Hello and welcome to the live blog of the Encephalitis Society.

We will be updating supporters about any updates on the Covid-19 pandemic, useful factsheets and information from the Encephalitis Society. Please note that our support team are here for you and can be contacted via the website or by calling +44(0)1653 699599. 

We will also be regularly updating our social media channels on Facebook, Twitter, LinkedIn, Instagram and YouTube. If you have anything you would like to include, please get in touch.

Best wishes, the Encephalitis Society team


1.49pm - Tuesday, June 2


11.50am - Tuesday, June 2

A new report from Public Health England on Disparities in the Risk and Outcomes of Covid-19.

Evidence published on Page 39 suggests that COVID-19 may have a disproportionate impact on people from
Black, Asian and minority ethnic (BAME) groups.

Read Now


Monday, June 1 is the start of Encephalitis Research Month.

Over the next 30 days we will be talking about the importance of #EncephalitisResearch, the 2020 Encephalitis Conference and inviting applications for researchers to apply for seed funding into projects looking at Covid-19 and encephalitis.

Find out more


11.02am - Monday, June 1


9.31am - Friday, May 29

June will see the return of Encephalitis Research Month.

Today and into early next week, we will be taking to the airwaves to talk about Covid-19, neurological complications and encephalitis.

And then, throughout June, we will also be highlighting some of the fantastic research which is taking place.

Here is a film from Professor Tom Solomon, our President, talking about why encephalitis research is important.


7.44am - Friday, May 29

Why we need a global Covid-19 Neuro Research Coalition.

Article in The Lancet


8.57am - Wednesday, May 27

Another webinar, this time featuring Professor Tom Solomon, the President of the Encephalitis Society.


8.35am - Wednesday, May 27 

Dr Benedict Michael, the Vice President of the Encephalitis Society, will be talking about the neurology and psychiatry of Covid-19 and the psychiatry surveillance programmes for Covid-19 in a webinar on Thursday at 4pm.

The webinar from the Royal College of Psychiatrists is free to all. Register now or Catch Up afterwards.

Find out more about the Covid-19 surveillance programmes for both UK and international health care professionals.


12.29pm - Monday, May 25

Appeal

CoroNerve is a collaborative initiative to describe the neurological features of COVID-19.

The COVID-19 pandemic is an evolving emergency in which a significant proportion of the population are expected to be infected. The experience of past pandemics, notably influenza subtype H1N1 in 1918 and 2009, suggests that neurological complications may occur.

Though the proportion may be small, given the large number of infections the collective burden may be large. There is an urgent need for prospective, nationwide, high-quality data collection to inform management and research.

Share your findings

11.16am - Friday, May 22

Our latest podcast features expert virologist Professor Peter Hotez and explores the search for a Covid-19 vaccine. 

9.36am - Friday, May 22

2.18pm - Tuesday, May 19

2.57pm - Monday, May 18



Webinar - Neurological disorders associated with COVID-19

Presented by Brain Infections Global

The COVID-19 pandemic, caused by SARS-CoV-2, is of a scale not seen since the 1918 influenza pandemic. Although the predominant clinical presentation is with respiratory disease, neurological manifestations are being recognised increasingly. This webinar, held on 1 May 2020, reviewed what’s known about neurological manifestations of SARS CoV-2 and related coronaviruses, consider the disease mechanisms and outline a framework for future investigative studies. 

Chair: Prof Tom Solomon

Prof Leonardo Pantoni: On being a neurologist in Italy at the time of the COVID-19 outbreak

Dr Laura Benjamin: The emerging layers of complexity in managing stroke patients with SARS-CoV-2 infection

Dr Avindra Nath: Disease mechanism of COVID-19 in neurological patients


2.52pm - Monday, May 18

We are very proud of Dr Omar Siddiqi who is a member of our Scientific Advisory Panel.


9.08am - Monday, May 18

This is a great blog from Vernonique who looks at how her friendships have changed since her brain injury.


8.58am - Monday, May 18


12pm - Sunday, May 17


11.20am - Thursday, May 14

Want to know more about neurological complications of #COVID19 SARS-CoV-2?

Our 1st #CovidNeuro Webinar (1st May) is now available online.

