Have you been affected by Rasmussen’s Encephalitis?

Then maybe you can help a ground breaking research study which is helping to change the way patients will be tested in the future.

University College London’s Institute of Neurology (UCL) and The National Hospital for Neurology and Neurosurgery want to hear from UK-based Rasmussen’s Encephalitis patients as part of its work on the 100,000 Genomes Project.

Professor Henry Houlden, Professor of Neurology and Neurogenetics at UCL, said: “We are getting results back from the 100,000 genomes, with some unusual genes being found with white matter disorders that are similar to Rasmussen's Encephalitis, which is helping us change to way we will test patients in the future. 

“We only have two months left of the 100,000 genome sequencing project and we would love to have as many Rasmussen's Encephalitis patients included as possible. If you can help us, please do get in touch.”

Anyone interested in taking part can do so through their local GP or hospital clinic (patients will be sent a padded envelope with consent form and blood bottles) or can go to UCL in London anytime they wish.

The project ends on September 31.

If you would like to take part, please email Professor Houlden or Ambreen Tariq

*Photo by Jaron Nix on Unsplash