Researcher Sarah Martin is recruiting participants for two new studies at Leeds Beckett University which will explore memory and autoimmune encephalitis.

The studies are aimed at people who:

• are aged between 18-65 years old
• based in the UK
• had a previous diagnosis of Autoimmune Encephalitis and have completed treatment

Exploring Real-World Memory in Autoimmune Encephalitis – Autobiographical Memory

This study looks at how people who were treated for Autoimmune Encephalitis remember past personal memories (also known as autobiographical memory). We are aware that changes in the brain after encephalitis may result in ongoing problems with memory for some people. However, the types of difficulties that people have are under researched. When assessed in the clinic these memory difficulties may seem mild, but it is evident that they have significant impacts on day-to-day functioning. Therefore, the purpose of this study is to gain a better understanding of patients’ real-world memory problems, with which we hope to inform their care and support needs.

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Exploring Real-World Memory in Autoimmune Encephalitis – Self-reported memory experiences

This study looks at how people who have been treated for Autoimmune Encephalitis perceive or experience their own memory in everyday situations. We are aware that changes in the brain after encephalitis may result in ongoing problems with memory for some people. However, the types of difficulties that people have are under researched. When assessed in the clinic these memory difficulties may seem mild, but it is evident that they have significant impacts on day-to-day functioning. Therefore, the purpose of this study is to gain a better understanding of patients’ real-world memory problems, with which we hope to inform their care and support needs.

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