3 x short punchy expert talks from Italy, UK, USA: Leonardi Pantoni, Laura Benjamin, Avindra Nath, then QnA

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4.02pm - Wednesday, May 13

We are delighted to welcome Gagun Gahir to our board of trustees. 

Gagun will be helping us with Diversity and Inclusion.


3.50pm - Wednesday, May 13


8.54am - Monday, May 11

A lovely way to start the day! Sandra decided to shave her hair off in support of the Encephalitis Society. You can sponsor Sandra here.

Shear magic (not sorry for the pun!).


8.31am - Monday, May 11

The World Health Organization has put together a Q&A on Covid-19 for older people. Read now 


8.27am - Monday, May 11

Some new research on the neurology and neuropsychiatry of Covid-19. This has been put together by doctors Matt Butler, Mark Ellul, Tom Pollak, Benedict Michael and Tim Nicholson


9.08am - Wednesday, May 6

Julia Clark, our Director of Engagement, will be speaking to Nick Eede, the Culture, Brand and Charity expert, on his Instagram channel today at 3pm.


1.47pm - Tuesday, May 5

Dr Benedict Michael, the Vice President of the Encephalitis Society, wrote an article for Giving Tuesday.


12.32pm - Friday, May 1

Our friends at the Oliver Zangwill Centre have put together some simple rehabilitation tips for anyone who is recovering from a brain injury such as encephalitis.

These tips are good, no matter where you are in your rehab, and are in response to the #Covid19 outbreak.

As they say, this will help you feel that you are living, not just surviving.

We hope you find them helpful.

Read now


10.03am - Friday, May 1

"‘Zoom fatigue’ is taxing the brain. Here's why that happens"

We really like this article from National Geographic about how video calls can wear on the psyche in complicated ways.

Read now


9.42am - Friday, May 1

Julia Clark, our Director of Engagement, took the time to speak to the Local Government Information Unit (LGiU) about the experiences of the Encephalitis Society during the Covid-19 pandemic. Read the article


9.40am - Friday, May 1

Laura, our Volunteer coordinator, is enjoying her birthday today. Happy birthday, Laura! 


9.12am - Wednesday, April 29


12.23pm - Monday, April 27

Kim Ingleby, a much-loved member of the Encephalitis Society and a multi award-winning Mind Body Coach, will be sharing her expertise with users on BrainWalk, our smartphone App.

Kim will be offering advice on a range of different topics over the coming weeks, such as nutrition, energy, fitness and much more. #

So make sure to tune in every Wednesday for Wellbeing With Kim!


11.44am - Monday, April 27

A webinar featuring Dr Benedict Michael, neurologist and Vice President of our Scientific Advisory Panel


11.29am - Monday, April 27

A must watch.


9.44am - Monday, April 27

Good morning. We hope everyone had a nice weekend. Before the lockdown began, we started work on an animation which we hope will raise awareness of encephalitis - and we are delighted to be able to share it with you now.


1.16pm - Thursday, April 23

Meeting the psychological needs of people recovering from severe coronavirus (Covid-19)

The British Psychological Society have put together some guidance which considers the likely psychological needs of people who have been hospitalised with severe coronavirus (Covid-19), and the most effective ways to support their recovery.

Read now


12pm - Wednesday, April 22

Brainwalk, our award-winning smartphone App, is back in business and ready to be downloaded.

We decided to reintroduce the App when the Covid-19 lockdown was announced as a way of bringing people together and keeping their minds and bodies active.

You can download BrainWalk from your phone's App store. 

More information


14.32pm - Tuesday, April 21

Super pooches Jarvis and Casper who belong to Julia Clark and Dr Ava Easton respectively will be leading... pardon the pun... our 2.6 Challenge from this Sunday. Find out more


10.38am - Monday, April 20

Listen to a podcast from the Disability Download. This episode features Encephalitis Society member Lucy Dawson and explores the representation of chronic illness, particularly women with chronic illnesses and non-visible disabilities, in the media. We catch up with artist and illustrator Mimi Butlin, blogger Lucy Dawson and disability rights campaigner Sophia Kleanthous.

Listen now


9.20am - Monday, April 20

WATCH - our latest podcast features Dr Benedict Michael, the Vice President of the Encephalitis Society, who talks about the newly created National Surveillance Programme on Neurological Complications of COVID19, CoroNerve.

