People recover at different paces. Recovery can be helped by having lots of rest, good nutrition, helpful social network and support from professionals.
Limbic encephalitis

The term ‘limbic encephalitis’ (LE) describes the condition when limbic areas of the brain are inflamed (swollen) and consequently not functioning properly. Most forms of LE fall into two main categories: infectious encephalitis and autoimmune encephalitis.
Death from encephalitis

Encephalitis is a serious neurological condition and unfortunately, despite improvements in specific and more supportive treatments such as excellent intensive care management, encephalitis still has a high mortality (death) rate.
West Nile encephalitis

West Nile encephalitis is a type of infectious encephalitis caused by West Nile virus. People usually become infected after being bitten by a mosquito, which has fed on an infected bird.
Encephalitis: after-effects, recovery and rehabilitation

This booklet provides key information about the type of issues that people may have after encephalitis, why rehabilitation/support from professionals and families are important and what options for self-help are available.
Emotional and behavioural changes

Following encephalitis, some people may experience emotional and behavioural changes including low mood, increased anxiety, depression, mood swings, frustration, aggression, impulsivity, disinhibition, and/or poor emotional regulation.
Get support

Our Support Service is here to help you with any questions about encephalitis, recovery and rehabilitation or emotional support.