A full breakdown of the questions can be found here


9.13am - Monday, April 20

"Proper care for rural patients in America poses a real challenge. Imagine suffering a brain injury and the nearest city of 100,000 residents or more is 3 hours away."

How the response to Covid-19 could positively impact rural patients is a blog from Becky Dennis of Encephalitis411.


3.01pm - Thursday, April 16

Congratulations to Dr Benedict Michael, the Vice President of the Encephalitis Society's Scientific Advisory Panel, who has been shortlisted for an Excellence in Patient Care Award by the Royal College of Physicians for his work in Zambia and Mozambique teaching neurology to doctors.

Find out more about his work


2.38pm - Wednesday, April 15

Some advice for dealing with anxiety during the Covid-19 (coronavirus) crisis.

This presentation by Professor Neil Greenberg of Kings College London has been recommended by Dr Thomas Pollak - a neuropsychiatrist and member of the Encephalitis Society's Scientific Advisory Panel.


2.32pm - Wednesday, April 15.

Professor Tom Solomon, the President of the Encephalitis Society, was filmed for a segment on BBC's One Show. It shows what Tom and his colleagues are doing to tackle the coronavirus outbreak, including their work at the University of Liverpool and the Liverpool School of Tropical Medicine.


2.38pm - Tuesday, April 14

We hope everyone had a lovely Easter. Today, we have been busy working on a podcast about the neurological complications of Covid-19.

The podcast features Dr Ava Easton and Dr Mark Ellul.




10.05am - Thursday, April 9

An article recommended by our Trustee Dr Mark Ellul, who is also a neurology registrar and research fellow at the University of Liverpool.

10.51am - Wednesday, April 8

Health professionals interested in submitting an abstract or attending our Encephalitis Conference in London this December, can now do so. Visit our Encephalitis Conference event page for more details.

10.29am - Wednesday, April 8

Good news for Dr Ava Easton, our CEO.

2.38pm - Monday, April 6

A video diary from Professor Tom Solomon which was shown on the BBC earlier today.

7am - Monday, April 6

10.28am - Friday, April 3

Some useful information for our friends in the USA.

This is information from the Brain Injury Association of America which lists all the State Health Departments in the United States of America and their web pages offering advice about Covid-19 / Coronavirus.

Stay safe!


8.03am - Friday, April 3

Good luck to David! If you are interested in becoming part of our fundraising team like David, please get in touch


10.24am - Thursday, April 2

Our Ambassador Rebecca Adlington will be on the telly tonight! 


9.58am - Thursday, April 2

Our friends at Clarke Wilmott have put together some useful information for any organisations and individuals who may have some legal questions surrounding the Covid-19 outbreak.

It is designed to help you to identify any issues that you may be currently concerned about and covers areas such as employment, powers of attorney, buying a house, and much more.

Visit the website 


8.44am - Thursday, April 2

Professor Tom Solomon and his colleagues at the Liverpool School of Tropical Medicine - including Dr Lance Turtle - were recently featured on BBC Look North West. Watch now.


2.43pm - Wednesday, April 1

Looking for a podcast to listen to?

Please check out the Mind and Seek podcast from Theresa and Brandon.

Theresa became poorly with anti-nmdar encephalitis in December 2017 and charts her recovery, and more recently, living in lockdown due to coronavirus.

Available on Apple, Spotify and Google.


10.17am - Wednesday, April 1

We asked Dr Thomas Pollak, who is a neuropsychiatrist and a member of our Scientific Advisory Panel, to share any information that he believes will be helpful to our members, and the general public, in the coming weeks and month.

His first recommendation is this Q&A with Dr Jon Goldin, of the Royal College of Psychiatrists, which offers advice on dealing with anxiety during the Coronavirus (Covid-19) pandemic.

Thank you, Tom and Jon. 


8.10am - Wednesday, April 1

It's definitely a busy morning on Twitter! Love this artwork from Alessia Bellino, who is one of our supporters in Italy.

8.05am - Wednesday, April 1

An important message from Professor Tom Solomon, President of the Encephalitis Society

7.58am - Wednesday. April 1

We are very proud of Dr Benedict Michael and all the members of our Scientific Advisory Panel for everything they are doing during the Covid-19 outbreak. 

2.16pm - Tuesday, March 31

Our virtual gatherings will be taking three days a week and will be led by members of the Encephalitis Society team. One of our ambitions is to bring members together and, given the current lockdown, we thought the best way to do that is through online video calls.

Mondays, Wednesdays and Thursdays are the days we have chosen. Find out more


10.56am - Tuesday, March 31

A funny read to lighten the Lockdown blues, courtesy of Dr Tom Pollak.


4.30pm - Monday, March 30

A transcript of our Coronavirus and Encephalitis podcast is now available. Simply visit the podcast page on the website.

The podcast featured Dr Ava Easton, Professor Tom Solomon and Dr Lance Turtle and answered your questions about coronavirus/Covid-19.


2.38pm - Friday, March 27

Interesting article from the BBC which gives a visual guide to the Coronavirus pandemic. Read now


2.01pm - Friday, March 27

After a successful trial, we will be starting virtual meetings next week for members of the Encephalitis Society.

Mondays @ 10:30am – Early Acute Recovery

This is a Zoom meeting for people that have been recently diagnosed or their loved ones. It is an opportunity to share tips and ask questions from the group.

Wednesdays @ 1pm – Coffee and a catchup

An informal get-together for people to have a chat, say hello and cheer each other up.

Thursdays @ 4pm – First Time

This is for anyone who hasn’t met someone else that has been through encephalitis (directly or as a loved one).

If you are interested in taking part, please email [email protected]


12.13pm - Friday, March 27

A busy morning for the comms team! We have been putting the finishing touches to our spring newsletter and will be sending it out on email, social media and our website tomorrow at 12pm. Normally, we would be sending out printed copies to many of our members. However, due to the current situation, this edition of the newsletter will only be going out digitally. We apologise about this, but do hope you enjoy reading the digital version.

8.18am - Thursday, March 26

Vote for Clair's Story


3.51pm - Wednesday, March 25

Some good news – finally!

We have just learned that our awareness film, Clair’s Story, is a finalist in The Charity Film Awards.

Given the current situation with Coronavirus, the awards ceremony will be a virtual event and live streamed on April 21.

We do need your votes to be in with a chance of winning.

If you can spare a few moments, please vote for Clair’s film


1.08pm - Wednesday, March 25


1.06pm - Wednesday, March 25 

The Calm smartphone App, which the Encephalitis Society team are big fans of, has released some free resources to help people during the Covid-19 outbreak.

It is well worth checking out what they are offering. Read Now

Calm is available to download from your phone's app store.


10.43am - Wednesday, March 25

Paul is one of our beloved volunteers and earlier this year sat down with us to talk about his encephalitis story.




10.31am - Wednesday, March 25

In our podcast on Coronavirus and Encephalitis, Dr Lance Turtle mentioned a New York Times article about the benefits of hand washing and how it had helped one Beijing school during the Sars outbreak. We have found it! Read Now


 

2.48pm - Tuesday, March 24

Some presents for Casper the office dog. I have just one question - are the Scooby Snacks fit for humans?


10.15am - Tuesday, March 24

Becky's story recently appeared in the Daily Mail. Read Now


10.11am - Tuesday, March 24

We'd love to hear your comments and add them to our blog. If you have any pictures, images or stories, please get in touch via our online contact form or via email


10.07am - Tuesday, March 24

Good morning everyone.

There are many articles out there which are helpful for anyone who, like us in the UK, are in lockdown. We like this article in the Guardian newspaper which has been written by Lea Waters, a psychology professor at the University of Melbourne.

She talks about how to stay positive during the Coronavirus outbreak. Read Now


2.38pm - Monday, March 23


12.25pm - Monday, March 23

Dr Ava Easton, our Chief Executive, has written a letter to members of the Encephalitis Society today in the wake of the Coronavirus outbreak. Read now


9.21am - Monday, March 23

Veronique, who lives in New Zealand, is a member of the Encephalitis Society and a blogger. Her latest blog reflects on isolation in the current climate. Read Now


8.49am - Monday, March 23

Morning everyone. 

We got an email over the weekend from Becky, who lives in Wrexham. Becky has been helping to raise awareness of encephalitis and appeared on radio over World Encephalitis Day. Her story also appeared in the news over the weekend and she wanted you to see it. 

Becky was around 38 weeks pregnant when she developed meningoencephalitis. Read her story


6.12pm - Friday, March 20

Our podcast about Coronavirus and encephalitis is now ready to watch. If you want to see the full list of questions and when the timecode, please go to our webpage about the podcast


4.55pm - Friday, March 20

This is lovely.


1.41pm - Friday, March 20

A reminder that later today we will be sharing a podcast on Coronavirus and encephalitis. Questions have been submitted and will be ll be answered by our panel of experts, Dr Ava Easton, Professor Tom Solomon and Dr Lance Turtle.


12.58pm - Friday, March 20

Today is the final day in our offices before we begin remote working from Monday, so as you can imagine we have been busy away making sure we have everything in place, such as up-to-date laptops and so on.

Our CEO Dr Ava Easton also popped in to film a short video which we will be sharing on Monday. Watch this space! 

9.08am - Friday, March 20

Last night's Question Time is now on YouTube which is great for people based outside the UK who would like to see Professor Tom Solomon's appearance.


9.04am - Friday, March 20

Some video from last night's Question Time with Professor Tom Solomon


9.31pm - Thursday, March 19

We hope you enjoyed watching Professor Tom Solomon on BBC Question Time. The full broadcast can be watched on BBC iPlayer now. Hopefully, Auntie Beeb will upload it to YouTube as well in which case we will hunt it down and share it with you.


4.56pm - Thursday, March 19

The Encephalitis Society team are calling it a day, but please be sure to tune into BBC One at 8pm where Professor Tom Solomon will be a panellist on Question Time. You will be able to watch it via BBC iPlayer during the broadcast or afterwards. 


4.55pm - Thursday, March 19

A message from our CEO, Dr Ava Easton.


4.45pm - Thursday, March 19

The Encephalitis Society online shop has been temporarily closed. This is because the team will be working from home, so will be unable to process any orders. Apologies for any inconvenience. More information can be found on our shop.  


2.10pm - Thursday, March 19

One for parents/carers.

The Division of Educational Psychology has issued some advice in response to the decision to close schools in the UK. Should be useful for parents and caregivers wherever you may be.

Read now


1.49pm - Thursday, March 19

It's a busy day in the headquarters of the Encephalitis Society. We are gearing up for remote working from Monday and have lots of jobs to do beforehand to ensure it runs smoothly. 

Even though the offices will not be open in the physical sense, it will be business as usual for the team. Our support team will be taking your calls and emails as normal and we are always here if you need anything else. We will still be operating our normal business hours which are 9am to 5pm, Mondays to Thursdays, and 9am to 4.20pm, on Fridays.

However, we may need to ask for patience around our support team as they may see an increase in demand. Generally, we aim to answer any enquiries within two to three working days and we will endeavour to continue to do so.


8.47am - Thursday, March 19

Professor Tom Solomon, our President, will be on Question Time this evening at 8pm.


11am - Wednesday, March 18

We have changed the dates for our Young Expert Residential Weekend at Hollowford Centre, Derbyshire. The weekend will now run from Friday, November 20, to Sunday, November 22.

This weekend is aimed at children and young people from the UK aged between 12 and 25-years-old. There will be lots of fun activities as well as some focus groups which will help us to better shape the services for young people.

Find out more


9am - Wednesday, March 18

A tweet from Professor Tom Solomon, President of the Encephalitis Society. 


7.08pm - Tuesday, March 17

The Encephalitis Society will be providing support and resources to people as best as we can during the weeks and months to come. You can contact us through the usual channels including online

4.10pm - Tuesday, March 17

The Encephalitis Society will be releasing a podcast on Friday, March 20, about Covid-19 and encephalitis.

Over the past week, you have submitted many questions about coronavirus which will be answered by our panel of experts, Dr Ava Easton, Professor Tom Solomon and Dr Lance Turtle.

Watch this space for further details.


11.37am - Tuesday, March 17

If you are self-isolating and are looking for something to do, why not visit our YouTube channel and watch some of our expert films on different aspects of encephalitis, previous events or personal experiences of encephalitis.


10am - Tuesday, March 17

Dr Benedict Michael and Dr Ava Easton put together a statement on Covid-19 and encephalitis on Tuesday, March 10. A good starting point for anyone who has an interest in Coronavirus and encephalitis. Read now